Children with Cerebral Palsy, Psychometric Analysis and Quality of Life

  • E. Davis
  • E. Waters
Reference work entry


 Cerebral palsy (CP) is the most common physical disability in childhood, occurring in 2–2.5 per 1,000 live births. Given that many interventions aim to increase the  quality of life of children with CP, increasingly researchers and clinicians are seeking to measure children’s quality of life (QOL). QOL refers to wellbeing, or feelings about life, across multiple  domains of life. The QOL literature includes generic and  condition-specific instruments, both of which have different purposes. Generic instruments are designed to be applicable to all population sub-groups, whilst condition-specific instruments are designed to be applicable to one group. Several generic QOL instruments have been used to measure the QOL of children with CP, including the Child Health Questionnaire (CHQ) (Landgraf et al., 1996), the Pediatric QOL Inventory (PedsQL) (Varni et al., 2006) and KIDSCREEN (Ravens-Sieberer et al., 2005). Four condition-specific QOL/health-related QOL (HRQOL) instruments have recently been developed, including the Cerebral Palsy QOL Questionnaire for Children (CP QOL-Child) (Waters et al., 2007), the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) (Narayanan et al., 2006), the PedsQL-CP Module (Varni et al., 2006) and DISABKIDS (Bullinger et al., 2002). In order to assist researchers and clinicians to choose among these instruments, their attributes are compared, including the original purpose, number of items, the domains, country of origin, reliability, validity,  sensitivity to change, age range, and respondents.


Cerebral Palsy Child Health Questionnaire Cerebral Palsy Module PedsQL Generic Core Scale Chronic Generic Module 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:


Botulinum Toxin A


child health questionnaire


cerebral palsy


the caregiver priorities and child health index of life with disabilities

CP QOL-Child

cerebral palsy quality of life questionnaire for children


health related quality of life


pediatric quality of life inventory

PedsQL – CP Module

pediatric quality of life inventory – cerebral palsy module


quality adjusted life year


quality of life


randomized controlled clinical trial


World Health Organisation


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Copyright information

© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • E. Davis
    • 1
  • E. Waters
    • 1
  1. 1.McCaughey Centre, VicHealth Centre for the Promotion of Mental Health and Community WellbeingSchool of Population Health, University of MelbourneVICAustralia

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