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The Japanese Version of the EORTC Quality of Life Questionnaire

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Handbook of Disease Burdens and Quality of Life Measures

Abstract:

This Chapter summarizes quality of life (QoL) questionnaires for various types of cancer. Most of the patient-centered QoL measurement tools have been developed in English-speaking cultures. Thus, it has been a vitally important question whether or not these questionnaires could be used in other cultures – like African and Eastern countries – and cross a broad cultural divide.

The European Organization for Research and Treatment of Cancer (EORTC) quality of life questionnaires (QLQ) were continuously developed and used since 1993 first in European countries and later on worldwide in international trials. Therefore, a standardized translation and cultural adaptation procedure was also developed by the EORTC Quality of Life Group (QLG) to respond to the international interest in non-English speaking countries and cultures. To date, the EORTC QLQ 30-item core questionnaire (QLQ-C30) has been translated and validated into more than 60 languages and its cancer site/type specific modules (e.g., Palliative care, Breast-, Cervix-, Head and Neck cancer etc.) are under further translation and validation process. Translations and cultural validations include all major Western, and many African and Asian languages.

The aim of this Chapter is to give a brief account of the existing EORTC QLQ modules and their cultural validation (linguistic and psychometric validation) into Japanese language for use in cancer patients. We give an overview of the translation problems and different priorities of social issues between Western and Eastern – in our case Japanese – culture.

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Abbreviations

APPI:

Action concerning Protection of Personal Information

BR23:

breast cancer module

BRM:

Brahma gene

C15-PAL:

palliative care core questionnaire

C30:

30-item cancer core

CR:

Complete Response

CX24:

cervical cancer module

ECOG PSR:

Eastern Cooperative Oncology Group Performance Status Rating scale

EGFR:

Epidermal Growth Factor Receptor

EORTC:

European Organization for Research and Treatment of Cancer

FACT-G:

Functional Assessment of Cancer Therapy-General

FACT-H&N:

Functional Assessment of Cancer Therapy-Head and Neck cancer subscale

FLIC:

Functional Living Index-Cancer

GHQ:

General Health Questionnaire

H&N35:

35-item module for Head and Neck cancer

HRQoL:

Health-related Quality of Life

IMRT:

Intensity-Modulated Radiation Therapy

IN-PATSAT32:

cancer in-patient satisfaction with care questionnaire

KPS:

Karnofsky Performance Scale

LC13:

lung cancer module

MY20:

multiple myeloma module

OES18:

esophageal cancer module

OV28:

ovarian cancer module

POMS:

Profile of Mood States

PSS-HN:

Performance Status Scale for Head and Neck Cancer

QLG:

Quality of Life Study Group

QLQ:

Quality of Life Questionnaire

QLU:

Quality of Life Unit

QoL:

Quality of Life

QOL-ACD:

Quality of Life Questionnaire for Cancer Patients Treated with Anti-Cancer Drugs

QOL-RTI/H&N:

Quality of Life-Radiation Therapy Instrument with Head and Neck Module

SF36:

Medical Outcomes Study 36-Item Short-Form Survey

SOV:

subject-object-verb

STO22:

gastric cancer module

SVO:

subject-verb-object

UWQOL:

University of Washington Quality of Life Questionnaire for Head and Neck Cancer

WHO/QOL-26:

World Health Organization Quality of Life 26

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Tóth, G., Tsukuda, M. (2010). The Japanese Version of the EORTC Quality of Life Questionnaire. In: Preedy, V.R., Watson, R.R. (eds) Handbook of Disease Burdens and Quality of Life Measures. Springer, New York, NY. https://doi.org/10.1007/978-0-387-78665-0_16

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  • DOI: https://doi.org/10.1007/978-0-387-78665-0_16

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