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Quality of Life Measures in Caregivers of Patients with Cancer

  • E. K. Grov
  • A. A. Dahl

Abstract:

Many kinds of tasks and considerable responsibility are put on informal (family) caregivers when impaired cancer patients stay at home during their illness trajectory. The roles and functions of caregivers vary depending on the demands required from the patient and the family situation, but regularly the caregiver situation has five areas of challenge: physical, psychological, social, spiritual and financial. Caregivers’ coping with these challenges in turn influences their quality of life (QOL). In this chapter we review measures that concern caregiving of adult patients, have been published in English, and that cover at least four of the five areas of challenge. We consider caregiver “burden” and “need” as aspects of QOL, and do not considered measures that focus only on “burden” or “need.” Based on these selection criteria, we review six measures: The Caregiver Quality of Life Index – Cancer Scale, The Caregiver Reaction Assessment, The Quality of Life in Life-Threatening Illness – Family Carer Version, The Measurement of Objective Burden and of Subjective Burden, and Bakas Caregiving Outcomes Scale. The reliability and validity data of these scales are presented as well as data of their coverage, format and  feasibility. The measures vary considerably in these regards, and all of them have their merits. The choice between these measures for the clinic or for research has to be guided by purpose, manpower and design considerations.

Keywords

Informal Caregiver Subjective Burden Objective Burden Caregiver Strain Index Caregiver Quality 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:

ADLs

activities of daily living

BCOS

Bakas Caregiver Outcome Scale

CQOLC

The Cancer Quality of Life Index-Cancer Scale

CRA

The Caregiver Reaction Assessment

CSI

The Caregiver Strain Index

MOB/MSB

The Measurement of Objective Burden and of Subjective Burden

QOL

quality of life

QOLLTI-F

The Quality of life in life-threatening illness – Family carer version

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© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • E. K. Grov
  • A. A. Dahl

There are no affiliations available

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