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Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults

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Encyclopedia of Autism Spectrum Disorders
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Factors that complicate the process of receiving a medical diagnosis of “autism spectrum disorder” by a qualified professional for autistic adults who were not diagnosed in childhood.

Historical Background

Known prevalence of autism in adults is approximately 1.1%, but this is likely underestimated (Brugha et al. 2016). Experts estimate that as many as 40% of autistics are not diagnosed in childhood (Baron-Cohen et al. 2009). Those at highest risk of being misdiagnosed or not recognized during childhood include females, middle-aged and older adults, and individuals with more subtle traits and without cognitive or language delays.

In general, females are at a disproportionate risk of misdiagnosis, delayed diagnosis, and not receiving a diagnosis compared to males across age groups (Loomes et al. 2017). There are many theories on the causes of missed diagnosis of autism among females. Emerging evidence shows a slightly different clinical presentation of autism among females,...

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Correspondence to Laura Foran Lewis .

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Lewis, L.F. (2020). Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults. In: Volkmar, F. (eds) Encyclopedia of Autism Spectrum Disorders. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6435-8_102410-1

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  • DOI: https://doi.org/10.1007/978-1-4614-6435-8_102410-1

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