Advertisement

Generic Quality of Life Measures for Children and Adolescents

  • K. J. Zullig
  • M. R. Matthews
  • R. Gilman
  • R. F. Valois
  • E. S. Huebner
Reference work entry

Abstract:

The purpose of this chapter was to review generic measures of child and adolescent (ages 18 or less) quality of life (QOL) that have been applied in at least two populations (e.g., age groups, nationalities, etc.) and have yielded strong psychometric properties. The chapter begins with a discussion regarding the relevance of quality of life measurement to health care. Next, we briefly review the challenges associated with QOL measurement in general followed by multidimensional measures that have been applied to various general (i.e., non-clinical) samples. Multidimensional measures were chosen for this review because they gather important information across a number of life domains. For example, understanding the contribution of environmental factors to an adolescent’s behavioral, cognitive, and overall health functioning is critical to understanding human development In this regard, multidimensional QOL measures can help assess the potential influence of various proximal (e.g., quality of school experiences) and distal factors (e.g., quality of neighborhood environment) on life quality among youth.

The measures in this review are classified into two categories: (1) those that contain both objective and subjective QOL indicators, and (2) those comprised of subjective QOL measures only. Specifically, we review the Comprehensive Quality of Life Scale-School Version (ComQOL-S5: Cummins, 1997), the Quality of Life Profile-Adolescent Version (QOLPAV: Raphael et al., 1996), the Youth Quality of Life (YQOL: Edwards et al., 2002; Patrick et al., 2002), and the Multidimensional Students’ Life Satisfaction Scale (MSLSS: Huebner, 1994). Lastly, we recommend some suggestions for future research in youth QOL measurement, including promising efforts to use QOL as one overall index of well-being.

Keywords

Life Satisfaction Life Satisfaction Scale Multidimensional Student Youth Quality Perceive Life Quality 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

List of Abbreviations:

BASC 2

behavior assessment system for children-second edition

CWI

child and youth well-being index

CHIP-AE

child health and illness profile

CHQ-CF80

child health questionnaire-child form

CHQ-PF50

child health questionnaire-parent form

CDI

children’s depression inventory

ComQOL-S5

comprehensive quality of life scale-school version

CADS-A

conners’ auxiliary adhd/dsm iv instrument

FDI

functional disability inventory

GCQ

generic children’s quality of life measure

KINDL

German Munich quality of life questionnaire for children

MSLSS

multidimensional students’ life satisfaction scale

PedsQL

pediatric quality of life inventory

PWI-SC

personal well-being index-school children

QOL

quality of life

QOLPAV

quality of life profile-adolescent version

SF-36

short form

SF-12

short form-12 health survey

SIP

sickness impact profile

TedQL

teddy quality of life

C-QOL

the quality of life measure for children

YQOL

youth quality of life

References

  1. Bachman JG, Kahn RL, Mednick MT, Davidson TN, Johnston LD. (1967). Youth in Transition: Volume 1: Blueprint For a Longitudinal Study of Adolescent Boys. Institute for Social Research, University of Michigan, Ann Arbor.Google Scholar
  2. Bearsley C. (1997). No Place Called Home: Quality of Life and Meaning of Life of Homeless Youths. Honours Thesis, School of Psychology, Deakin University, Melbourne.Google Scholar
  3. Bradford R, Rutherford DL, John A. (2002). J Adolesc. 25: 261–274.PubMedCrossRefGoogle Scholar
  4. Carlson MJ, Gabriel RM. (2001). Psychiatr Serv. 52: 1230–1236.PubMedCrossRefGoogle Scholar
  5. Conners CK. (1997) Conners’ Auxillary ADHD/DSM-IV Adolescent Self-Report Scale (CADS-A). Multi-health systems, North Tonawanda, NY.Google Scholar
  6. Cummins RA. (1996). Soc Indic Res. 38: 303–332.CrossRefGoogle Scholar
  7. Cummins RA. (1997). Comprehensive Quality of Life Scale-School Version (Grades 7–12), 5th (ed.). Deakin University.Google Scholar
  8. Edwards TC, Huebner CE, Connell FA, Patrick DL. (2002). J Adolesc. 25: 275–28.PubMedCrossRefGoogle Scholar
  9. Felce D, Perry J. (1995). Res Devel Disabil. 16: 51–74.CrossRefGoogle Scholar
  10. Frisch MB. (1998). Clin Psychol: Sci Prac. 5: 19–40.CrossRefGoogle Scholar
  11. Frisch MB, Clark MP, Rouse SV, Rudd MD, Paweleck J, Greenstone A, et al. (2003). Predictive validity and sensitivity to change in quality of life assessment and life satisfaction: Further studies of the Quality of Life Inventory or QOLI in mental health settings. In: Sirgy MJ et al. (eds.) Advances in Quality of Life Theory and Research. Kluwer Academic Publishers, The Netherlands, pp. 191–210.Google Scholar
  12. Frisch MB, Cornell J, Villanueva M, Retzlaff PJ. (1992). Psychol Assess. 4: 92–101.CrossRefGoogle Scholar
  13. Gilman R, Ashby J, Sverko D, Florell D, Varjas K. (2005). Pers Individ Dif. 39: 155–166.CrossRefGoogle Scholar
  14. Gilman R, Easterbrooks S, Frey M. (2004). Soc Indic Res. 66: 143–164.CrossRefGoogle Scholar
  15. Gilman R, Handwerk ML. (2001). Resid Treat Child Youth. 18: 47–65.CrossRefGoogle Scholar
  16. Gilman R, Huebner ES. (2000). Behav Change. 17: 178–183.CrossRefGoogle Scholar
  17. Gilman R, Huebner ES. (2004). Resid Treat Child Youth. 21: 7–17.CrossRefGoogle Scholar
  18. Gilman R, Huebner ES. (2006). J Youth Adolesc. 35: 311–319.CrossRefGoogle Scholar
  19. Gilman R, Huebner ES, Laughlin JE. (2000). Soc Indic Res. 52: 135–160.CrossRefGoogle Scholar
  20. Gilman R, Huebner ES, Park N, Tian L, O’Byrne J, Schiff M, et al. (2008). J Youth Adolesc. 2: 142–154.Google Scholar
  21. Gilman R, Laughlin JE, Huebner ES. (1999). Sch Psychol Int. 20: 300–307.CrossRefGoogle Scholar
  22. Greenspoon PJ, Saklofske DH. (2001). Soc Indic Res. 54: 81–108.CrossRefGoogle Scholar
  23. Gullone E, Cummins RA. (1998). Behav Change. 16: 127–139.CrossRefGoogle Scholar
  24. Hagerty MR, Cummins RA, Ferriss AL, Land K, Michalos AC, Peterson M, Sharpe A, Sirgy J, Vogel J. (2001). Soc Indic Res. 55: 1–96.CrossRefGoogle Scholar
  25. Huebner ES. (1994). Psychol Assess. 6: 149–158.CrossRefGoogle Scholar
  26. Huebner ES, Dew T. (1993a). J Psychoeduc Assess. 11: 345–350.CrossRefGoogle Scholar
  27. Huebner ES, Dew T. (1993b). Sch Psychol Int. 14: 355–360.CrossRefGoogle Scholar
  28. Huebner ES, Laughlin JE, Ash C, Gilman R. (1998). 16: 118–134.Google Scholar
  29. Huebner ES, Gilman R. (2006). Appl Res Qual Life. 1: 139–150.CrossRefGoogle Scholar
  30. Huebner ES, Gilman R, Suldo SM. (2007). Assessing perceived quality of life in children and adolescents. In: Handler L, Smith S (eds.) The Clinical Assessment of Children and Adolescents. A practitioner’s handbook. Lawrence Erlbaum, Mahwah, NJ, pp. 347–363.Google Scholar
  31. Huebner ES, Seligson JL, Valois RF, Suldo SM. (2006). Soc Indic Res. 79: 477–484.CrossRefGoogle Scholar
  32. Huebner ES, Valois RF, Suldo SM, Smith LC, McKnight CG, Seligson JL, Zullig KJ. (2004). J Adolesc Health. 34: 270–278.PubMedGoogle Scholar
  33. Irwin CE, Burg SJ, Cart CU. (2002). J Adoles Health. 31: 91–121.Google Scholar
  34. Ito A, Smith DC. (2006). The Comm Psychol. 38: 19–21.Google Scholar
  35. Jirojanakul P, Skevington S. (2000). Br J Health Psychol. 5: 299–321.CrossRefGoogle Scholar
  36. Jirojanakul P, Skevington S, Hudson J. (2003). Soc Sci Med. 57: 1277–1288.PubMedCrossRefGoogle Scholar
  37. Keyes CLM. (2007). Am Psychol. 62: 95–108.PubMedCrossRefGoogle Scholar
  38. Kovacs M. (1992). Children’s Depression Inventory (CDI). Multi-Health Systems, North Tonawanda, NY.Google Scholar
  39. Land KC, Lamb VL, Meadows SO, Taylor A. (2007). Soc Indic Res. 80: 105–132.CrossRefGoogle Scholar
  40. Land KC, Lamb VL, Mustillo SK. (2001). Soc Indic Res. 56: 241–320.CrossRefGoogle Scholar
  41. Marsh HW, Barnes J, Cairns L, Tidman M. (1984). J Educ Psychol. 940–976.Google Scholar
  42. Meuleners LB, Lee AH. (2005). Qual Life Res. 14: 1057–1063.PubMedCrossRefGoogle Scholar
  43. Meuleners LB, Lee AH, Binns CW, Lower A. (2003). Qual Life Res. 12: 283–290.PubMedCrossRefGoogle Scholar
  44. Moore KA, Brown BV, Scarupa MS. (2003). The uses (and misuses) of social indicators: Implications for public policy. Child Trends Research Brief, Publication #2003–01. Child Trends, Washington, DC.Google Scholar
  45. Patrick DL, Connell FA, Edwards TC, Topolski TD, Huebner CE. (1998). Final report submitted to the Centers for Disease Control and Prevention: Special Interest Project #4 (96): Age Appropriate Measures of Quality of Life and Disability Outcomes among Children: Youth Quality of Life Study. Center for Disability Policy and Research, Seattle, WA.Google Scholar
  46. Patrick DL, Edwards TC, Topolski TD. (2002). J Adolesc. 25: 287–300.PubMedCrossRefGoogle Scholar
  47. Park N, Huebner ES. (2005). J Cross-Cult Psychol. 36: 444–456.CrossRefGoogle Scholar
  48. Park N, Huebner ES, Laughlin JE, Valois RF, Gilman R. (2004). Soc Indic Res. 66: 61–79.CrossRefGoogle Scholar
  49. Raphael D, Rukholm E, Brown I, Hill-Bailey P, Donato E. (1996). J Adolesc Health. 19: 366–375.PubMedCrossRefGoogle Scholar
  50. Rapley M. (2003). Should we ‘hang up quality of life as a hopeless term?. In: Rapley M (ed.) Quality of Life Research: A Critical Introduction. Sage Publications, Thousand Oaks, CA, pp. 212–226.Google Scholar
  51. Ravens-Sieberer U, Bullinger M. (1998). Qual Life Res. 7: 399–407.PubMedCrossRefGoogle Scholar
  52. Recker GT. (1992). Life Attitude Profile-Revised. Trent University, Canada.Google Scholar
  53. Reynolds CR, Kamphaus RW. (2004). Manual for the Behavioral Assessment System for Children, 2nd version. American Guidance Services, Circle Pines, MN.Google Scholar
  54. Schalock RL, Parameter T. (2000). Preface. In: Quality of Life: Its Conceptualization, Measurement, and Application. IASSID, A Consensus Document. Washington. Schwartz SJ, Pantin H, Coatsworth JD, Szapocznik J. (2007). J Prim Prev. 28: 117–144Google Scholar
  55. Selgison JL, Huebner ES, Valois RF. (2003). Soc Indic Res. 61: 121–145.CrossRefGoogle Scholar
  56. Seligson JL, Huebner ES, Valois RF. (2005). Soc Indic Res. 73: 355–374.CrossRefGoogle Scholar
  57. Suldo SM, Huebner ES. (2004). Sch Psychol Q. 19: 93–105.CrossRefGoogle Scholar
  58. Suldo SM, Huebner ES. (2006). Soc Indic Res. 78: 179–203.CrossRefGoogle Scholar
  59. Topolski TD, Edwards TC, Patrick DL, Varley P, Way ME, Buesching DP. (2004). J Atten Disord. 3: 163–173.CrossRefGoogle Scholar
  60. Valois RF, Zullig KJ, Drane JW, Huebner ES. (2001). Am J Health Behav. 25: 353–366.PubMedGoogle Scholar
  61. Valois RF, Zullig KJ, Huebner ES, Drane JW. (2003). Eat Disord: J Treat Prev. 11: 271–288.Google Scholar
  62. ValoisRF, Zullig KJ, Huebner ES, Drane JW. (2004a). J Sch Health. 74: 59–65.PubMedCrossRefGoogle Scholar
  63. Valois RF, Zullig KJ, Huebner ES, Drane JW. (2004b). Soc Indic Res. 66: 81–105.CrossRefGoogle Scholar
  64. Valois RF, Zullig KJ, Kammermann SK, Huebner ES, Drane JW. (2002). J Child Fam Stud. 11: 427–440.CrossRefGoogle Scholar
  65. Walker LS, Greene JW. (1991). J Pediatr Psychol. 16: 39–58.PubMedCrossRefGoogle Scholar
  66. Zullig KJ, Valois RF, Drane JW, Huebner ES. (2001). J Adolesc Health. 29: 279–288.PubMedCrossRefGoogle Scholar
  67. Zullig KJ, Valois RF, Huebner ES, Drane JW. (2005). Qual Life Res. 14: 1573–1584.PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media LLC 2010

Authors and Affiliations

  • K. J. Zullig
    • 1
  • M. R. Matthews
  • R. Gilman
  • R. F. Valois
  • E. S. Huebner
  1. 1.Department of Community Medicine School of MedicineWest Virginia UniversityMorgantownWV

Personalised recommendations