Abstract
Anorexia nervosa (AN) is a severe mental disorder characterized by high mortality with typical onset in female adolescents. Quality of life (QoL) is strongly impaired in AN and potentially underestimated because of the ego-syntonicity of this illness which makes sufferers not fully aware of their symptoms. Taken together, eating disorders (including also bulimia nervosa and binge eating disorder) are characterized by poor QoL when compared to the general population. However, data are mixed as to whether QoL is most impaired in AN or in other eating disorders. With respect to QoL in AN subtypes, the binge-purging one resulted to have poorer QoL levels than the restricting one. Those with AN reported levels of QoL comparable to those of schizophrenic and severely depressed patients. It is of importance that QoL is taken into account in treatments since outpatient and inpatient interventions were shown to be able to improve it effectively.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Abbreviations
- AN:
-
Anorexia nervosa
- BED:
-
Binge eating disorder
- BMI:
-
Body Mass Index
- BN:
-
Bulimia nervosa
- BP-AN:
-
Binge/purging-type AN
- DSM:
-
Diagnostic and Statistical manual of Mental disorders
- EDs:
-
Eating disorders
- HRQoL:
-
Health-related quality of life
- QoL:
-
Quality of life
- R-AN:
-
Restricting-type AN
References
Abbate-Daga G, Campisi S, Marzola E, Rocca G, Peris C, Campagnoli C et al (2011a) Amenorrhea in eating disorders: poor stability of symptom after a one-year treatment. Eat Weight Disord 17:e78
Abbate-Daga G, Gramaglia C, Bailer U, Bergese S, Marzola E, Fassino S (2011b) Major depression and avoidant personality traits in eating disorders. Psychother Psychosom 80(5):319–320
Abbate-Daga G, Amianto F, Delsedime N, De-Bacco C, Fassino S (2013) Resistance to treatment and change in anorexia nervosa [corrected]: a clinical overview. BMC Psychiatry 13:294
Abbate-Daga G, Facchini F, Marzola E, Delsedime N, Giovannone C, Amianto F, Fassino S (2014) Health-related quality of life in adult inpatients affected by anorexia nervosa. Eur Eat Disord Rev 22(4):285–291
Abbate-Daga G, Buzzichelli S, Marzola E, Aloi M, Amianto F, Fassino S (2015) Does depression matter in neuropsychological performances in anorexia nervosa? A descriptive review. Int J Eat Disord 48(6):736–745
Abraham SF, Brown T, Boyd C, Luscombe G, Russell J (2006) Quality of life: eating disorders. Aust N Z J Psychiatry 40(2):150–155
Ackard DM, Richter S, Egan A, Engel S, Cronemeyer CL (2014) The meaning of (quality of) life in patients with eating disorders: a comparison of generic and disease-specific measures across diagnosis and outcome. Int J Eat Disord 47(3):259–267
Adair CE, Marcoux GC, Cram BS, Ewashen CJ, Chafe J, Cassin SE et al (2007) Development and multi-site validation of a new condition-specific quality of life measure for eating disorders. Health Qual Life Outcomes 5:23
American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders, 5th edn. American Psychiatric Publishing, Arlington
Arcelus J, Mitchell AJ, Wales J, Nielsen S (2011) Mortality rates in patients with anorexia nervosa and other eating disorders. A meta-analysis of 36 studies. Arch Gen Psychiatry 68(7):724–731
Arkell J, Robinson P (2008) A pilot case series using qualitative and quantitative methods: biological, psychological and social outcome in severe and enduring eating disorder (anorexia nervosa). Int J Eat Disord 41(7):650–656
Baiano M, Salvo P, Righetti P, Cereser L, Baldissera E, Camponogara I, Balestrieri M (2014) Exploring health-related quality of life in eating disorders by a cross-sectional study and a comprehensive review. BMC Psychiatry 14:165
Bamford B, Sly R (2010) Exploring quality of life in the eating disorders. Eur Eat Disord Rev 18(2):147–153
Bamford B, Barras C, Sly R, Stiles-Shields C, Touyz S, Le Grange D et al (2015) Eating disorder symptoms and quality of life: where should clinicians place their focus in severe and enduring anorexia nervosa? Int J Eat Disord 48(1):133–138
Bohn K, Fairburn CG (2008) The clinical impairment assessment questionnaire (CIA). In: Cognitive behavioral therapy for eating disorders. Guildford Press, New York
Bulik CM, Sullivan PF, Tozzi F, Furberg H, Lichtenstein P, Pedersen NL (2006) Prevalence, heritability, and prospective risk factors for anorexia nervosa. Arch Gen Psychiatry 63(3):305–312
Carradice D, Samuel N, Wallace T, Mazari FA, Hatfield J, Chetter I (2012) Comparing the treatment response of great saphenous and small saphenous vein incompetence following surgery and endovenous laser ablation: a retrospective cohort study. Phlebology 27(3):128–134
Carter JC, Bewell C, Devins GM (2008) Illness intrusiveness in anorexia nervosa. J Psychosom Res 64(5):519–526
Dawson L, Rhodes P, Touyz S (2014) “doing the impossible”: the process of recovery from chronic anorexia nervosa. Qual Health Res 24(4):494–505
De Jong H, Oldershaw A, Sternheim L, Samarawickrema N, Kenyon MD, Broadbent H et al (2013) Quality of life in anorexia nervosa, bulimia nervosa and eating disorder not-otherwise-specified. Int J Eat Disord 1:43
de la Rie SM, Noordenbos G, van Furth EF (2005) Quality of life and eating disorders. Qual Life Res 14(6):1511–1522
Doll HA, Petersen SE, Stewart-Brown SL (2005) Eating disorders and emotional and physical well-being: associations between student self-reports of eating disorders and quality of life as measured by the SF-36. Qual Life Res 14(3):705–717
Engel SG, Wittrock DA, Crosby RD, Wonderlich SA, Mitchell JE, Kolotkin RL (2006) Development and psychometric validation of an eating disorder-specific health-related quality of life instrument. Int J Eat Disord 39(1):62–71
Erdur L, Kallenbach-Dermutz B, Lehmann V, Zimmermann-Viehoff F, Köpp W, Weber C, Deter HC (2012) Somatic comorbidity in anorexia nervosa: first results of a 21-year follow-up study on female inpatients. Biopsychosoc Med 6(1):4
EuroQol Group (1990) EuroQol – a new facility for the measurement of health-related quality of life. Health Policy 16(3):199–208
Favaro A, Tenconi E, Santonastaso P (2006) Perinatal factors and the risk of developing anorexia nervosa and bulimia nervosa. Arch Gen Psychiatry 63(1):82–88
Favaro A, Caregaro L, Tenconi E, Bosello R, Santonastaso P (2009) Time trends in age at onset of anorexia nervosa and bulimia nervosa. J Clin Psychiatry 70(12):1715–1721
Goldsmith KA, Dyer MT, Buxton MJ, Sharples LD (2010) Mapping of the EQ-5D index from clinical outcome measures and demographic variables in patients with coronary heart disease. Health Qual Life Outcomes 8:54
González N, Padierna A, Quintana JM, Aróstegui I, Horcajo MJ (2001) Quality of life in patients with eating disorders. Gac Sanit 15(1):18–24
Guarda AS (2008) Treatment of anorexia nervosa: insights and obstacles. Physiol Behav 94(1):113–120
Gutierrez E (2013) A rat in the labyrinth of anorexia nervosa: contributions of the activity-based anorexia rodent model to the understanding of anorexia nervosa. Int J Eat Disord 46(4):289–301
Hay P (2003) Quality of life and bulimic eating disorder behaviors: findings from a community-based sample. Int J Eat Disord 33(4):434–442
Hoek HW, van Harten PN, Hermans KM, Katzman MA, Matroos GE, Susser ES (2005) The incidence of anorexia nervosa on Curaçao. Am J Psychiatry 162(4):748–752
Jacobi C, Hayward C, de Zwaan M, Kraemer HC, Agras WS (2004) Coming to terms with risk factors for eating disorders: application of risk terminology and suggestions for a general taxonomy. Psychol Bull 130(1):19–65
Jeejeebhoy KN (1998) Nutritional assessment. Gastroenterol Clin N Am 27(2):347–369
Jenkins PE, Hoste RR, Meyer C, Blissett JM (2011) Eating disorders and quality of life: a review of the literature. Clin Psychol Rev 31(1):113–121
Junne F, Zipfel S, Wild B, Martus P, Giel K, Resmark G et al (2016) The relationship of body image with symptoms of depression and anxiety in patients with anorexia nervosa during outpatient psychotherapy: results of the ANTOP study. Psychotherapy (Chic) 53(2):141–151
Kaye WH, Wierenga CE, Bailer UF, Simmons AN, Bischoff-Grethe A (2013) Nothing tastes as good as skinny feels: the neurobiology of anorexia nervosa. Trends Neurosci 36(2):110–120
Keilen M, Treasure T, Schmidt U, Treasure J (1994) Quality of life measurements in eating disorders, angina, and transplant candidates: are they comparable? J R Soc Med 87(8):441–444
Klump KL, Bulik CM, Kaye WH, Treasure J, Tyson E (2009) Academy for eating disorders position paper: eating disorders are serious mental illnesses. Int J Eat Disord 42(2):97–103
Konstantakopoulos G, Varsou E, Dikeos D, Ioannidi N, Gonidakis F, Papadimitriou G, Oulis P (2012) Delusionality of body image beliefs in eating disorders. Psychiatry Res 200(2–3):482–488
Las Hayas C, Quintana JM, Padierna A, Bilbao A, Muñoz P, Madrazo A et al (2006) The new questionnaire health-related quality of life for eating disorders showed good validity and reliability. J Clin Epidemiol 59(2):192–200
Latner JD, Vallance JK, Buckett G (2008) Health-related quality of life in women with eating disorders: association with subjective and objective binge eating. J Clin Psychol Med Settings 15(2):148–153
Malson H, Bailey L, Clarke S, Treasure J, Anderson G, Kohn M (2011) Un/imaginable future selves: a discourse analysis of in-patients’ talk about recovery from an “eating disorder”. Eur Eat Disord Rev 19(1):25–36
Maratos EC, Trivedi R, Richards H, Seeley H, Laing RJ (2012) Psychological distress does not compromise outcome in spinal surgery. Br J Neurosurg 26(4):466–471
Marzola E, Nasser JA, Hashim SA, Shih PA, Kaye WH (2013) Nutritional rehabilitation in anorexia nervosa: review of the literature and implications for treatment. BMC Psychiatry 13:290
McCrone P, Patel A, Knapp M, Schene A, Koeter M, Amaddeo F et al (2009) A comparison of SF-6D and EQ-5D utility scores in a study of patients with schizophrenia. J Ment Health Policy Econ 12(1):27–31
McHugh MD (2007) Readiness for change and short-term outcomes of female adolescents in residential treatment for anorexia nervosa. Int J Eat Disord 40(7):602–612
Miller DM (2002) Health-related quality of life. Mult Scler 8(4):269–270
Mitchison D, Hay P, Slewa-Younan S, Mond J (2012) Time trends in population prevalence of eating disorder behaviors and their relationship to quality of life. PLoS One 7(11):e48450
Mond JM, Hay PJ, Rodgers B, Owen C, Beumont PJ (2005) Assessing quality of life in eating disorder patients. Qual Life Res 14(1):171–178
Muñoz P, Quintana JM, Las Hayas C, Aguirre U, Padierna A, González-Torres MA (2009) Assessment of the impact of eating disorders on quality of life using the disease-specific, health-related quality of life for eating disorders (HeRQoLED) questionnaire. Qual Life Res 18(9):1137–1146
Murray SB, Le Grange D (2014) Family therapy for adolescent eating disorders: an update. Curr Psychiatry Rep 16(5):447
National Institute for Health and Care Excellence (2004) Core interventions in the treatment and management of anorexia nervosa, bulimia nervosa and related eating disorders, Clinical guideline, vol 9. National Collaborating Centre for Medical Health, London
Padierna A, Quintana JM, Arostegui I, Gonzalez N, Horcajo MJ (2000) The health-related quality of life in eating disorders. Qual Life Res 9(6):667–674
Peñas-Lledó E, Vaz Leal FJ, Waller G (2002) Excessive exercise in anorexia nervosa and bulimia nervosa: relation to eating characteristics and general psychopathology. Int J Eat Disord 31(4):370–375
Pohjolainen V, Koponen S, Räsänen P, Roine RP, Sintonen H, Karlsson H (2016) Long-term health-related quality of life in eating disorders. Qual Life Res 25(9):2341–2346
Santonastaso P, Saccon D, Favaro A (1997) Burden and psychiatric symptoms on key relatives of patients with eating disorders: a preliminary study. Eat Weight Disord 2(1):44–48
Seitz J, Bühren K, von Polier GG, Heussen N, Herpertz-Dahlmann B, Konrad K (2014) Morphological changes in the brain of acutely ill and weight-recovered patients with anorexia nervosa. A meta-analysis and qualitative review. Z Kinder Jugendpsychiatr Psychother 42(1):7–17; quiz -8
Spitzer RL, Kroenke K, Linzer M, Hahn SR, Williams JB, deGruy FV et al (1995) Health-related quality of life in primary care patients with mental disorders. Results from the PRIME-MD 1000 study. JAMA 274(19):1511–1517
Stanghellini G, Castellini G, Brogna P, Faravelli C, Ricca V (2012) Identity and eating disorders (IDEA): a questionnaire evaluating identity and embodiment in eating disorder patients. Psychopathology 45(3):147–158
Steinhausen HC (2002) The outcome of anorexia nervosa in the 20th century. Am J Psychiatry 159(8):1284–1293
Stuhldreher N, Konnopka A, Wild B, Herzog W, Zipfel S, Löwe B, König HH (2012) Cost-of-illness studies and cost-effectiveness analyses in eating disorders: a systematic review. Int J Eat Disord 45(4):476–491
Swinbourne J, Hunt C, Abbott M, Russell J, St Clare T, Touyz S (2012) The comorbidity between eating disorders and anxiety disorders: prevalence in an eating disorder sample and anxiety disorder sample. Aust N Z J Psychiatry 46(2):118–131
Sy R, Ponton K, De Marco P, Pi S, Ishak WW (2013) Quality of life in anorexia nervosa: a review of the literature. Eat Disord 21(3):206–222
Tirico PP, Stefano SC, Blay SL (2010) Quality of life and eating disorders: a systematic review. Cad Saude Publica 26(3):431–449
Touyz S, Le Grange D, Lacey H, Hay P, Smith R, Maguire S et al (2013) Treating severe and enduring anorexia nervosa: a randomized controlled trial. Psychol Med 43(12):2501–2511
Turner H, Bryant-Waugh R, Peveler R (2010) The clinical features of EDNOS: relationship to mood, health status and general functioning. Eat Behav 11(2):127–130
Ware JE, Sherbourne CD (1992) The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30(6):473–483
WHOQOL Group (1993) Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Qual Life Res 2(2):153–159
Wildes JE, Ringham RM, Marcus MD (2010) Emotion avoidance in patients with anorexia nervosa: initial test of a functional model. Int J Eat Disord 43(5):398–404
Winkler LA, Christiansen E, Lichtenstein MB, Hansen NB, Bilenberg N, Støving RK (2014) Quality of life in eating disorders: a meta-analysis. Psychiatry Res 219(1):1–9
Wonderlich S, Mitchell JE, Crosby RD, Myers TC, Kadlec K, Lahaise K et al (2012) Minimizing and treating chronicity in the eating disorders: a clinical overview. Int J Eat Disord 45(4):467–475
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2019 Springer Nature Switzerland AG
About this entry
Cite this entry
Marzola, E., Abbate-Daga, G. (2019). Quality of Life in Adult Anorexia Nervosa. In: Preedy, V., Patel, V. (eds) Handbook of Famine, Starvation, and Nutrient Deprivation. Springer, Cham. https://doi.org/10.1007/978-3-319-55387-0_27
Download citation
DOI: https://doi.org/10.1007/978-3-319-55387-0_27
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-55386-3
Online ISBN: 978-3-319-55387-0
eBook Packages: MedicineReference Module Medicine