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Quality of Life in Group-Based Intervention Program in Inflammatory Bowel Disease

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Handbook of Disease Burdens and Quality of Life Measures

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Abstract:

Crohn’s disease (CD) and ulcerative colitis (UC) are chronic inflammatory bowel diseases (IBD). The etiology of the diseases seems to be multifactorial whereas environmental and genetic factors play a substantial role, triggering an abnormal immune response. IBD are characterized by remitting diseases with acute exacerbations “flares” and periods of remission. During active disease IBD are often associated with debilitating symptoms such as diarrhea and abdominal pain. IBD mainly affects young people and the diseases have great impact on patients’ health related quality of life (HRQOL). Twenty to thirty percent of the patients are more or less refractory to standard medication and side effects from medical and surgical treatment is not uncommon. Living with a chronic disease is a stressful situation. Short-term stress has been shown not to trigger exacerbation in UC but long-term stress increases the risk of exacerbation over a period of months to years. The IBD-patient need to cope with the long-term effects of the disease, the uncertainty of the effects of medical treatment, sometimes lack of efficacy, makes support and education an important part of therapy. In this chapter several aspects on group based intervention programs for this patient group are discussed and a particular model is presented. Studies have shown considerably satisfaction among IBD patients participating in group based educations, although no major improvement in HRQOL has been revealed.

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Abbreviations

CD:

Crohn’s disease

CES-D:

centre of epidemiological studies-depression scale

GCS:

glucocorticosteroids

HAD:

hospital anxiety and depression scale

HI:

health index

HRQOL:

health related quality of life

IBD:

inflammatory bowel disease

IBDQ:

inflammatory bowel disease questionnaire

RFIPC:

rating form of IBD patients concerns

SF-36:

short form 36

SLC-90-R:

symptom check list 90 revised

SOC:

sense of coherence

UC:

ulcerative colitis

VAS:

visual analogue scale

WCO:

ways of coping questionnaire

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Authors
  1. L. Oxelmark
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Editors and Affiliations

  1. Dept. Nutrition and Dietetics Nutritional Sciences Research Division School of Biomedical & Health Sciences, King's College London, Franklin‐Wilkins Building 150 Stamford Street, SE1 9NH, London, UK

    Victor R. Preedy (Prof.) (Prof.)

  2. Mel and Enid Zuckerman College of Public Health, University of Arizona, Health Science Center 1295 N. Martin, P.O. Box 245155, 85724-5155, Tucson, AZ

    Ronald R. Watson (Prof.) (Prof.)

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Oxelmark, L. (2010). Quality of Life in Group-Based Intervention Program in Inflammatory Bowel Disease. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_193

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  • DOI: https://doi.org/10.1007/978-0-387-78665-0_193

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-0-387-78664-3

  • Online ISBN: 978-0-387-78665-0

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