Skip to main content
SpringerLink
Log in

Palliative Care for Individuals with Cerebral Palsy

  • Living reference work entry
  • First Online:
Cerebral Palsy

Abstract

Pediatric palliative care teams are interdisciplinary teams that focus on quality of life for pediatric patients with severe illness and their families. This chapter outlines a description of palliative care teams and how they can assist individuals with severe cerebral palsy and their families along the journey of illness.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution

Institutional subscriptions

References

  • Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG (2015) Hospital use in the last year of life for children with life-threatening complex chronic conditions. Pediatrics 136(5):938–946

    Article  PubMed  PubMed Central  Google Scholar 

  • Delaware Medical Orders for Scope of Treatment (DMOST) 19 DE Reg. 922. April 1, 2016

    Google Scholar 

  • Durall A, Zurakowski D, Wolfe J (2012) Barriers to conducting advance care discussions for children with life-threatening conditions. Pediatrics 129(4):e975–e982

    Article  PubMed  Google Scholar 

  • Feudtner C (2007) Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making. Pediatr Clin N Am 54(5):583–607. ix

    Article  Google Scholar 

  • Feudtner C, Womer J, Augustin R et al (2013) Pediatric palliative care programs in children’s hospitals: a cross-sectional national survey. Pediatrics 132(6):1063–1070

    Article  PubMed  Google Scholar 

  • Gaab EM, Owens GR, MacLeod RD (2014) Siblings caring for and about pediatric palliative care patients. J Palliat Med 17(1):62–67

    Article  PubMed  Google Scholar 

  • Hammes BJ, Klevan J, Kempf M, Williams MS (2005) Pediatric advance care planning. J Palliat Med 8(4):766–773

    Article  PubMed  Google Scholar 

  • Hauer J, Houtrow AJ (2017) Section on H, palliative medicine COCWD. Pain assessment and treatment in children with significant impairment of the central nervous system. Pediatrics 139(6) e20171002; https://doi.org/10.1542/peds.2017-1002

  • Institute of Medicine (2015) Dying in America: improving quality and honoring individual preferences near the end of life. Mil Med 180(4):365–367

    Article  Google Scholar 

  • Kaye EC, Rubenstein J, Levine D, Baker JN, Dabbs D, Friebert SE (2015) Pediatric palliative care in the community. CA Cancer J Clin 65(4):316–333

    Article  PubMed  Google Scholar 

  • Klick JC, Hauer J (2010) Pediatric palliative care. Curr Probl Pediatr Adolesc Health Care 40(6):120–151

    Article  PubMed  Google Scholar 

  • Liberman DB, Pham PK, Nager AL (2014) Pediatric advance directives: parents’ knowledge, experience, and preferences. Pediatrics 134(2):e436–e443

    Article  PubMed  Google Scholar 

  • Lovgren M, Bylund-Grenklo T, Jalmsell L, Wallin AE, Kreicbergs U (2016) Bereaved Siblings’ advice to health care professionals working with children with cancer and their families. J Pediatr Oncol Nurs 33(4):297–305

    Article  PubMed  Google Scholar 

  • Organization WH. WHO definition of palliative care for children. 1998

    Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Department of Pediatrics, Division of Palliative Medicine, Nemours/AI duPont Hospital for Children, Wilmington, DE, USA

    Elissa Miller & Carly Levy

  2. Sidney Kimmel Medical College Thomas Jefferson University, Philadelphia, PA, USA

    Elissa Miller & Carly Levy

  3. Department of Pediatrics, Pediatric Palliative Care, Kentucky Children’s Hospital, University of Kentucky, Lexington, KY, USA

    Lindsay Ragsdale

Authors
  1. Elissa Miller
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Carly Levy
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Lindsay Ragsdale
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Elissa Miller .

Editor information

Editors and Affiliations

  1. Alfred I. duPont Institute, Wilmington, Delaware, USA

    Freeman Miller

  2. Cerebral Palsy Program, AI DuPont Hospital for Children , Wilmington, Delaware, USA

    Steven Bachrach

  3. AI DuPont Hospital for Children , Wilmington, Delaware, USA

    Nancy Lennon

  4. Drexel University, PHILADELPHIA, Pennsylvania, USA

    Margaret O'Neil

Section Editor information

  1. Al duPont Hospital for Children, Wilmington, DE, USA

    Steven Bachrach

Rights and permissions

Reprints and permissions

Copyright information

© 2018 Springer International Publishing AG

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Miller, E., Levy, C., Ragsdale, L. (2018). Palliative Care for Individuals with Cerebral Palsy. In: Miller, F., Bachrach, S., Lennon, N., O'Neil, M. (eds) Cerebral Palsy. Springer, Cham. https://doi.org/10.1007/978-3-319-50592-3_25-1

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-50592-3_25-1

  • Received:

  • Accepted:

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-50592-3

  • Online ISBN: 978-3-319-50592-3

  • eBook Packages: Springer Reference MedicineReference Module Medicine

Publish with us

Policies and ethics

Search

Navigation