Historical Background
In India, the history of autism dates back to 1960s and is marked by initial sporadic efforts at clinical descriptions and research followed by a more sustained progress in clinical services, research, and policies. The first case report of autism appeared in an Indian journal in 1962 (Bassa 1962). There were a few publications in the 1960s and 1970s referring to infantile autism, with a steady flow after the 1990s. Before the 1980s, awareness of the disorder, both among professionals and the general public was low, that increased gradually (Daley 2004). In the next two decades, i.e., from late 1980s to early 2000s, there were major developments in the field, in terms of services, legislation, policy, and capacity building. Nongovernment organizations and parent led organizations primarily for advocacy for children and adults with autism and their families were established (e.g., Tamanna, New Delhi; Action for Autism, New Delhi). Soon, these organizations forayed...
References and Reading
Action for Autism. http://www.autism-india.org/
Anil Kumar, B. N. (2012). PET scan in autistic spectrum disorder (M.D. thesis (2009–2012)). Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh.
Autism Information and Resource Centre, An initiative of National Trust for the Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation & Multiple Disabilities. Ministry of Social Justice and Empowerment, Government of India. http://www.autismresourcecenter.in/Default.aspx
Balasubramanian, B. V., Bhatt, C., & Goyel, N. (2009). Genetic studies in children with intellectual disability and autistic spectrum of disorders. Indian Journal of Human Genetics, 15, 103–107.
Barua, M., Daley, T. C. Autism. Published for Rehabilitation Council of India, Government of India, New Delhi. Available at: http://www.rehabcouncil.nic.in/writereaddata/autism.pdf. Last accessed on 11 July 2015.
Bassa, D. M. (1962). A case of early infantile autism. Indian Journal of Psychiatry, 4(2), 73–76.
Chakraborty, S., Thomas, P., Bhatia, T., Nimgaonkar, V. L., & Deshpande, S. N. (2015). Assessment of severity of autism using the Indian scale for assessment of autism. Indian Journal of Psychological Medicine, 37, 169–174.
Central Board of Secondary Education, Ministry of Human Resource Development, Government of India (2009). Available at: http://cbseacademic.in/. Last accessed on 11 July 2015.
Daley, T. C. (2004). From symptom recognition to diagnosis: Children with autism in India. Social Science and Medicine, 58(7), 1323–1335.
Daley, T. C., Weisner, T., & Singhal, N. (2014). Adults with autism in India: A mixed-method approach to make meaning of daily routines. Social Science & Medicine, 116, 142–149.
Damodaran, L. P., & Arumugam, G. (2011). Urinary oxidative stress markers in children with autism. Redox Report, 16(5), 216–222.
Desai, M. U., Divan, G., Wertz, F. J., & Patel, V. (2012). The discovery of autism: Indian parents’ experiences of caring for their child with an autism spectrum disorder. Transcultural Psychiatry, 49(3–4), 613–637. doi:10.1177/1363461512447139.
Divan, G., Vajartkar, V., Desai, M. U., Strik-Lievers, L., & Patel, V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190–200.
Divan, G., Hamdani, S. U., Vajartkar, V., Minhas, A., Taylor, S., Aldred, C., et al. (2015). Adapting an evidence-based intervention for autism spectrum disorder for scaling up in resource-constrained settings: The development of the PASS intervention in South Asia. Global Health Action, 8, 27278. doi:10.3402/gha.v8.27278.
Freeth, M., Sheppard, E., Ramachandran, R., & Milne, E. (2013). A cross-cultural comparison of autistic traits in the UK, India and Malaysia. Journal of Autism and Developmental Disorders, 43(11), 2569–2583. doi:10.1007/s10803-013-1808-9.
Ganaie, S. A., Beigh, A. M., Mir, S. M., Shah, S. A., Hussain, A., Dar, A. H., et al. (2015). Social maturity and problem behaviour in children with autism spectrum disorders and intellectual disabilities. Neuropsychiatry, 5(1), 16–24.
Ghosh, A., Mahajan, P. B., Mishra, B. R., Mahapatra, S. C., & Nanda, P. (2015). Exploring Health Situation of Indian Children with Autism Spectrum Disorder Using Autism Treatment Evaluation Checklist (ATEC) in an Urban Area of Odisha: A Case Study. Journal of Clinical and Diagnostic Research, 9(12), VC05–VC08.
Government of India (1999). National Trust for the Welfare of Persons with Autism, Cerebral Palsy, Mental Retardation and Multiple Disabilities Act. Ministry of Social Justice and Empowerment, Government of India, New Delhi, India. Available at: http://socialjustice.nic.in/pdf/ntact1999.pdf. Last accessed on 11 July 15.
Government of India (2014) Rights of Persons with Disabilities Bill. Government of India, New Delhi. http://www.prsindia.org/uploads/media/Person%20with%20Disabilities/The%20Right%20of%20Persons%20with%20Disabilities%20Bill.pdf. Last accessed on 11 July 15.
Guhathakurta, S., Ghosh, S., Sinha, S., Chatterjee, A., Ahmed, S., Chowdhury, S. R., et al. (2006). Serotonin transporter promoter variants: Analysis in Indian autistic and control population. Brain Research, 1092, 28–35.
Gupta, S. K., & B.V. Ratnam BV. (2009). Cerebral perfusion abnormalities in children with autism and mental retardation: A segmental quantitative SPECT study. Indian Journal of Pediatrics, 46(2), 161–164.
Harshini, M., & Preeti, K. (2017). Autism Behavioural Interventional Research in low–resource settings: Overcoming prevailing challenges; an Asian perspective. Asian Journal of Psychiatry. doi:10.1016/j.ajp.2016.12.004.
Indian Council of Medical Research. http://www.icmr.nic.in/
Jaydeokar, S., Bal, G., & Shah, N. (1997). Childhood disintegrative disorder. Indian Journal of Psychiatry, 39, 85.
Juneja, M., Mishra, D., Russell, P. S. S., Gulati, S., Deshmukh, V., Tudu, P., et al. (2014). INCLEN diagnostic tool for autism spectrum disorder (INDT-ASD): Development and validation. Indian Pediatrics, 51(5), 359–365.
Kar, N., Khanna, R., & Kar, G. C. (1993). Autistic features in children with mental retardation. Indian Journal of Psychiatry, 39(4), 304–308.
Karanth, P., Shaista, S., & Srikanth, N. (2010). Efficacy of communication DEALL – An indigenous early intervention program for children with autism spectrum disorders. Indian Journal of Pediatrics, 77(9), 957–962.
Krishnamurthy, V. (2008). A clinical experience of autism in India. Journal of Developmental and Behavioral Pediatrics, 29(4), 331–333.
Malhotra, S. (2006). Autism: An experiment of nature. Journal of Indian Association for Child and Adolescent Mental Health, 2(1), 9–17.
Malhotra, S. & Vikas, A. (2002). Pervasive developmental disorders: Indian scene. Journal of Indian Association for Child and Adolescent Mental Health, 1(3), 5.
Malhotra, S., & Kate, N. (2015). Research endeavors in child ssychiatry in India 1 and 2. In S. Malhotra & S. Chakrabarti (Eds.), Developments in psychiatry in India (pp. 215–254). Springer. doi:10.1007/978-81-322-1674-2_12.
Malhotra, S., & Vikas, A. (2005). Pervasive Developmental Disorders: Indian Scene. Journal of Indian Association for Child and Adolescent Mental Health, 1(3), Article 5.
Malhotra, S., Chakrabarti, S., & Nehra, A. (2002). Psychological interventions with parents of autistic children. Indian Journal of Psychiatry, 44(2), 108–117.
Malhotra, S., Chakrabarti, S., Gupta, N., Kumar, P., & Gill, S. (2003). Pervasive developmental disorders and its subtypes: Sociodemographic and clinical profile. German Journal of Psychiatry.
Malhotra, S., Rajender, G., Bhatia, M. S., & Singh, T. B. (2010). Effects of picture exchange communication system on communication and behavioural anomalies in autism. Indian Journal of Psychological Medicine, 32(2), 141–143.
Manjunatha, K. R., Narayanan, H. S., Rao, B. S. S. R., Srinath, S., & Girimaji, S. (1989). Cryptogenetic investigations in autistic children: a preliminary study on the detection of fragile X chromosome. NIMHANS Journal, 7(2), 163–167.
Minhas, A., Vajaratkar, V., Divan, G., Hamdani, S. U., Leadbitter, K., Taylor, C., Aldred, C., Tariq, A., Tariq, M., Cardoza, P., Green, J., Patel, V., & Rahman, A. (2015). Parents’ perspectives on care of children with autistic spectrum disorder in South Asia - Views from Pakistan and India. International Review of Psychiatry, 27(3), 247–256. doi:10.3109/09540261.2015.1049128.
Mohammad, N. S., Jain, J. M., Chintakindi, K. P., Singh, R. P., Naik, U., & Akella, R. R. (2009). Aberrations in folate metabolic pathway and altered susceptibility to autism. Psychiatric Genetics, 19(4), 171–176.
Mukherjee, S. B., Malhotra, M. K., Aneja, S., Chakraborty, S., & Deshpande, S. (2015). Diagnostic accuracy of Indian Scale for Assessment of Autism (ISAA) in children aged 2–9 years. Indian Pediatrics, 52(3), 212–216.
Naik, U. S. (2015). Autism spectrum disorder: 70 years on and the plot thickens. In S. Malhotra & S. Chakrabarti (Eds.), Developments in psychiatry in India (pp. 275–311). New Delhi: Springer. doi:10.1007/978-81-322-1674-2_15.
Naik, U. S., Gangadharan, C., Abbagani, K., Nagalla, B., Dasari, N., & Manna, S. K. (2011). A study of nuclear transcription factor-kappa B in childhood autism. PloS One, 6(5), e19488.
Narayan, M., Srinath, S., Anderson, G. M., & Meundi, D. B. (1993). Cerebrospinal fluid levels of homovanillic acid and 5-hydroxyindoleacetic acid in autism. Biological Psychiatry, 33(8-9), 630–635.
National Trust. The National Trust, Ministry of Social Justice and Empowerment, Government of India. Available at: http://www.thenationaltrust.co.in/nt/index.php?option=com_content&task=view&id=94&Itemid=143. Last accessed on 11 July 2015.
Patra, S., & Arun, P. (2011). Use of Indian scale for assessment of autism in child guidance clinic: an experience. Indian J Psychol Med., 33, 217–219.
Priya, L., & Geetha, A. (2011). Level of trace elements (copper, zinc, magnesium and selenium) and toxic elements (lead and mercury) in the hair and nail of children with autism. Biological Trace Element Research, 142(2), 148–158.
Rehabilitation Council of India (2014). D.Ed. Special Education (Autism Spectrum Disorder). Syllabusnorms, regulations & course content.” Rehabilitation Council of India. (Statutory Body under Ministry of Social Justice & Empowerment), Government of India, New Delhi. Available at: http://www.rehabcouncil.nic.in/writereaddata/dedasd.pdf. Last accessed on: 11 July 2015.
Right to Education (2009/10). Ministry of Human Resource Development, Government of India. http://mhrd.gov.in/rte
Sarva Shiksha Abhiyan. Ministry of Human Resource Development, Government of India. http://ssa.nic.in/. Last accessed on 11 July 2015.
Sen, B., Singh, A. S., Sinha, S., Chatterjee, A., Ahmed, S., Ghosh, S., & Usha, R. (2010). Family-based studies indicate association of Engrailed 2 gene with autism in an Indian population. Genes, Brain and Behavior, 9(2), 248–255.
Shivashankar, N., & Satishchandra, P. (1989). Auditory brainstem responses in autistic children. Nimhans Journal, 7(2), 159–162.
Srinath, S., Chowdhury, J., Bhide, A. V., Narayanan, H. S., & Shivaprakash. (1989). Descriptive study of infantile autism. NIMHANS Journal, 7(1), 77–81.
Suvrathan, A., & Chattarji, S. (2011). Fragile X syndrome and the amygdale. Current Opinion in Neurobiology, 21(3), 509–515.
Tripathi, N. (2015). Parenting style and parents’ level of stress having Children with Autistic Spectrum Disorder (CWASD): A study based on Northern India. Journal of Neuropsychiatry, 5(1), 42–49.
Vijay Sagar, K. J. (2011). Research on autism spectrum disorders in India. Andhra Pradesh Journal of Psychological Medicine, 12(1), 69–72.
Wong, C. M., & Singhal, S. (2014). INDT-ASD : An autism diagnostic tool for Indian children developmental pediatrician’s perspective. Indian Pediatrics, 51(5), 355–356.
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Malhotra, S., Shah, R. (2017). India and Autism. In: Volkmar, F. (eds) Encyclopedia of Autism Spectrum Disorders. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102116-1
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