Skip to main content

Private Parties, Public Duties?

The Shifting Role of Insurance Companies in the Genetics Era

  • Chapter
Genetic Information

Abstract

What is the nature of insurance and how should it be distributed? Do private insurers have public duties in this respect, and if so: to what extent? This paper addresses these questions in the context of the debate on the use of genetic information by insurance companies in countries with a universal health care system. I will develop an argument based on Michael Walzer’s theory of justice. The attention to the cultural determinants of justice in his approach are particularly relevant in light of what I qualify as the “shifting role of insurance companies in the genetic era.” It should become clear that I do not argue that the role of insurance is necessarily changing as a result of the developments in genetics. Rather, genetic developments have to be placed in the context of systematic reductions in health care and welfare budgets in many states which claim to have a generous system in that respect. The increasing private involvement in health care and, in general, the essential role that several forms of insurance start to play as essential means to provide protection against misfortune, might offer sufficient grounds to argue that insurance companies are now playing a different role in society. Developments in genetic testing simply add another dimension to this societal change. I will argue that genetic developments could enable an increased individual differentiation on the basis of risk-status. As a result, issues of equitable access to health care and social services will be highlighted.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  • Alper, J.S. et al. (1994), ‘Genetic Discrimination and Screening for Hemochromatosis’, Journal of Public Health Policy, vol. 15, pp.345–358.

    Article  PubMed  CAS  Google Scholar 

  • Anderson, M.C. (1992), ‘Genetic Testing in Insurance Underwriting: A Blessing or a Curse? An Examination of the Tension between Economics and Equity in Using Genetic Testing in Risk Classification.’ Creighton Law Review, vol.25, pp. 1499–1535.

    PubMed  Google Scholar 

  • Association of British Insurers (1997), Genetic Testing: ABI Code of Practice, London.

    Google Scholar 

  • Billings, P. et al. (1992), ‘Discrimination as a consequence of genetic testing’, American Journal of Human Genetics, vol.50, pp.476–482.

    PubMed  CAS  Google Scholar 

  • Davis, H.R. and Mitrius, J.V. (1996), ‘Note: Recent Legislation on Genetics and Insurance’ Jurimetrics, vol.37, pp.69–82

    PubMed  Google Scholar 

  • Dreyfuss, R.C. and Nelkin, D. (1992), ‘The Jurisprudence of Genetics’, Vanderbilt Law Review, vol.45, pp.313–348.

    PubMed  Google Scholar 

  • Geller, L.N. (1996), ‘Individual, Family, and Societal Dimensions of Genetic Discrimination: A Case Study Analysis’ Science and Engineering Ethics, vol.2, pp.71–88.

    Article  PubMed  Google Scholar 

  • ‘Genetic Testing and Insurance. The Ad Hoc Committee on Genetic Testing/Insurance Issues’ (1995) American Journal of Human Genetics, vol.56, pp.327–331.

    Google Scholar 

  • Lemmens, T. (1997)’ “What About Your Genes?” Ethical, Legal and Policy Dimensions of Genetics in the Workplace’, Politics and the Life Sciences, vol. 16, pp.57–75.

    Google Scholar 

  • Lemmens, T. and Bahamin, P. (1996) Genetics in Life, Disability and Additional Health Insurance in Canada: a Comparative Legal and Ethical Analysis (Report Submitted to the Medical, Ethical, Legal and Social Issues Advisory Committee of the Canadian Genome and Analysis and Technology Programme) Montreal: Centre de Recherche en Droit Public.

    Google Scholar 

  • Lowden, R. (1996), ‘Certificates of Confidentiality’ (letter to the editor) American Journal of Human Genetics, vol. 58, pp.436–437.

    PubMed  CAS  Google Scholar 

  • National Human Genome Research Institute (1997), Health Insurance in the Age of Genetics, Department of Health and Human Services (http://www.nhgri.nih.gov/NEWS/Insurance/)

  • Natowicz, M.R., Alper J.K. and Alper J.S. (1992), ‘Genetic Discrimination and the Law’ American Journal of Human Genetics, vol.50, pp.465–475.

    PubMed  CAS  Google Scholar 

  • NIH-DOE Working Group on Ethical, Legal and Social Implications of Human Genome Research (1993) Genetic Information and Health Insurance, Washington, D.C.: Human Genome Project, HIH Pub. No. 93-3686.

    Google Scholar 

  • Nuffield Council on Bioethics (1993) Genetic Screening: Ethical Issues, London.

    Google Scholar 

  • Pear, R. (1997), ‘States Pass Laws to Regulate Use of Genetic Testing’ New York Times, October 18, pp.A1&A8.

    Google Scholar 

  • Rothenberg, K.H. (1995), ‘Genetic Information and Health Insurance: State Legislative Approaches’, Journal of Law, Medicine and Ethics, vol. 23, pp.312–319.

    Article  CAS  Google Scholar 

  • Sandberg, P. (1995), ‘Genetic Information and Life Insurance: A Proposal for an Ethical European Policy’, Social Sciences and Medicine, vol.40, pp. 1549–1559.

    Article  CAS  Google Scholar 

  • Wolf, S. (1995), ‘Beyond Genetic Discrimination: Towards the Broader Harm of Geneticism’, Journal of Law, Medicine and Ethics, vol.23, pp.345–353.

    Article  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 1999 Kluwer Academic/Plenum Publishers

About this chapter

Cite this chapter

Lemmens, T. (1999). Private Parties, Public Duties?. In: Thompson, A.K., Chadwick, R.F. (eds) Genetic Information. Springer, Boston, MA. https://doi.org/10.1007/978-0-585-34586-4_3

Download citation

  • DOI: https://doi.org/10.1007/978-0-585-34586-4_3

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-0-306-46052-4

  • Online ISBN: 978-0-585-34586-4

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics