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Health-Related Quality of Life in Eating Disorders

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Handbook of Disease Burdens and Quality of Life Measures

Abstract:

The measurement of health related quality of life (HRQL) is currently being used to complement other, more objective or biological measurements such as body mass index, blood analyses, etc. to evaluate a patient’s state of health. The results of these HRQL measurements provide information regarding the impact that an illness has on the lifestyle and quality of life of the patient who has it. Until 2006, HRQL measurements in eating disorders (EDs) were made by employing generic quality of life (QL) instruments or qualitative techniques. The results of generic questionnaires show that patients with EDs present significantly lower QL levels than patients with other psychiatric disorders or somatic illnesses. The qualitative studies show that the greatest impact of the ED is found in the ability to interact socially with other people. The lack of instruments for measuring the impact of EDs on QL has led researchers from various countries (USA, Canada, Australia, and Spain) to design four questionnaires aimed at measuring this HRQL directly in patients suffering from anorexia nervosa (AN), bulimia nervosa (BN), binge-eating, or nonspecific eating disorders (EDNOS). These new, specific self-reports include measurements that previous questionnaires did not evaluate as specific symptoms of EDs, such as the importance of self-image or the specific impact of the ED on social relationships.

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Abbreviations

16D:

16-dimension QL measurement

AN:

anorexia nervosa

BDI:

Beck depression inventory

BMI:

body mass index

BN:

bulimia nervosa

BSI:

brief symptom inventory

DSM:

diagnostic and statistical manual for mental disorders

EAT-40:

eating attitudes test 40

ECI:

experience of care-giving inventory

ED:

eating disorder

EDE:

eating disorders examination

EDI:

eating disorders inventory

EDNOS:

eating disorder not otherwise specified

EDQLS:

eating disorders quality of life scale

EDQOL:

eating disorders quality of life instrument

EEE-C:

eating and exercise examination

GHQ:

general health questionnaire

HERQOLED-S:

health-related quality of life for eating disorders – short form

HERQOLEDv2:

health-related quality of life for eating disorders questionnaire, second version

HRQL:

health related quality of life

ICC:

intraclass correlation coefficient

MCID:

minimally clinical important difference

MID:

minimal important difference

MSCARED:

motivational stages of change for adolescents recovering from an eating disorder

NHP:

Nottingham health profile

QL:

quality of life

QOL ED:

quality of life for eating disorders

QOLI:

quality of life inventory

SAS-SR:

social adjustment scale self-report

SF-12:

medical outcome study 12-item short form health survey

SF-20:

medical outcome study 20-item short form health survey

SF-36:

medical outcome study 36-item short form health survey

STAI:

state-trait anxiety inventory

WHO:

World Health Organization

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Hayas, C.L., Padierna, J.Á., Muñoz, P. (2010). Health-Related Quality of Life in Eating Disorders. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_181

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  • DOI: https://doi.org/10.1007/978-0-387-78665-0_181

  • Publisher Name: Springer, New York, NY

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