Skip to main content

The Process of Decision-Making in Neonatology

  • Reference work entry
  • First Online:
Neonatology
  • 170 Accesses

Abstract

Advances in the field of neonatal–perinatal medicine over the past 40 years have resulted in marked improvement in survival and outcome of the prematurely born and critically ill infant. While the overall reduction in mortality and morbidity for infants is favorable, decisions regarding the care provided to newborns at the threshold of viability and those with complex medical, surgical, and potentially lethal congenital anomalies continue to present challenges to the families and healthcare providers. The dilemma surrounding the complexity of the decision-making process is based on a number of factors including the rights of the child as an individual, the values of the family and the healthcare personnel, the cultural influences, and the moral and ethical standards that impact the way physicians practice medicine and their approach to end-of-life decision-making. As an adjunct to help facilitate the process of decision-making, the role of neonatal palliative care has increased over the last few years. In fact, the field of pediatric palliative care and neonatal palliative care is relatively new and will provide added benefit to healthcare providers and families as they are confronted with difficult decisions.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 479.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 799.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Am Acad of Ped Neonatal Resuscitation Prog Steering Comm (2003) Born-alive infant protection act of 2001 public law no 107-207. Pediatric 111:680

    Google Scholar 

  • American Academy of Pediatrics (AAP) and American College of Obstetricians and Gynecologists (ACOG) (2012) Guidelines for perinatal care, 7th edn. Elk Grove Village (IL)

    Google Scholar 

  • American Academy of Pediatrics, Committee on Bioethics (1994) Guidelines on forgoing life-sustaining medical treatment. Pediatrica 93(3):532–536

    Google Scholar 

  • Baby Doe Law (1984) USCA Title 42 Chapter 67 Sec 510a (http://frwebgate6.access.gpo.gov/cgi-bin/waisgate.cgi?)

  • Bechara A, Damasio H, Damasio AR (2000) Emotion, decision making and the orbitofrontal cortex. Cereb Cortex 10(3):295–307

    Article  CAS  Google Scholar 

  • Bell EF (2007) Noninitiation or withdrawal of intensive care for high-risk newborns. Pediatrica 119(2):401–403

    Article  Google Scholar 

  • Born-Alive Infants Protection Act (2001) 107th congress 1st session HR 2175. 1–38 http://thomas.loc.gov/

  • Boss RD, Hutton N, Sulpar LJ, West AM et al (2008) Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborn. Pediatrica 122(3):583–589

    Article  Google Scholar 

  • Carter B (2015) End of life decision for newborns: an ethical and compassionate process? Arch Dis Child Fetal Neonatal Ed 101(2):F92–93. doi10.1136/archdischild - 2015.309380

    Article  Google Scholar 

  • Casebeer WD (2003a) Moral cognition and its neural constituents. Nat Rev Neurosci 4:840–846

    Article  CAS  Google Scholar 

  • Casebeer WD (2003b) Natural ethical facts: evolution, connectionism, and moral cognition. MIT Press, Cambridge, MA

    Google Scholar 

  • Curlin FA, Lawrence RE, Chin MH, Lantos JD (2007) Religion, conscience, and controversial clinical practices. N Engl J Med 356(6):593–600

    Article  CAS  Google Scholar 

  • Damasio A (2007) Neuroscience and ethics: intersections. AJOB 7(1):3–10

    PubMed  Google Scholar 

  • Garten L (2015) Primary palliative care in the delivery room: patients’ and medical personnel’s perspectives. J Perinatol 35:1000–1005. IA L (2013) Conflict resolution in end-of-life decisions in the neonatal unit. Semin Fetal Neonatal Med 83–87

    Article  CAS  Google Scholar 

  • Gazzaniga RB, Ivry RB, Mangun GR (2002) Cognitive neuroscience: the biology of the mind, 2nd edn. Norton & Company, New York

    Google Scholar 

  • Greene JD, Sommerville RB, Nystrom LE, Darley JM et al (2001) An fMRI investigation of emotional engagement in moral judgment. Science 293:2105–2108

    Article  CAS  Google Scholar 

  • Haward MF, Murphy RO, Lorenz JM (2008) Message framing and perinatal decisions. Pediatrica 122:109–118

    Article  Google Scholar 

  • Hippocrates (1977) The art. In: Reiser SJ, Dyck AJ, Curran WJ (eds) Ethics in medicine: historical perspectives and contemporary concerns. MIT Press, Cambridge, MA, pp 6–7

    Google Scholar 

  • International Liaison Committee on Resuscitation (2006) The International Liaison Committee on Resuscitation (ILCOR) consensus on science with treatment recommendations for pediatric and neonatal patients: neonatal resuscitation. Pediatrica 117(5):978

    Article  Google Scholar 

  • Ishii N, Kono Y, Yonemoto N et al (2013) Outcomes of infants born at 22 and 23 weeks’ gestation. Pediatrica 132(1):62–71

    Article  Google Scholar 

  • Janvier A, Leblanc MD, Barrington KJ (2008) The best-interest standard is not applied for neonatal resuscitation decisions. Pediatrica 121(5):963–969

    Article  Google Scholar 

  • Leuthner S (2001) Decisions regarding resuscitation of the extremely premature infant and models of best interest. J Perinatol 21(3):193–198

    Article  CAS  Google Scholar 

  • Lorenz JM (2005) Prenatal counseling and resuscitation decisions at extremely premature gestation. J Pediatr 147(5):567–568

    Article  CAS  Google Scholar 

  • Mancini A (2013) Training neonatal staff for the future in neonatal palliative care. Semin Fetal Neonatal Med 18:111–115

    Article  Google Scholar 

  • Miller EK, Cohen JD (2001) An integrative theory of prefrontal cortex function. Annu Rev Neurosci 24:167–202

    Article  CAS  Google Scholar 

  • Paris JJ (2005) Resuscitation decisions for “fetal infants”. Pediatrica 115(5):1415

    Article  Google Scholar 

  • Paris JJ, Graham N, Schreiber MD, Goodwin M (2006) Approaches to end-of-life decision-making in the NICU: insights from Dostoevsky’s The Grand Inquisitor. J Perinatol 26:389–391

    Article  CAS  Google Scholar 

  • Pignotti MS, Donzelli G (2008) Perinatal care at the threshold of viability: an international comparison of practical guidelines for the treatment of extremely preterm births 121(1);e193–198.

    Google Scholar 

  • Rebagliato M, Cuttini M, Broggin L et al (2000) Neonatal end-of-life decision making: physicians’ attitudes and relationship with self-reported practices in 10 European countries. JAMA 284(19):2451–2459

    Article  CAS  Google Scholar 

  • Stoll BJ, Hansen NI, Bell EF, Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network et al (2010) Neonatal outcomes of extremely preterm infants from the NICHD Neonatal Research Network. Pediatrica 126(3):443–456

    Article  Google Scholar 

  • Verhagen AA, Sauer PJ (2005) End-of-life decisions in newborns: an approach from the Netherlands. Pediatrica 116:736–739

    Article  CAS  Google Scholar 

  • Viner J (1925) The utility concept in value theory and its critics. J Pol Econ 33:369–387

    Article  Google Scholar 

  • Watchko JF (1986) The tragic vision: acknowledging limits and uncertainty. J Perinatol 6(1):39–43

    Google Scholar 

  • Williams C, Cairnie J, Fines V, Patey C et al (2009) Construction of a parent-derived questionnaire to measure end-of-life care after withdrawal of life-sustaining treatment in the neonatal intensive care unit. Pediatrica 123(1):e87–e95

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Endla K. Anday .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2018 Springer International Publishing AG, part of Springer Nature

About this entry

Check for updates. Verify currency and authenticity via CrossMark

Cite this entry

Anday, E.K., Spear, M. (2018). The Process of Decision-Making in Neonatology. In: Buonocore, G., Bracci, R., Weindling, M. (eds) Neonatology. Springer, Cham. https://doi.org/10.1007/978-3-319-29489-6_162

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-29489-6_162

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-29487-2

  • Online ISBN: 978-3-319-29489-6

  • eBook Packages: MedicineReference Module Medicine

Publish with us

Policies and ethics