Volume 22, issue 1, December 2023
205 articles in this issue
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Increasing access to palliative care for patients with advanced cancer of African and Latin American descent: a patient-oriented community-based study protocol
Authors (first, second and last of 20)
- Anna Santos Salas
- Sharon M. Watanabe
- the Patient Advisory Council
- Content type: Study Protocol
- Open Access
- Published: 20 December 2023
- Article: 204
This is part of 2 collections: -
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care
Authors (first, second and last of 5)
- Katie Gallagher
- Kathy Chant
- Neil Marlow
- Content type: Study Protocol
- Open Access
- Published: 19 December 2023
- Article: 203
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Parents’ hope in perinatal and neonatal palliative care: a scoping review
Authors (first, second and last of 5)
- Aline Oliveira Silveira
- Monika Wernet
- Zaida Charepe
- Content type: Research
- Open Access
- Published: 18 December 2023
- Article: 202
This is part of 2 collections: -
Exploring knowledge, attitude, and intention towards advance care planning, advance directive, and the patient self-determination act among hemodialysis patients
Authors (first, second and last of 10)
- Shang-Feng Tsai
- Ching-Yi Chang
- Cheng-Hsu Chen
- Content type: Research
- Open Access
- Published: 14 December 2023
- Article: 201
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Caring for persons with Dementia: a qualitative study of the needs of carers following care recipient discharge from hospital
Authors (first, second and last of 6)
- Janice Du Preez
- Antonio Celenza
- Glenn Arendts
- Content type: Research
- Open Access
- Published: 13 December 2023
- Article: 200
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The role of patients’ stories in medicine: a systematic scoping review
Authors (first, second and last of 13)
- Elaine Li Ying Quah
- Keith Zi Yuan Chua
- Lalit Kumar Radha Krishna
- Content type: Research
- Open Access
- Published: 12 December 2023
- Article: 199
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Exploring the adaptive leisure activities of classified nursing model in elderly colon cancer patients: a perspective on interactive care
Authors (first, second and last of 6)
- Yun-Zhao Lin
- Po Chen
- Feng Guo
- Content type: Research
- Open Access
- Published: 12 December 2023
- Article: 198
This is part of 2 collections: -
Building bridges of excellence: a comprehensive competence framework for nurses in hospice and palliative care—a mixed method study
Authors (first, second and last of 13)
- Wei-Ying Li
- Ying Fang
- Mai Du
- Content type: Research
- Open Access
- Published: 12 December 2023
- Article: 197
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Exploring the needs and coping strategies of family caregivers taking care of dying patients at home: a field study
Authors (first, second and last of 11)
- Xiaotian Zhang
- Tianmeng Xu
- Peng Yue
- Content type: Research
- Open Access
- Published: 12 December 2023
- Article: 196
This is part of 2 collections: -
Investigation of grief and posttraumatic growth related to patient loss in pediatric intensive care nurses: a cross-sectional study
Authors
- Meral Turgut
- Hatice Yıldız
- Content type: Research
- Open Access
- Published: 07 December 2023
- Article: 195
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The meaning of dying and death for children, their carers, and families: a scoping review
Authors (first, second and last of 4)
- Christina M. Lamb
- Kianna Ramer
- Kelsey Groenenboom
- Content type: Research
- Open Access
- Published: 04 December 2023
- Article: 194
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Palliative care for children: methodology for the development of a national clinical practice guideline
Authors (first, second and last of 9)
- Kim C. van Teunenbroek
- Leontien C. M. Kremer
- on behalf of the Dutch Paediatric Palliative Care Guideline Panel
- Content type: Research
- Open Access
- Published: 01 December 2023
- Article: 193
This is part of 2 collections: -
The meaning of dignity in care during the COVID-19 pandemic: a qualitative study in acute and intensive care
Authors (first, second and last of 8)
- Loredana Buonaccorso
- Ludovica De Panfilis
- Silvia Tanzi
- Content type: Research
- Open Access
- Published: 30 November 2023
- Article: 192
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Discharge to home from a palliative care unit: impact on survival and factors associated with home death after the discharge: a cohort study
Authors (first, second and last of 8)
- Nozomu Murakami
- Shinya Kajiura
- Ryuji Hayashi
- Content type: Research
- Open Access
- Published: 30 November 2023
- Article: 191
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A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers
Authors (first, second and last of 5)
- Siyu Cai
- Lei Cheng
- Xiaoxia Peng
- Content type: Research
- Open Access
- Published: 28 November 2023
- Article: 190
This is part of 2 collections: -
Palliative care research utilising intersectionality: a scoping review
Authors (first, second and last of 5)
- Helen Butler
- Merryn Gott
- Doctor Jackie Robinson
- Content type: Research
- Open Access
- Published: 28 November 2023
- Article: 189
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Experiences of the older spousal caregivers of patients with cancer during palliative chemotherapy: a qualitative descriptive study
Authors
- Kengo Hirayama
- Tomoki Kuribara
- Miho Oshikiri
- Content type: Research
- Open Access
- Published: 23 November 2023
- Article: 188
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Correction: Translation and cultural adaptation of the Greek integrated palliative care outcome scale (IPOS): challenges in a six-phase process
Authors (first, second and last of 5)
- Despina Anagnostou
- Stylianos Katsaragakis
- Aliki Tserkezoglou
- Content type: Correction
- Open Access
- Published: 22 November 2023
- Article: 187
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Communication strategies used by medical physicians when delivering bad news at the Maputo Central Hospital, Mozambique: a cross-sectional study
Authors (first, second and last of 6)
- Natália Ubisse Schmauch
- Emilia Pinto
- Guilhermina Rego
- Content type: Research
- Open Access
- Published: 22 November 2023
- Article: 186
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Caring for patients during voluntarily stopping of eating and drinking (VSED): experiences of a palliative care team in Germany
Authors (first, second and last of 7)
- Yann-Nicolas Batzler
- Manuela Schallenburger
- Martin Neukirchen
- Content type: Research
- Open Access
- Published: 21 November 2023
- Article: 185
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The responsibility to quench thirst by providing drinks when a relative is dying spouses’ experience in specialist palliative home care
Authors (first, second and last of 6)
- Maria Friedrichsen
- Nana Waldréus
- Tiny Jaarsma
- Content type: Research
- Open Access
- Published: 20 November 2023
- Article: 184
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Symptom and problem clusters in German specialist palliative home care - a factor analysis of non-oncological and oncological patients’ symptom burden
Authors (first, second and last of 8)
- Daniela Gesell
- Farina Hodiamont
- , for the COMPANION study group
- Content type: Research
- Open Access
- Published: 17 November 2023
- Article: 183
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Healthcare practitioners’ perspectives of providing palliative care to patients from culturally diverse backgrounds: a qualitative systematic review
Authors
- Colette Burke
- Owen Doody
- Barbara Lloyd
- Content type: Research
- Open Access
- Published: 17 November 2023
- Article: 182
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Interrater agreement of multi-professional case review as reference standard for specialist palliative care need: a mixed-methods study
Authors (first, second and last of 9)
- Evelyn Müller
- Michael Josef Müller
- Gerhild Becker
- Content type: Research
- Open Access
- Published: 16 November 2023
- Article: 181
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Nurses’ perceptions of the challenges involved in providing of end-of-life care to people with heart failure: a context-based study
Authors (first, second and last of 5)
- Mostafa Akbarian-Rokni
- Marjan Mardani-Hamooleh
- Sally Pezaro
- Content type: Research
- Open Access
- Published: 15 November 2023
- Article: 180
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How do navigation programs address the needs of those living in the community with advanced, life-limiting Illness? A realist evaluation of programs in Canada
Authors (first, second and last of 9)
- Robin Urquhart
- Cynthia Kendell
- Grace Warner
- Content type: Research
- Open Access
- Published: 15 November 2023
- Article: 179
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Xerostomia in patients with advanced cancer: a scoping review of clinical features and complications
Authors
- Maria Walsh
- Norah Fagan
- Andrew Davies
- Content type: Research
- Open Access
- Published: 11 November 2023
- Article: 178
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Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children’s palliative care service over 14 years
Authors (first, second and last of 5)
- Sophie Bertaud
- Georgina Brightley
- Dominic Wilkinson
- Content type: Research
- Open Access
- Published: 10 November 2023
- Article: 177
This is part of 2 collections: -
Exploring the variations in death anxiety among oncology nurses in China: a latent class analysis
Authors (first, second and last of 9)
- Xian Chen
- Mengyu Su
- Zhu Zhu
- Content type: Research
- Open Access
- Published: 09 November 2023
- Article: 176
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Home care nurses facilitating planned home deaths. A focused ethnography
Authors
- Anne Kristine Sørstrøm
- Mette Spliid Ludvigsen
- Ingjerd GÃ¥re Kymre
- Content type: Research
- Open Access
- Published: 09 November 2023
- Article: 175
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Measurement and documentation of quality indicators for the end-of-life care of hospital patients a nationwide retrospective record review study
Authors (first, second and last of 6)
- F. M. Bijnsdorp
- B. Schouten
- S. M. van Schoten
- Content type: Research
- Open Access
- Published: 08 November 2023
- Article: 174
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Eye donation in hospice and hospital palliative care settings: perceptions, practice, and service development needs – findings from a national survey
Authors (first, second and last of 11)
- Tracy Long-Sutehall
- Anna Zatorska
- Mike Bracher
- Content type: Research
- Open Access
- Published: 08 November 2023
- Article: 173
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Caregiver strain among patients of palliative care in Sri Lanka: validation of modified caregiver strain index - Sinhala version
Authors (first, second and last of 5)
- U. Ramadasa
- S. Silva
- S. Lekamwasam
- Content type: Research
- Open Access
- Published: 04 November 2023
- Article: 172
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Implementation of the Richmond Agitation-Sedation Scale (palliative version) on an inpatient palliative care unit
Authors (first, second and last of 6)
- Shirley H. Bush
- Katarzyna Bronicki
- Monisha Kabir
- Content type: Research
- Open Access
- Published: 04 November 2023
- Article: 171
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Patients’ preferences for delivering bad news in palliative care in Ethiopia: a qualitative study
Authors
- Ephrem Abathun Ayalew
- Ditaba David Mphuthi
- Kholofelo Lorraine Matlhaba
- Content type: Research
- Open Access
- Published: 03 November 2023
- Article: 170
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The expression of ultimate life goals in co-creative art processes with palliative cancer patients
Authors (first, second and last of 8)
- Yvonne Weeseman
- Michael Scherer-Rath
- Hanneke W. M. van Laarhoven
- Content type: Research
- Open Access
- Published: 02 November 2023
- Article: 169
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Translation and cultural adaptation of the Greek integrated palliative care outcome scale (IPOS): challenges in a six-phase process
Authors (first, second and last of 5)
- Despina Anagnostou
- Stylianos Katsaragakis
- Aliki Tserkezoglou
- Content type: Research
- Open Access
- Published: 02 November 2023
- Article: 168
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My virtual home: needs of patients in palliative cancer care and content effects of individualized virtual reality – a mixed methods study protocol
Authors (first, second and last of 4)
- Christina Gerlach
- Anja Greinacher
- Cornelia Wrzus
- Content type: Study Protocol
- Open Access
- Published: 31 October 2023
- Article: 167
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Structural characteristics and contractual terms of specialist palliative homecare in Germany
Authors (first, second and last of 12)
- Maximiliane Jansky
- Lia Heyl
- for the SAVOIR Study Group
- Content type: Research
- Open Access
- Published: 31 October 2023
- Article: 166
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Online modules to improve health professionals’ end-of-life law knowledge and confidence: a pre-post survey study
Authors (first, second and last of 6)
- Rachel Feeney
- Lindy Willmott
- Ben White
- Content type: Research
- Open Access
- Published: 31 October 2023
- Article: 165
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Psychosocial functioning in individuals with advanced oesophago-gastric cancer: a mixed methods systematic review
Authors (first, second and last of 4)
- Cara Ghiglieri
- Martin Dempster
- Lisa Graham-Wisener
- Content type: Research
- Open Access
- Published: 28 October 2023
- Article: 164
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Psychosocial burdens in palliative care – a longitudinal cohort study in nursing homes and impacts of the COVID-19 pandemic
Authors
- Anna Bußmann
- Natalie Pomorin
- Content type: Research
- Open Access
- Published: 28 October 2023
- Article: 163
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Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Authors
- Adam Rapoport
- David B. Nicholas
- Rosslynn T. Zulla
- Content type: Research
- Open Access
- Published: 27 October 2023
- Article: 162
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Spiritual care from the perspective of family caregivers and nurses in palliative care: a qualitative study
Authors
- Aslı Kurtgöz
- Elif Keten Edis
- Content type: Research
- Open Access
- Published: 26 October 2023
- Article: 161
This is part of 2 collections: -
Continuous deep sedation at the end of life: a qualitative interview-study among health care providers on an evolving practice
Authors (first, second and last of 6)
- Madelon T Heijltjes
- Ghislaine JMW van Thiel
- Johannes JM van Delden
- Content type: Research
- Open Access
- Published: 26 October 2023
- Article: 160
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Appetite and its association with mortality in patients with advanced cancer – a Post-hoc Analysis from the Palliative D-study
Authors (first, second and last of 6)
- Charlotte Goodrose-Flores
- Stephanie E. Bonn
- Linda Björkhem-Bergman
- Content type: Research
- Open Access
- Published: 26 October 2023
- Article: 159
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Training nurses to facilitate and implement CURA in palliative care institutions: development and evaluation of a blended learning program
Authors (first, second and last of 7)
- Malene van Schaik
- Charlotte Kröger
- Suzanne Metselaar
- Content type: Research
- Open Access
- Published: 21 October 2023
- Article: 158
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POMSNAME: an aide-mémoire to improve the assessment and documentation of palliative care – a longitudinal project
Authors (first, second and last of 4)
- Ann Dadich
- Martyna Gliniecka
- Kerrie Womsley
- Content type: Research
- Open Access
- Published: 21 October 2023
- Article: 157
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Palliative care in Ethiopia’s rural and regional health care settings: a qualitative study of enabling factors and implementation challenges
Authors (first, second and last of 5)
- Atsede Aregay
- Margaret O’Connor
- Susan Lee
- Content type: Research
- Open Access
- Published: 17 October 2023
- Article: 156