Ethical and Legal Issues
“Ethical and legal issues” are a subset of “ethical, legal, and social issues” – or ELSI – where the “I” sometimes also refers to “implications.” This construct was introduced in 1989 by the National Program Advisory Committee on the Human Genome in the United States, with the intention of supporting exploration, discussion, and eventually the development of policies that anticipate and address the ethical, legal, and social implications of/issues arising from the advanced and speedily advancing technology associated with genome mapping. Since this time, and with ever-increasing technological advances that have the potential to adversely affect individuals and groups (much as genome research has) – including both research and non-research work that involves big data – ELSI relating to these domains are active areas of research and policy development. Since social implications of/issues arising from big data are discussed elsewhere in this encyclopedia, this entry focuses on...
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