Handbook of Disease Burdens and Quality of Life Measures pp 4053-4069 | Cite as
Quality of Life among Primary Caregivers of Rheumatic Patients – a South American Experience
Chronic diseases not only affect the lives of patients, but also have repercussions in the family as a whole, altering the lifestyle, interpersonal relationships, finances and health-related quality of life of both the patient and family members alike.
Rheumatic diseases are the most common chronic diseases, affecting approximately 20% of the adult population. Patients with rheumatoid arthritis, osteoarthritis, fibromyalgia, juvenile idiopathic arthritis and other rheumatic diseases have a lower quality of life when compared to healthy individuals.
Caregivers for these patients also experience diverse negative consequences when attempting to insert their role as caregiver into their regular activities. The principal negative aspects are depression, anxiety and physical complaints.
In Brazil, caregivers of patients with RA and JIA have a high prevalence of psychological disorders. The impact perceived by the caregivers themselves is more correlated to emotional aspects than the physical conditions of the patient.
KeywordsRheumatoid Arthritis Juvenile Idiopathic Arthritis Down Syndrome Rheumatic Disease Primary Caregiver
List of Abbreviations:
- CB Scale
caregiver burden scale
cerebral vascular accident
juvenile idiopathic arthritis
short-form health survey
psychiatric screening questionnaire
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