Cochlear Implantation and Quality of Life in Deafness

  • G. W. J. A. Damen
  • E. A. M. Mylanus
  • A. F. M. Snik
Reference work entry


In this chapter the assessment of quality of life in deaf people with a  Cochlear Implant (CI) is discussed. First the background on this topic is elaborated on in the introduction. In the main text, the history of cochlear implantation and the system of a cochlear implant are depicted and shortly some indications to implant are given. The actual part in which the quality of life in CI patients is discussed, can be divided in several parts. At the outset, the overall quality of life in this particular population is mentioned together with some results. Afterwards, diverse disease specific instruments for the field of cochlear implantation are mentioned. Hereby we discuss the instrument itself, the statistics, the results and conclude with why to (or not to) use the instrument in the CI population. The instruments that are pointed out are: the Assessment of Mainstream Performance (AMP), the Glasgow (Children’s) Benefit Inventory (G-C-BI), the Nijmegen Cochlear Implant Questionnaire (NCIQ), the Parental Perspectives (PP) and the Screening Instrument For Targeting Educational Risk (SIFTER). Finally, some of the widely used generic instruments in CI recipients are given. The most important are the medical outcome study Short Form 36 (SF36), the Health Utility Index mark 3 (HUI3) and the Pediatrics Quality of Life (PedsQL). Recommendations are given in the end.


Cochlear Implantation Deaf Child Health Utility Index Cochlear Implant User Parental Perspective 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:


assessment of mainstream performance


assessment of mainstream performance elementary school


assessment of mainstream performance kindergarten


cochlear implant


deciBel hearing level


Food and Drug Administration


Glasgow benefit inventory


Glasgow children’s benefit inventory


hearing aid


health related quality of life


health utility index mark 2


health utility index mark 3


mental component summary score


Nijmegen cochlear implant questionnaire


physical component summary score (PCS)


pediatrics quality of life


parental perspectives questionnaire


quality of life


standard deviation


medical outcome study Short Form 36


Screening Identification For Targeting Educational Risk


  1. Admiraal RJ. (1989). Ned Tijdschr Geneeskd. 133: 1913–1915.PubMedGoogle Scholar
  2. Anderson KL. (1989). SIFTER Screening Identification for Targeting Educational Risk in Children Identified by Hearing Screening or who have Minimal Hearing Loss. The interstate printers and publishers, Danville, IL.Google Scholar
  3. Anderson KL, Matkin ND. (1996). Preschool Screening Identification for Targeting Educational Risk. The educational audiology Association, Westminster, CO.Google Scholar
  4. Archbold SM, Lutman ME, Gregory S, O'Neill C, Nikolopoulos TP. (2002). Deafness Educ Int. 4: 12–40.Google Scholar
  5. Cheng AK, Rubin HR, Powe NR, Mellon NK, Francis HW, Niparko JK. (2000). JAMA. 284: 850–856.PubMedCrossRefGoogle Scholar
  6. Chmiel R, Sutton L, Jenkins H. (2000). Ann Otol Rhinol Laryngol Suppl. 185: 103–105.PubMedGoogle Scholar
  7. Chute PM, Nevins ME, Parisier SC. (2004). Assessing Mainstream Performance in Children with Cochlear Implants Conference Proceeding. Geneva, Switzerland.Google Scholar
  8. Cohen NL. (2004). Audiol Neurootol. 9: 197–202.PubMedCrossRefGoogle Scholar
  9. Cohen SM, Labadie RF, Dietrich MS, Haynes DS. (2004). Otolaryngol Head Neck Surg. 131: 413–422.PubMedCrossRefGoogle Scholar
  10. Cooper HR, Carpenter L, Aleksy W, Booth CL, Read TE, Graham JM, Fraser JG. (1989). J Laryngol Otol Suppl. 18: 22–38.PubMedGoogle Scholar
  11. Damen GW, Oever van den-Goltstein M, Langereis MC, Chute PM, Mylanus EAM. (2006). Ann. Otol. Rhinol. Laryngol. 115: 542–552.PubMedGoogle Scholar
  12. Damen GW, Beynon AJ, Krabbe PF, Mulder JJ, Mylanus EA. (2007a). Otolaryngol Head Neck Surg. 136: 597–604.PubMedCrossRefGoogle Scholar
  13. Damen GW, Hoffer MMR, Hoekstra CC, Mylanus EA. (2006b). Stem,- Spraak- en Taalpathologie (Dutch). 14: 143–160.Google Scholar
  14. Damen GW, Krabbe PF, Archbold SM, Mylanus EA. (2007b). Int J Pediatr Otorhinolaryngol. 71: 425–433.PubMedCrossRefGoogle Scholar
  15. Damen GW, Langereis MC, Snik AF, Chute PM, Mylanus EA. (2007c). Otol Neurotol. 28: 463–472.PubMedCrossRefGoogle Scholar
  16. Damen GW, Pennings RJ, Snik AF, Mylanus EA. (2006a). Laryngoscope. 116: 723–728.PubMedCrossRefGoogle Scholar
  17. Dijourno A, Eyries C. (1957). Press Med. 35: 14–17.Google Scholar
  18. Dujardin A, Sloovere de M, Raeve de L. (2003). Kinderen met een Cochleaire Inplant: meningen en ervaringen van ouders [Dutch]. Antwerp, Belgium, pp. 26–40.Google Scholar
  19. Eiser C. (2007). Arch Dis Child. 92: 379–380.PubMedCrossRefGoogle Scholar
  20. Feeny D, Furlong W, Torrance GW, Goldsmith CH, Zhu Z, DePauw S, Denton M, Boyle M. (2002). Med Care. 40: 113–128.PubMedCrossRefGoogle Scholar
  21. Food and Drug Administration's, cochlear implant. (2006). Internet Communication Available at:
  22. Furlong WJ, Feeny DH, Torrance GW, Barr RD. (2001). Ann Med. 33: 375–384.PubMedCrossRefGoogle Scholar
  23. Garabedian EN. (1992). Rev Infirm. 42: 44–46.PubMedGoogle Scholar
  24. Grutters JP, Joore MA, Verschuure H, Dreschler WA, Anteunis LJ. (2007). Qual Life Res. 16: 1439–1449.PubMedCrossRefGoogle Scholar
  25. Hinderink JB, Krabbe PF, Van Den P. Broek (2000). Otolaryngol Head Neck Surg. 123: 756–765.PubMedCrossRefGoogle Scholar
  26. Hinderink JB, Mens LH, Brokx JP, Van Den P. Broek (1995). Laryngoscope. 105: 618–622.PubMedCrossRefGoogle Scholar
  27. Horsman J, Furlong W, Feeny D, Torrance G. (2003). Health Qual Life Outcomes. 1: 54.PubMedCrossRefGoogle Scholar
  28. House W, Berliner K. (1991). Cochlear implants: From idea to clinical practice. In: Cooper H (ed.) Cochlear Implants: A Practical Guide. Whurr Publishers, London.Google Scholar
  29. Jansen YJ, Bal R, Bruijnzeels M, Foets M, Frenken R. (2006). BMC Health Serv Res. 6: 160.PubMedCrossRefGoogle Scholar
  30. Klop WM, Boermans PP, Ferrier MB, van den Hout WB, Stiggelbout AM, Frijns JH. (2008). Otol Neurotol. 29(5): 615–621.Google Scholar
  31. Klop WM, Briaire JJ, Stiggelbout AM, Frijns JH. (2007). The Laryngoscope 117: 1982–1987.Google Scholar
  32. Knutson JF, Johnson A, Murray KT. (2006). Br J Health Psychol. 11: 279–292.PubMedCrossRefGoogle Scholar
  33. Krabbe PF, Hinderink JB, Van Den P. Broek (2000). Int J Technol Assess Health Care. 16: 864–873.PubMedCrossRefGoogle Scholar
  34. Kubba H, Swan IR, Gatehouse S. (2004). Ann Otol Rhinol Laryngol. 113: 980–986.PubMedGoogle Scholar
  35. Mo B, Lindbaek M, Harris S. (2005). Ear Hear. 26: 186–194.PubMedCrossRefGoogle Scholar
  36. Niparko JK, Blankenhorn R. (2003). Ment Retard Dev Disabil Res Rev. 9: 267–275.PubMedCrossRefGoogle Scholar
  37. Nunes T, Pretzlik U. (2003). An Independent Assessment and Evaluation of a Profile from Parents of Children with a Cochlear Implant. Oxford Brookes University, Oxford, UK.Google Scholar
  38. O'Neill C, Lutman ME, Archbold SM, Gregory S, Nikolopoulos TP. (2004). Int J Pediatr Otorhinolaryngol. 68: 149–160.PubMedCrossRefGoogle Scholar
  39. Pennings RJ, Damen GW, Snik AF, Hoefsloot L, Cremers CW, Mylanus EA. (2006). Laryngoscope. 116: 717–722.PubMedCrossRefGoogle Scholar
  40. Robinson K, Gatehouse S, Browning GG. (1996). Ann Otol Rhinol Laryngol. 105: 415–422.PubMedGoogle Scholar
  41. Varni JW, Burwinkle TM, Seid M, Skarr D. (2003). Ambul Pediatr. 3: 329–341.PubMedCrossRefGoogle Scholar
  42. Varni JW, Seid M, Kurtin PS. (2001). Med Care. 39: 800–812.PubMedCrossRefGoogle Scholar
  43. Varni JW, Seid M, Rode CA. (1999). Med Care. 37: 126–139.PubMedCrossRefGoogle Scholar
  44. Vermeire K, Brokx JP, Wuyts FL, Cochet E, Hofkens A, Van de Heyning PH. (2005). Otol Neurotol. 26: 188–195.PubMedCrossRefGoogle Scholar
  45. Vlahovic S, Sindija B. (2004). Int J Pediatr Otorhinolaryngol. 68: 1167–1174.PubMedCrossRefGoogle Scholar
  46. Ware JE Jr, Sherbourne CD. (1992). Med Care. 30: 473–483.PubMedCrossRefGoogle Scholar
  47. Wiley S, Jahnke M, Meinzen-Derr J, Choo D. (2005). Int J Pediatr Otorhinolaryngol. 69: 791–798.PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • G. W. J. A. Damen
    • 1
  • E. A. M. Mylanus
    • 1
  • A. F. M. Snik
    • 1
  1. 1.Department of OtorhinolaryngologyUniversity Medical Centre Sint RadboudNijmegenThe Netherlands

Personalised recommendations