Handbook of Disease Burdens and Quality of Life Measures pp 4258-4258 | Cite as
Methods of Quality of Life Assessment in Dementia
Three quality of life (QOL) rating methods are available: self-report by patient, proxy-report and direct observation of behavior assumed to be related to QOL. Dementia may interfere with understanding, ability to remember relevant events, making comparisons across complex domains and communicating, but patients can rate their own QOL until late stages of dementia and proxy-ratings do not substitute for patient-ratings. Proxies rate patients' QOL lower, associated with increased caregiver burden and depressive symptoms. The disadvantage of proxy ratings is that they filter a subjective measure through the opinion of another person. Self rating methods are preferable as long as possible.