MEND Psychosocial Family Systems Program for Pediatric Chronic Illness
The MEND (Mastering Each New Direction; Tapanes et al. 2017) model provides behavioral health-oriented treatment for chronically ill pediatric and adult patients. It is a psychosocial family systems-based intervention, and therefore includes individual, peer group, and multifamily group interventions. The ultimate goal of MEND is to encourage the health-related quality of life (HRQL) of the patient and the family caregiving system. It focuses on inter- and intrapersonal processes within the patient and the family system and targets biopsychosocial stress response patterns as well as maladaptive illness narratives. MEND is delivered in a multidisciplinary setting and a true integration of mental and physical health care. To date, MEND has been delivered at the Loma Linda University Health Behavioral Medicine Center, which offers intensive outpatient and partial hospitalization formats of MEND. It began by serving pediatric patients and their families, and in...
- Anderson, G. (2010). Chronic care: Making the case for ongoing care (pp. 1–43). Princeton: Robert Wood Johnson Foundation http://www.rwjf.org/content/dam/farm/reports/reports/2010/rwjf54583.Google Scholar
- Distelberg, B., Emerson, N. D., Gavaza, P., Tapanes, D., Brown, W. N., Shah, H., et al. (2016). A cost benefit analysis of a family systems intervention for managing pediatric chronic illness. Journal of Marital and Family Therapy, 42(3), 371–382. https://doi.org/10.1111/jmft.12166.CrossRefPubMedPubMedCentralGoogle Scholar
- Distelberg, B., Tapanes, D., Emerson, N. D., Brown, W. N., Vaswani, D., Williams-Reade, J., et al. (2017). Prospective pilot study of the MEND psychosocial family systems program for pediatric chronic illness. Family Process. https://doi.org/10.1111/famp.12288.
- Distelberg, B., Williams-Reade, J., Tapanes, D., Montgomery, S., & Pandit, M. (2014). Evaluation of a family systems approach to managing pediatric chronic illness: Managing each new direction (MEND). Family Process, 53(2), 194–213. https://doi.org/10.1111/famp.12066.CrossRefPubMedPubMedCentralGoogle Scholar
- Eccleston, C., Palermo, T. M., Fisher, E., & Law, E. (2012). Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Systematic Review, 8(8). https://doi.org/10.1002/14651858.CD009660.pub2.
- Ellis, D. A., Naar-King, N., Chen, X., Moltz, K., Cunningham, P. B., & Idalski-Carcone, A. (2012). Multisystemic therapy compared to telephone support for youth with poorly controlled diabetes: Findings from a randomized controlled trial. Annals of Behavioral Medicine, 44, 207–215. https://doi.org/10.1007/s12160-012-9378-1.CrossRefPubMedPubMedCentralGoogle Scholar
- Emerson, N. D., Morrell, H. E., Neece, C., Tapanes, D., & Distelberg, B. (2018b). Longitudinal model predicting self-concept in pediatric chronic illness. Family Process. https://doi.org/10.1111/famp.12361.
- Tapanes, D., Williams-Reade, J., Vaswani, D., Distelberg, B., & Montgomery, S. (2017). Mastering each new direction (M.E.N.D) training manual: Working with children and adolescent with complex medical conditions. Redlands. www.mendmanual.org