Advertisement

Psychosocial Assessment in Transplantation

  • Beverly S. Shreve
Reference work entry
Part of the Organ and Tissue Transplantation book series (OTT)

Abstract

The psychosocial evaluation used in the assessment of the pediatric solid organ transplant recipient continues to play an important role in the transplant process although its key roles have changed from the inception of transplantation. This chapter describes the history of the psychosocial assessment and how it was first used in the transplant process in the early 1980s to the present day of transplantation. The fundamentals of the assessment, which are to attain a well-rounded knowledge of the transplant candidate and the candidate’s family, have remained a constant, but the reader will learn that with the advancements in solid organ transplantation came changes in psychosocial issues deemed pertinent. The issues of importance include the presence of family discord/stressors, financial issues, evidence of nonadherence, and cognitive and cultural discordance. Each of these will be addressed.

Although the psychosocial assessment is an integral part of the multidisciplinary evaluation, it is meant to identify patient and family strengths and weaknesses. It is not intended to impact on the determination of eligibility for pediatric transplantation.

Keywords

Psychosocial assessment Pediatric transplantation Liver transplant Kidney transplant Nonadherence Cultural diversity Cognitive Psychosocial issues in transplantation Family discord Risk factors in transplant 

References

  1. Aldridge MD (2008) How do families adjust to having a child with chronic kidney failure: a systematic review. Nephrol Nurs J 35:157–162PubMedGoogle Scholar
  2. Annuziato RA, Fisher MK, Jerson B et al (2010) Psychosocial assessment prior to pediatric transplantation: a review and summary of key considerations. Pediatr. Transplantation 14:565–574Google Scholar
  3. Campbell A (2006) Spiritual care for sick children of five faiths. Nursing 18:22–25Google Scholar
  4. Coward H, Hartrick G (2000) Perspectives on health and cultural pluralism: ethics in medical evaluation. Clin Invest Med 23(4):261–265PubMedGoogle Scholar
  5. DeGeest S, Dobbels F, Fluri C et al (2005) Adherence to the therapeutic regimen in heart, lung and heart-lung transplant recipients. J Cardiovasc Nurs 20:S88–S98CrossRefGoogle Scholar
  6. Demaso DR, Douglas Kelley S, Bastardi H et al (2004) The longitudinal impact of psychological functioning, medical severity, and family functioning in pediatric heart transplantation. J Heart Lung Transplant 23(4):473–480CrossRefPubMedGoogle Scholar
  7. Devine KA, Reed-Knight B, Loiselle KA et al (2011) Predictors of long-term health-related quality of life in adolescent solid organ transplant recipients. J Pediatr Psychol 36:891–901CrossRefPubMedPubMedCentralGoogle Scholar
  8. DiMatteo MR (2004) The role of effective communication with children and families in fostering adherence to pediatric regimens. Patient Educ Couns 55:339–344CrossRefPubMedGoogle Scholar
  9. Frabrizi A, Pecoraro AM (2006) Organ transplants in children and adolescents: social, emotional and psychopathological problems. Minerva Pediatr 58:423–441Google Scholar
  10. Fredericks EM, Lopez MJ, Magee JC et al (2007) Psychological functioning, non-adherence and health outcomes after pediatric liver transplantation. Am J Transplant 7:1974–1983CrossRefPubMedGoogle Scholar
  11. Freeman RB, Bernatb JL (2012) Ethical issues in organ transplantation. Prog Cardiovasc Dis 55(3):282–289.  https://doi.org/10.1016/j.pcad.2012.08.005
  12. Fung E, Shaw RJ (2008) Pediatric transplant rating instrument - a scale for the pretransplant psychiatric evaluation of pediatric organ transplant recipients. Pediatr Transplant 12:57–66CrossRefPubMedGoogle Scholar
  13. Green A, Meaux J, Huett A et al (2011) “It has its ups and downs” adolescents quality of life after heart transplantation. Prog Transplant 21:114–120Google Scholar
  14. Griffin KJ, Elkin TD (2001) Non-adherence in pediatric transplantation: a review of existing literature. Pediatr Transplant 5:246–249CrossRefPubMedGoogle Scholar
  15. Himelstein BP, Hilden JM, Boldt AM et al (2004) Medical Progress-Pediatric palliative care. N Engl J Med 350:1752–1762CrossRefPubMedGoogle Scholar
  16. Lefkowitz SD et al (2014) Best practices in the pediatric pretransplant psychosocial evaluation. Pediatr Transplant 18:327–335CrossRefPubMedGoogle Scholar
  17. Maloney R, Clay DL, Robinson J (2005) Sociocultural issues in pediatric transplantation: a conceptual model. J Pediatr Psychol 30:235–246CrossRefPubMedGoogle Scholar
  18. Mazanee P, Tyler MK (2003) Cultural considerations in end-of-life care – how ethnicity, age, and spirituality affect decisions when death is imminent. Am J Nurs 103:50–58CrossRefGoogle Scholar
  19. Olbrisch ME, Levenson JL (1995) Psychosocial assessment of organ transplant candidates: current status of methodological and philosophical issues. Psychosomatics 36:236–243CrossRefPubMedGoogle Scholar
  20. Organ Procurement and Transplantation Network Bylaws (2013) http://optn.transplant.hrsa.gov/ContentDocuments/OPTN_-Bylaws.pdf#nameddest=Appendix_D. Accessed 1 Sept 2013
  21. Pediatric antiretroviral therapy adherence measurement items Int J Behav Med 21:186–196Google Scholar
  22. Phan L, Tran J (2007) Culture clues: communicating with the Vietnamese patient. Patient and Family Education Services at the University of Washington Medical Center. http://depts.wahsington.edu/pfes/culture-clues.htm
  23. Reynolds JM, Garralda ME, Postlethwaite RJ et al (1993) Psychosocial adjustment of adult survivors of a pediatric dialysis and transplant programme. Arch Dis Child 68:104–110CrossRefPubMedPubMedCentralGoogle Scholar
  24. Shaw RJ, Taussig HN (1999) Pediatric psychiatric pretransplant evaluation. Clin Child Psychol Psychiatry 4:353–365CrossRefGoogle Scholar
  25. Shemesh E (2008) Assessment and management of psychosocial challenges in pediatric liver transplantation. Liver Transpl 14:1229–1236CrossRefPubMedGoogle Scholar
  26. Shemesh E, Annunziato RA, Yehuda R et al (2007) Childhood abuse, nonadherence, and medical outcome in pediatric liver transplant recipients. J Am Acad Child Adolesc Psychiatry 46(10):1280–1289CrossRefPubMedGoogle Scholar
  27. Soliday E, Kool E, Lande MB (2000) Psychosocial adjustment in children with kidney disease. J Pediatr Psychol 25:93–103CrossRefPubMedGoogle Scholar
  28. Stone D, Banerjee M, Dupuis J et al (2006) Association of parental pretransplant psychosocial assessment with post-transplant morbidity in pediatric heart transplant recipients. Pediatr Transplant 10:602–607CrossRefPubMedGoogle Scholar
  29. Taylor RM, Franck LS, Gibson F et al (2009) Study of the factors affecting health-related quality of life in adolescents after liver transplantation. Am J Transplant 9:1179–1188CrossRefPubMedGoogle Scholar
  30. University of New England, Online Masters of Social Work BrochureGoogle Scholar
  31. Watchtower and Bible Tract Society (1977) Jehovah’s Witness and the Question of Blood. Brooklyn, p 18Google Scholar
  32. Watchtower: Official Web Site of Jehovah’s Witness. http://www.watchtower.org
  33. Wiener L, Mcconnell DG, Latella L, Ludi E (2013) Cultural and religious considerations in pediatric palliative care. Palliat Support Care 11(1):47–67Google Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  1. 1.Nemours Alfred I. duPont Hospital for ChildrenWilmingtonUSA

Section editors and affiliations

  • J Jeffrey Malatack
    • 1
  1. 1.Diagnostic Referral DivisionNemours/Alfred I. duPont Hospital for ChildrenWilmingtonUSA

Personalised recommendations