Abstract:
This Chapter summarizes quality of life (QoL) questionnaires for various types of cancer. Most of the patient-centered QoL measurement tools have been developed in English-speaking cultures. Thus, it has been a vitally important question whether or not these questionnaires could be used in other cultures – like African and Eastern countries – and cross a broad cultural divide.
The European Organization for Research and Treatment of Cancer (EORTC) quality of life questionnaires (QLQ) were continuously developed and used since 1993 first in European countries and later on worldwide in international trials. Therefore, a standardized translation and cultural adaptation procedure was also developed by the EORTC Quality of Life Group (QLG) to respond to the international interest in non-English speaking countries and cultures. To date, the EORTC QLQ 30-item core questionnaire (QLQ-C30) has been translated and validated into more than 60 languages and its cancer site/type specific modules (e.g., Palliative care, Breast-, Cervix-, Head and Neck cancer etc.) are under further translation and validation process. Translations and cultural validations include all major Western, and many African and Asian languages.
The aim of this Chapter is to give a brief account of the existing EORTC QLQ modules and their cultural validation (linguistic and psychometric validation) into Japanese language for use in cancer patients. We give an overview of the translation problems and different priorities of social issues between Western and Eastern – in our case Japanese – culture.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Abbreviations
- APPI:
-
Action concerning Protection of Personal Information
- BR23:
-
breast cancer module
- BRM:
-
Brahma gene
- C15-PAL:
-
palliative care core questionnaire
- C30:
-
30-item cancer core
- CR:
-
Complete Response
- CX24:
-
cervical cancer module
- ECOG PSR:
-
Eastern Cooperative Oncology Group Performance Status Rating scale
- EGFR:
-
Epidermal Growth Factor Receptor
- EORTC:
-
European Organization for Research and Treatment of Cancer
- FACT-G:
-
Functional Assessment of Cancer Therapy-General
- FACT-H&N:
-
Functional Assessment of Cancer Therapy-Head and Neck cancer subscale
- FLIC:
-
Functional Living Index-Cancer
- GHQ:
-
General Health Questionnaire
- H&N35:
-
35-item module for Head and Neck cancer
- HRQoL:
-
Health-related Quality of Life
- IMRT:
-
Intensity-Modulated Radiation Therapy
- IN-PATSAT32:
-
cancer in-patient satisfaction with care questionnaire
- KPS:
-
Karnofsky Performance Scale
- LC13:
-
lung cancer module
- MY20:
-
multiple myeloma module
- OES18:
-
esophageal cancer module
- OV28:
-
ovarian cancer module
- POMS:
-
Profile of Mood States
- PSS-HN:
-
Performance Status Scale for Head and Neck Cancer
- QLG:
-
Quality of Life Study Group
- QLQ:
-
Quality of Life Questionnaire
- QLU:
-
Quality of Life Unit
- QoL:
-
Quality of Life
- QOL-ACD:
-
Quality of Life Questionnaire for Cancer Patients Treated with Anti-Cancer Drugs
- QOL-RTI/H&N:
-
Quality of Life-Radiation Therapy Instrument with Head and Neck Module
- SF36:
-
Medical Outcomes Study 36-Item Short-Form Survey
- SOV:
-
subject-object-verb
- STO22:
-
gastric cancer module
- SVO:
-
subject-verb-object
- UWQOL:
-
University of Washington Quality of Life Questionnaire for Head and Neck Cancer
- WHO/QOL-26:
-
World Health Organization Quality of Life 26
References
Aaronson NK. (1998). Eur J Cancer. 34: 767–769.
Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, et al. (1993). J Natl Cancer Inst. 85: 365–376.
Aaronson NK, Bullinger M, Ahmedzai S. (1988). Cancer Res. 111: 231–249.
Bjordal K, de Graeff A, Fayers PM, Hammerlid E, van Pottelsberghe C, et al. (2000). Eur J Cancer. 36: 1796–1807.
Bjordal K, Kaasa S. (1992). Acta Oncol. 31: 311–321.
Bonomi AE, Cella DF, Hahn EA, Bjordal K, Sperner-Unterweger B, et al. (1996). Qual Life Res. 5: 309–320.
Bullinger M, Anderson R, Cella D, Aaronson N. (1993). Qual Life Res. 2: 451–459.
Cheung YB, Thumboo J. (2006). Pharmacoeconomics. 24: 643–650.
Chie WC, Hong RL, Lai CC, Ting LL, Hsu MM. (2003). Qual Life Res. 12: 93–98.
Cull A, Sprangers MAG, Aaronson NK, Bjordal K, West K, et al. (2002). European Organization for Research and Treatment of Cancer quality of life study group translation procedure, 2nd ed. EORTC Quality of Life Group, Brussels.
Eguchi K. (1995). In: Urushizaki I (ed.) Guidebook of Quality of Life Assessment and Questionnaires. Cancer and Chemotherapy Publishers INC, Tokyo, pp. 23–29.
Einhorn LH. (2003). Support Care Cancer. 11: 620–622.
Fayers PM, Aaronson NK, Bjordal K, Groenvold M, Curran D, et al. (2001). EORTC QLQ-C30 Scoring Manual, 3rd ed. EORTC Quality of Life Group, Brussels.
Fayers PM, Machin D. (2000). Quality of Life: Assessment, Analysis and Interpretation. Wiley, New York/Singapore.
Fukuhara S, Bito S, Green J, Hsiao A, Kurokawa K. (1998). J Clin Epidemiol. 51: 1037–1044.
Fumimoto H, Kobayashi K, Chang CH, Eremenco S, Fujiki Y, et al. (2001). Qual Life Res. 10: 701–709.
Gotay CC, Wilson M. (1998). Eval Health Prof. 21: 157–178.
Groenvold M, Klee MC, Sprangers MA, Aaronson NK. (1997). J Clin Epidemiol. 50: 441–450.
Hjermstad MJ, Fossa SD, Bjordal K, Kaasa S. (1995). J Clin Oncol. 13: 1249–1254.
Kaasa S. (1992). Oncology. 49: 289–294.
Karasawa K, Sasaki T, Okawa T, Takahashi T, Hayakawa K, et al. (2003). J Oncol Manag. 12: 18–24.
Karnofsky DA, Burchemajh JH. (1949). In: McLeod CM (ed.) Evaluation of Chemotherapeutic Agents. Columbia University Press, New York, pp. 191–205.
Kobayashi K, Takeda F, Teramukai S, Gotoh I, Sakai H. et al. (1998). Eur J Cancer. 34: 810–815.
Koller M, Aaronson NK, Blazeby J, Bottomley A, Dewolf L, et al. (2007). Eur J Cancer. 43: 1810–1820.
Kurihara M, Shimizu H, Tsuboi K, Kobayashi K, Murakami M, et al. (1999). Psychooncology. 8: 355–363.
List MA, D'Antonio LL, Cella DF, Siston A, Mumby P, et al. (1996). Cancer. 77: 2294–2301.
Matsui K, Lie RK. (2007). Eubios J Asian Int Bioeth. 17: 41–49.
Matsumoto T, Ohashi Y, Morita S, Kobayashi K, Shibuya M, et al. (2002). Qual Life Res. 11: 483–493.
Nakagawa Y, Daibo I. (1985). An Introduction to Mental Health Measurement: Japanese Version of the General Health Questionnaire (GHQ). Nihon Bunka Kagakusha Co., Tokyo.
Nishi G. (2001). Japanese Step by Step: An Innovative Approach to Speaking and Reading Japanese. McGraw-Hill, New York, NY.
Nomura K. (ed.) (2005). Cancer Statistics in Japan 2005. Vital and Health Statistics Division, Statistics and Information Department, Minister’s Secretariat, Ministry of Health, Labour and Welfare, Tokyo.
Ohno Y, Nakamura T, Murata K, Tsukuma H, Ajiki W, et al. (2004). In: Oshima A, Kuroishi T, Tajima K (ed.) Cancer Statistics - Incidence, Mortality, and Survival - 2004. Shinohara Shuppan, Tokyo, pp. 201–217.
Oken MM, Creech RH, Tormey DC, Horton J, Davis TE, et al. (1982). Am J Clin Oncol. 5: 649–655.
Onishi Y, Yamaura T, Tauchi K, Sakamoto T, Tsukada K, et al. (1998). Biol Pharm Bull. 21: 761–765.
Rogers SN, Ahad SA, Murphy AP. (2007). Oral Oncol. 43: 843–868.
Schipper H, Levitt M. (1985). Cancer Treat Rep. 69: 1115–1125.
Seeley C. (1984). Visible Lang. 18: 267–302.
Sprangers MA, Cull A, Bjordal K, Groenvold M, Aaronson NK. (1993). Qual Life Res. 2: 287–295.
Sprangers MA, Cull A, Groenvold M, Bjordal K, Blazeby J, et al. (1998). Qual Life Res. 7: 291–300.
Statistics and Information Department Ministers Secretariat. (2007). Patient Survey (2005): Vol. 1 (All Japan). Health and Welfare Statistics Association, Tokyo.
Stromborg MF (ed). (1998). Instruments for Clinical Nursing Research. Appleton & Lange, Norwalk, CT.
Tazaki M, Nakane Y, Endo T, Kakikawa F, Kano K, et al. (1998). Jpn J Clin Oncol. 28: 134–141.
Toth G, Sakaguchi T, Mikami Y, Hirose H, Tsukuda M. (2005). Auris Nasus Larynx. 32: 175–183.
Toth G, Tsukuda M. (2003). Jibiinkoka Tenbo. 46: 368–383.
Toth G, Tsukuda M. (2004). Gan To Kagaku Ryoho. 31: 461–467.
Tsukuma H, Ajiki W, Oshima A. (2004). In: Tajima K, Kuroishi T, Oshima A (ed) Gann Monograph on Cancer Research (2004) Japan Science Society Press, Tokyo, pp. 95–130.
West K. (2002). Quality of Life Group, Newsletter, Issue 2, pp. 2–4.
Weymuller EA Jr., Alsarraf R, Yueh B, Deleyiannis FW, Coltrera MD. (2001). Arch Otolaryngol Head Neck Surg. 127: 489–493.
Yokoyama K, Araki S, Kawakami N, Takeshita T. (1990). Nippon Koshu Eisei Zasshi. 37: 913–918.
Yu F, Takahashi T, Moriya J, Kawaura K, Yamakawa J, et al. (2006). J Int Med Res. 34: 231–239.
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2010 Springer Science+Business Media LLC
About this entry
Cite this entry
Tóth, G., Tsukuda, M. (2010). The Japanese Version of the EORTC Quality of Life Questionnaire. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_16
Download citation
DOI: https://doi.org/10.1007/978-0-387-78665-0_16
Publisher Name: Springer, New York, NY
Print ISBN: 978-0-387-78664-3
Online ISBN: 978-0-387-78665-0
eBook Packages: MedicineReference Module Medicine