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Completeness and Accuracy of Death Dates and the Implications for Studying Disease Burdens: Focus on Alternative Data Sources

  • Min-Woong Sohn
  • Elissa Oh
Reference work entry

Abstract:

Death dates comprise a critical piece of mortality data for studying disease burden. This paper reviews various sources of death dates available for disease burden studies and evaluates them in terms of their  completeness and  accuracy. Civil registration systems are the most frequently used sources of dates and causes of death for Global Burden of Disease studies and other studies of population health. A review of the mortality data submitted to the World Health Organization suggests that tremendous variations in the completeness and  coverage exist from country to country and large improvements in the quality of civil registration systems are still to be achieved. For studies of disease burden that require person-level data, not only the civil registration systems but some alternative sources can be utilized. These alternative sources may not have the completeness and accuracy of the data from the civil registration systems, but when they are combined judiciously they can be a valuable source of death dates that can match the civil registration system in completeness and accuracy.

Keywords

Death Certificate Social Security Number Death Date National Death Index Social Security Administration 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:

BIRLS

the VA beneficiary identification and record locator subsystem

CMS

Centers for Medicare and Medicaid Services

DALY

disability-adjusted life year

GBD

global burden of disease

NCHS

National Center for Health Statistics

NDI

national death index

PPV

 positive predictive value

ResDAC

Research Data Assistance Center

SSA

Social Security Administration

VA

The U.S. Department of Veterans Affairs

WHO

World Health Organization

YLD

years of life lost due to disability

YLL

years of life lost due to premature mortality

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Authors and Affiliations

  • Min-Woong Sohn
  • Elissa Oh

There are no affiliations available

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