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Encyclopedia of Autism Spectrum Disorders pp 1–4Cite as

Autism Family Experience Questionnaire (AFEQ)

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Synonyms/Abbreviations

AFEQ:

Autism Family Experience Questionnaire

ASD:

Autism spectrum disorder

GHQ-12:

General Health Questionnaire-12

PACT Trial:

Pre-school Autism Communication Trial

PACT Therapy:

Pediatric Autism Communication Therapy

UK:

United Kingdom

VABS:

Vineland Adaptive Behavior Scales

WEMWBS:

Warwick-Edinburgh Mental Wellbeing Scale

Description

The Autism Family Experience Questionnaire (AFEQ; Leadbitter et al. 2018) is an ecologically valid questionnaire that measures the intervention priorities of parents/caregivers of children with autism spectrum disorder (ASD) and assesses the impact of interventions on family experience and quality of life. The AFEQ was developed in consultation with parents/caregivers of children with ASD and was designed to address the paucity of outcome measures that assess parent/caregiver-nominated intervention outcomes for autistic children and their families (McConachie et al. 2015; Morris et al. 2014, 2015). It can be used for both research...

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References and Readings

  • Goldberg, D. (1992). General health questionnaire (GHQ-12). Windsor: Nfer-Nelson.

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  • Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., Le Couteur, A., Leadbitter, K., Hudry, K., Byford, S., Barrett, B., Temple, K., Macdonald, W., Pickles, A., & The PACT Consortium. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. The Lancet, 375, 2152–2160.

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  • Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., Macdonald, W., Salamone, E., Emsley, R., Green, J., & Consortium, T. P. A. C. T. (2018). The autism family experience questionnaire (AFEQ): An ecologically-valid, parent nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders, 48, 1052–1062.

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  • McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., et al. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment, 19(41), 1–506.

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  • Morris, C., Janssens, A., Shilling, V., Allard, A., Fellowes, A., Tomlinson, R., et al. (2015). Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures. Health and Quality of Life Outcomes, 13, 87.

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  • Tennant, R., Hiller, L., Fishwick, R., Platt, S., Joseph, S., Weich, S., et al. (2007). The Warwick-Edinburgh mental Well-being scale (WEMWBS): Development and UK validation. Health and Quality of Life Outcomes, 5(1), 63.

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Author information

Authors and Affiliations

  1. Social Development Research Group, University of Manchester, Manchester, UK

    Kathy Leadbitter

Authors
  1. Kathy Leadbitter
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Corresponding author

Correspondence to Kathy Leadbitter .

Editor information

Editors and Affiliations

  1. Yale Child Study Center, New Haven, CT, USA

    Fred R. Volkmar

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Leadbitter, K. (2019). Autism Family Experience Questionnaire (AFEQ). In: Volkmar, F. (eds) Encyclopedia of Autism Spectrum Disorders. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102304-1

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  • DOI: https://doi.org/10.1007/978-1-4614-6435-8_102304-1

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  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4614-6435-8

  • Online ISBN: 978-1-4614-6435-8

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