Volume 27, Issue 1 | Quality of Life Research

Quality of Life Research

An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation - An Official Journal of the International Society of Quality of Life Research

Publishing model:: Hybrid

Submit your manuscript

Search all Quality of Life Research articles

Volume 27, Issue 1

January 2018

Special Section: Measuring What Matters

Issue Editors:

Steven I. Blum,
Sara Ahmed,
Emuella Flood,
Frans J. Oort,
Carolyn E. Schwartz

26 articles in this issue

Introduction to special section: measuring what matters
Steven I. Blum
Sara Ahmed
Carolyn E. Schwartz
Editorial 25 November 2017 Pages: 1 - 3
Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development
Hilary Wilson
Ebony Dashiell-Aje
Kathy Wyrwich
Special Section: Measuring What Matters (by invitation only) 19 April 2017 Pages: 5 - 16
Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute
Laura Forsythe
Andrea Heckert
Lori Frank
Special Section: Measuring What Matters (by invitation only) Open access 12 May 2017 Pages: 17 - 31
Moving from significance to real-world meaning: methods for interpreting change in clinical outcome assessment scores
Cheryl D. Coon
Karon F. Cook
Special Section: Measuring What Matters (by invitation only) 15 June 2017 Pages: 33 - 40
Prioritizing research topics: a comparison of crowdsourcing and patient registry
Anjali R. Truitt
Sarah E. Monsell
Danielle C. Lavallee
Special Section: Measuring What Matters (by invitation only) 05 April 2017 Pages: 41 - 50
Development of a care guidance index based on what matters to patients
John H. Wasson
Laura Soloway
Lynn Ho
Special Section: Measuring What Matters (by invitation only) 11 April 2017 Pages: 51 - 58
Measuring what matters MOST: validation of the Measure of Ovarian Symptoms and Treatment, a patient-reported outcome measure of symptom burden and impact of chemotherapy in recurrent ovarian cancer
Madeleine T. King
Martin R. Stockler
for the GCIG Symptom Benefit group
Special Section: Measuring What Matters (by invitation only) 16 December 2017 Pages: 59 - 74
Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder
Michael Brundage
Amanda Blackford
PRO Data Presentation Stakeholder Advisory Board (various names and locations)
OriginalPaper Open access 02 November 2017 Pages: 75 - 90
Self-rated health as a predictor of mid-term and long-term mortality in older Afro-Caribbeans hospitalised via the emergency department
Lidvine Godaert
C. Godard-Sebillotte
M. Dramé
OriginalPaper 01 September 2017 Pages: 91 - 96
Prevalence of patient-reported gastrointestinal symptoms and agreement with clinician toxicity assessments in radiation therapy for anal cancer
Ashlyn Tom
Antonia V. Bennett
Karyn A. Goodman
OriginalPaper 07 September 2017 Pages: 97 - 103
Effects of risk factors for and components of metabolic syndrome on the quality of life of patients with systemic lupus erythematosus: a structural equation modeling approach
Jeong-Won Lee
Ji-Hyoun Kang
Shin-Seok Lee
OriginalPaper 22 August 2017 Pages: 105 - 113
Health-related quality of life and its determinants in patients with metastatic renal cell carcinoma
S. de Groot
W. K. Redekop
C. A. Uyl-de Groot
OriginalPaper Open access 15 September 2017 Pages: 115 - 124
Everyday life following hematopoietic stem cell transplantation: decline in physical symptoms within the first month and change-related predictors
Aleksandra Kroemeke
Małgorzata Sobczyk-Kruszelnicka
Zuzanna Kwissa-Gajewska
OriginalPaper Open access 12 September 2017 Pages: 125 - 135
Combat exposure, emotional and physical role limitations, and substance use among male United States Army Reserve and National Guard soldiers
R. A. Hoopsick
B. M. Vest
G. G. Homish
OriginalPaper 18 September 2017 Pages: 137 - 147
Assessing health-related quality of life in patients with breast cancer: a reply to Maratia et al
Karin Ribi
Alan Coates
Jürg Bernhard
Commentary 05 September 2017 Pages: 149 - 152
The relationship of five boarding school experiences and physical health status among Northern Plains Tribes
Ursula Running Bear
Calvin D. Croy
The AI-SUPERPFP Team
Brief Communication 18 November 2017 Pages: 153 - 157
Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
P. F. Limperg
L. Haverman
M. A. Grootenhuis
OriginalPaper Open access 12 September 2017 Pages: 159 - 171
How is weight stigma related to children’s health-related quality of life? A model comparison approach
Veronica Guardabassi
Alberto Mirisola
Carlo Tomasetto
OriginalPaper 07 September 2017 Pages: 173 - 183
The roles of physical activity and sedentary behavior on Hispanic children’s mental health: a motor skill perspective
Xiangli Gu
M. Jean Keller
Tao Zhang
OriginalPaper 16 August 2017 Pages: 185 - 193
Perceived medication adherence barriers mediating effects between gastrointestinal symptoms and health-related quality of life in pediatric inflammatory bowel disease
James W. Varni
Robert J. Shulman
On Behalf of the Pediatric Quality of Life Inventory™ Gastrointestinal Symptoms Module Testing Study Consortium
OriginalPaper 08 September 2017 Pages: 195 - 204
Physical activity and health-related quality of life among schoolchildren from disadvantaged neighbourhoods in Port Elizabeth, South Africa
Marina Salvini
Stefanie Gall
Markus Gerber
OriginalPaper 30 September 2017 Pages: 205 - 216
Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions
Christopher B. Forrest
Janine Devine
Ulrike Ravens-Sieberer
OriginalPaper 21 August 2017 Pages: 217 - 234
Differential item functioning by language on the PROMIS^® physical functioning items for children and adolescents
Ron D. Hays
José Luis Calderón
Sylvia H. Paz
OriginalPaper 05 September 2017 Pages: 235 - 247
Assessing responsiveness over time of the PROMIS^® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease
Bryce B. Reeve
Lloyd J. Edwards
Darren A. DeWalt
OriginalPaper 07 September 2017 Pages: 249 - 257
Assessing the measurement invariance of the Brief Multidimensional Students’ Life Satisfaction Scale in Chinese and American adolescents
Yifang Zeng
Yu Ling
Peng Fu
OriginalPaper 14 August 2017 Pages: 259 - 266
Cross-cultural adaptation and validation of the Danish version of the Short Musculoskeletal Function Assessment questionnaire (SMFA)
Marianne Lindahl
Signe Andersen
Eirikur Benedikz
Brief Communication 04 July 2017 Pages: 267 - 271