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Quality of Life and Stress in Wheelchair-Users

  • M. Furlong
  • J. Connor
Reference work entry

Abstract:

Many diseases and injuries result in the need for either temporary or permanent wheelchair use and research now confirms that multiple dimensions of life are affected when significant disability occurs. These dimensions typically include increases in health concerns and health care burden; loss of  functional independence; reduced participation in social, occupational and recreational opportunities; and subsequent association with psychosocial sequelae. This chapter summarizes current literature on Quality of Life (QoL) in wheelchair-users. The review highlights that a wide range of generic QoL, health-related QoL and disability-specific QoL instruments are used across studies with largely inconsistent findings. There is now a growing movement towards the development of valid and reliable measures for use with people with a range of disabilities. Given the observed challenges of measuring the broad QoL construct in populations of wheelchair-users, more specific aspects of QoL such as levels of stress are now being investigated. It is proposed that these more specific QoL domains may be more accessible to measurement and to therapeutic interventions aiming to improve adjustment to disability. The development of the  Physical Disability Stress Scale (PDSS) is described with recommendations for future clinical and research application. A copy of the PDSS and its scoring instructions are appended.

Keywords

Life Satisfaction Spinal Cord Injury Functional Independence Participation Restriction Disability Study 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:

AAQ

amount of assistance questionnaire

ADL

activities of daily living

ALE

appraisal of life events scale

CHART

the craig handicap assessment and reporting technique

COPM

Canadian occupational performance measure

DIP

disability and impact profile

EDSS

expanded disability status scale

EQ-5D

EuroQol-5D

FIM

functional independence measure

GHQ-28

general health questionnaire-28

HADS

hospital anxiety and depression scale

HrQoL

health-related quality of life

HUI-II

health utilities index II

IAM

instrumental activity measure

ICF

international classification of functioning, health and disability

LSQ

life satisfaction questionnaire

MS

multiple sclerosis

NA

not applicable

NHP

Nottingham health profile

PASIPD

the physical activity scale of individuals with physical disabilities

PCA

 principal components analysis

PDSS

physical disability stress scale

PIADS

psychosocial impact of assistive devices scale

PPS

post-polio syndrome

QoL

quality of life

QoLI

quality of life index

SCI

spinal cord injury

SCI QL-23

spinal cord injury quality of life questionnaire-23

SCIM-III

spinal cord independence measure-III

SD

standard deviation

SF-36

short form-36

SQOL

subjective quality of life scale

SWLS

satisfaction with life scale

WHO

World Health Organization

WHOQoL

World Health Organization Quality of Life

WHOQoL-BREF

World Health Organization Quality of Life-BREF

WHOQoL-Group

World Health Organization Quality of Life-Group

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Copyright information

© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • M. Furlong
    • 1
  • J. Connor
    • 2
  1. 1.Diabetes and Endocrinology UnitPrincess Alexandra HospitalQLDAustralia
  2. 2.Discipline of PsychiatryThe University of Queensland, Mental Health Centre, Royal Brisbane and Women’s HospitalHerstonAustralia

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