Abstract:
The measurement of health related quality of life (HRQL) is currently being used to complement other, more objective or biological measurements such as body mass index, blood analyses, etc. to evaluate a patient’s state of health. The results of these HRQL measurements provide information regarding the impact that an illness has on the lifestyle and quality of life of the patient who has it. Until 2006, HRQL measurements in eating disorders (EDs) were made by employing generic quality of life (QL) instruments or qualitative techniques. The results of generic questionnaires show that patients with EDs present significantly lower QL levels than patients with other psychiatric disorders or somatic illnesses. The qualitative studies show that the greatest impact of the ED is found in the ability to interact socially with other people. The lack of instruments for measuring the impact of EDs on QL has led researchers from various countries (USA, Canada, Australia, and Spain) to design four questionnaires aimed at measuring this HRQL directly in patients suffering from anorexia nervosa (AN), bulimia nervosa (BN), binge-eating, or nonspecific eating disorders (EDNOS). These new, specific self-reports include measurements that previous questionnaires did not evaluate as specific symptoms of EDs, such as the importance of self-image or the specific impact of the ED on social relationships.
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Abbreviations
- 16D:
-
16-dimension QL measurement
- AN:
-
anorexia nervosa
- BDI:
-
Beck depression inventory
- BMI:
-
body mass index
- BN:
-
bulimia nervosa
- BSI:
-
brief symptom inventory
- DSM:
-
diagnostic and statistical manual for mental disorders
- EAT-40:
-
eating attitudes test 40
- ECI:
-
experience of care-giving inventory
- ED:
-
eating disorder
- EDE:
-
eating disorders examination
- EDI:
-
eating disorders inventory
- EDNOS:
- EDQLS:
-
eating disorders quality of life scale
- EDQOL:
-
eating disorders quality of life instrument
- EEE-C:
-
eating and exercise examination
- GHQ:
-
general health questionnaire
- HERQOLED-S:
-
health-related quality of life for eating disorders – short form
- HERQOLEDv2:
-
health-related quality of life for eating disorders questionnaire, second version
- HRQL:
-
health related quality of life
- ICC:
-
intraclass correlation coefficient
- MCID:
-
minimally clinical important difference
- MID:
-
minimal important difference
- MSCARED:
-
motivational stages of change for adolescents recovering from an eating disorder
- NHP:
-
Nottingham health profile
- QL:
-
quality of life
- QOL ED:
-
quality of life for eating disorders
- QOLI:
-
quality of life inventory
- SAS-SR:
-
social adjustment scale self-report
- SF-12:
-
medical outcome study 12-item short form health survey
- SF-20:
-
medical outcome study 20-item short form health survey
- SF-36:
-
medical outcome study 36-item short form health survey
- STAI:
-
state-trait anxiety inventory
- WHO:
-
World Health Organization
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Hayas, C.L., Padierna, J.Á., Muñoz, P. (2010). Health-Related Quality of Life in Eating Disorders. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_181
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