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Potential Impact of Genomic Information on Childhood Sibling Relationships

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Handbook of Genomics and the Family

Part of the book series: Issues in Clinical Child Psychology ((ICCP))

Abstract

With the tremendous growth and excitement in the field of genomics, there is reason to be hopeful that evidence-based data on the experience of siblings will follow. As the field prospers, sibling relationships will be challenged by major issues, including differential interest in seeking carrier, pre-symptomatic and susceptibility testing, the handling of differential genomic data between sibling dyads, and the resultant apprehension and mastery. The potential impact of genomic information on childhood sibling relationships is largely not documented. Until the time that we have research on these issues, we turn to the literature on the impact of genetic information and illness on siblings and present existing data, largely based on conditions arising from single gene disorders.

This work was developed with support from the New England Genetics Collaborative, funded by a federal cooperative agreement Health Resources and Services Administration, CFDA #93.110, U22MC10980 (to J.F.), and by the Intramural Research Program of the National Institutes of Health, National Cancer Institute, Pediatric Oncology Branch (to L.W. and T.B.).

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Acknowledgments

This work was developed with support from the New England Genetics Collaborative, funded by a federal cooperative agreement from the United States Department of Health and Human Services, Health Resources and Services Administration, CFDA #93.110, U22MC10980 (to J.F.), and by the Intramural Research Program of the National Institutes of Health, National Cancer Institute, Pediatric Oncology Branch (to L.W. and T.B.). Angie Boyce was helpful in manuscript preparation.

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  1. Dartmouth Medical School, Lebanon, NH, USA

    Joanna Fanos

  2. National lnstitutes of Health, Bethesda, MD, USA

    Lori Wiener

  3. Children’s National Medical Center, Washington, DC, USA

    Tara Brennan

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  1. Division of Health Outcomes & Health Beh, Department of Oncology, Georgetown University, Whitehaven St, NW 3300, Washington, 20007, District of Columbia, USA

    Kenneth P. Tercyak

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Fanos, J., Wiener, L., Brennan, T. (2010). Potential Impact of Genomic Information on Childhood Sibling Relationships. In: Tercyak, K. (eds) Handbook of Genomics and the Family. Issues in Clinical Child Psychology. Springer, Boston, MA. https://doi.org/10.1007/978-1-4419-5800-6_6

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