Quality of Life among Primary Caregivers of Rheumatic Patients – a South American Experience

  • F. Jennings
  • A. Jones
  • J. Natour
Reference work entry


Chronic diseases not only affect the lives of patients, but also have repercussions in the family as a whole, altering the lifestyle, interpersonal relationships, finances and health-related quality of life of both the patient and family members alike.

Rheumatic diseases are the most common chronic diseases, affecting approximately 20% of the adult population. Patients with rheumatoid arthritis, osteoarthritis, fibromyalgia, juvenile idiopathic arthritis and other rheumatic diseases have a lower quality of life when compared to healthy individuals.

Caregivers for these patients also experience diverse negative consequences when attempting to insert their role as caregiver into their regular activities. The principal negative aspects are depression, anxiety and physical complaints.

In Brazil, caregivers of patients with RA and JIA have a high prevalence of psychological disorders. The impact perceived by the caregivers themselves is more correlated to emotional aspects than the physical conditions of the patient.


Rheumatoid Arthritis Juvenile Idiopathic Arthritis Down Syndrome Rheumatic Disease Primary Caregiver 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:

CB Scale

 caregiver burden scale


cerebral vascular accident


juvenile idiopathic arthritis






rheumatoid arthritis


short-form health survey


psychiatric screening questionnaire


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Copyright information

© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • F. Jennings
    • 1
  • A. Jones
    • 1
  • J. Natour
    • 1
  1. 1.Universidade Federal de São PauloRheumatology DivisionSão PauloBrazil

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