Zusammenfassung
Ziel der Metasynthese ist die Entwicklung eines Modells der demenzspezifischen Lebensqualität, basierend auf den Selbstäußerungen von Menschen mit Demenz. Das methodische Vorgehen erfolgte in vier Schritten: Systematische Datenbankrecherche, Analyse der Charakteristika der eingeschlossenen Studien, Qualitätsbewertung der eingeschlossenen Publikationen und Synthese der Selbstäußerungen von Menschen mit Demenz. Anhand der neun für die Metasynthese berücksichtigten qualitativen Studien konnten insgesamt 14 Dimensionen der LQ herausgearbeitet werden: Familie, soziale Kontakte und Beziehungen, Selbstbestimmung und Freiheit, Wohnumfeld, positive Emotionen, negative Emotionen, Privatheit, Sicherheit, Selbstwertgefühl, physische und mentale Gesundheit, Glaube/Spiritualität, Pflegebeziehung, Freude an Aktivitäten und Zukunftsaussichten. Diese Dimensionen unterstreichen die Bedeutung psychosozialer Dimensionen der Lebensqualität. Daneben liefern sie eine Orientierung für die zukünftige Entwicklung von Lebensqualitätsinstrumenten, sowie zur Entwicklung und Überprüfung von nicht-pharmakologischen oder psychosozialen Interventionen für die Versorgung von Menschen mit Demenz.
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Literatur
Brookmeyer R, Johnson E, Ziegler-Graham K, Arrighi, H M (2007) Forecasting the global burden of Alzheimer’s disease. Alzheimers Dement 3(3):186–191
Byrne-Davis L M T, Bennett P D, Wilcock G K (2006) How are quality of life ratings made? Toward a model of quality of life in people with dementia. Quality of Life Research 15(5):855–865
Cahill S, Diaz-Ponce A M (2011) ‘I hate having nobody here. I’d like to know where they all are’: Can qualitative research detect differences in quality of life among nursing home residents with different levels of cognitive impairment? Aging Ment Health 15(5):562–572
Cooper C, Mukadam N, Katona C, Lyketsos C G, Ames D, Rabins P et al (2012) Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. Int Psychogeriatr 24(6):856–870
Critical Appraisal Skills Programme (CASP) (2006) 10 questions to help you make sense of qualitative research. www.sph.nhs.uk/sph-files/casp-appraisal-tools/Qualitative%20Appraisal%20Tool.pdf. Zugegriffen: 30. September 2014
Dichter M, Schwab C, Meyer G, Bartholomeyczik S, Dortmann O, Halek M (2014) Measuring the quality of life in mild to very severe dementia: Testing the inter-rater and intra-rater reliability of the German version of the QUALIDEM. International Psychogeriatrics doi:10.1017/S1041610214000052
Dichter M N, Dortmann O, Halek M, Meyer G, Holle D, Nordheim J et al (2013) Scalability and internal consistency of the German version of the dementia-specific quality of life instrument QUALIDEM in nursing homes – a secondary data analysis. Health Qual Life Outcomes 11:91
Dröes R-M, Boelens-Van Der Knoop E C C, Bos J, Meihuizen L, Ettema T P, Gerritsen D L et al (2006) Quality of life in dementia in perspective. An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia 5(4):533–558
Droes R M (1991) In movement; on psychosocial care for elderly with dementia [In beweging: over psychosocial hulpverlening an demente ouderen]. Vrije Universiteit Amsterdam Ettema T P, Droes R M, de Lange J, Mellenbergh G J, Ribbe M W (2007) QUALIDEM: development and evaluation of a dementia specific quality of life instrument – validation. Int J Geriatr Psychiatry 22(5):424–430
Ettema T P, Droes R M, de Lange J, Ooms M E, Mellenbergh G J, Ribbe M W (2005) The concept of quality of life in dementia in the different stages of the disease. Int Psychogeriatr 17(3):353–370
Feder G S, Hutson M, Ramsay J, Taket A R (2006) Women exposed to intimate partner violence: expectations and experiences when they encounter health care professionals: a meta-analysis of qualitative studies. Arch Intern Med 166(1):22–37
Ferri C P, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M et al (2005) Global prevalence of dementia: a Delphi consensus study. Lancet 366(9503):2112–2117
Förstl H, Lang C (2011) Was ist Demenz? In: Förstl H (Hrsg) Demenzen in Theorie und Praxis. Springer, Berlin – Heidelberg, S 4–9
Gallrach F (2006) Lebensqualität von Demenz-Patienten und ihren Caregivern. Eine methodische und begriffliche Studie. Ernst-Moritz-Arndt-Universität Greifswald, Greifswald
Health Information Research Unit (2011) Search Filters for MEDLINE in Ovid Syntax and the PubMed translation. McMaster University: http://hiru.mcmaster.ca/hiru/HIRU_Hedges_MEDLINE_Strategies.aspx#Qualitative. Zugegriffen: 29. Juni 2012
Hermans D G, Htay U H, McShane R (2007) Non-pharmacological interventions for wandering of people with dementia in the domestic setting. Cochrane Database Syst Rev(1) CD005994
Jonas-Simpson C (2005) Giving voice to expressions of quality of life for persons with dementia through story, music and art. Alzheimer’s Care Quarterly 6(1):52–61
Jonker C, Gerritsen D L, Bosboom P R, Van Der Steen J T (2004) A model for quality of life measures in patients with dementia: Lawton’s next step. Dement Geriatr Cogn Disord 18(2):159–164
Lawton M P (1991) A Multidimensional View of Quality of Life in Frail Elders. In: Birren E J, Lubben E J, Rowe C J, Deutchman E D (Hrsg) The Concept and Measurement of Quality of Life in the Frail Elderly. Academic Press, San Diego, S 3–23
Lawton M P (1994) Quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 8 Suppl 3 138–150
Logsdon R G, Gibbons L E, McCurry S M, Teri L (1999) Quality of life in Alzheimer’s Disease: Patient and caregiver reports. J Ment Health Aging 5(1):21–32
Logsdon R G, Gibbons L E, McCurry S M, Teri L (2002) Assessing quality of life in older adults with cognitive impairment. Psychosom Med 64(3):510–519
Matano T (2000) Quality of Life of persons with alzheimer’s disease. University of Illinois at Chicago, Chicago
Morse M, Field P (1996) Qualitative Pflegeforschung. Anwendung qualitativer Ansätze in der Pflege. Ullstein Medical, Wiesbaden
Moyle W, Mcallister M, Venturato L, Adams T (2007) Quality of life and dementia. dementia 6(2):175–191
Moyle W, Venturto L, Griffiths S, Grimbeek P, McAllister M, Oxlade D et al (2011) Factors influencing quality of life for people with dementia: a qualitative perspective. Aging Ment Health 15(8):970–977
Neal M, Barton Wright P (2003) Validation therapy for dementia. Cochrane Database Syst Rev(3) CD001394
Perales J, Cosco T D, Stephan B C, Haro J M, Brayne C (2013) Health-related quality-of-life instruments for Alzheimer’s disease and mixed dementia. Int Psychogeriatrics 25(5):691–706
Rizzo-Parse R (1996) Quality of life for persons living with Alzheimer’s disease: the human becoming perspective. Nurs Sci Q 9(3):126–133
Scholzel-Dorenbos C J, Meeuwsen E J, Olde Rikkert M G (2010) Integrating unmet needs into dementia health-related quality of life research and care: Introduction of the Hierarchy Model of Needs in Dementia. Aging Ment Health 14(1):113–119
Smith S C, Lamping D L, Banerjee S, Harwood R H, Foley B, Smith P et al (2005a) Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment NHS R & D HTA Programme 9(10):1–110
Smith S C, Murray J, Banerjee S, Foley B, Cook J C, Lamping D L et al (2005b) What constitutes health-related quality of life in dementia? Development of a conceptual framework for people with dementia and their carers. Int J Geriatr Psychiatry 20(9):889–895
WHO (1995) The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 41(10):1403–1409
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Dichter, M., Palm, R., Halek, M., Bartholomeyczik, S., Meyer, G. (2016). Die Lebensqualität von Menschen mit Demenz. In: Kovács, L., Kipke, R., Lutz, R. (eds) Lebensqualität in der Medizin. Springer VS, Wiesbaden. https://doi.org/10.1007/978-3-658-10679-9_19
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