Skip to main content

Pathways to Brain Tumor Advocacy

  • Chapter
  • First Online:
Late Effects of Treatment for Brain Tumors

Part of the book series: Cancer Treatment and Research ((CTAR,volume 150))

  • 1285 Accesses

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 89.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 119.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. http://planning.cancer.gov/pdfprgreports/2000braintumor.pdf

  2. This chapter uses the definition of survivor on the NCI website: “An individual is considered a cancer survivor from the time of diagnosis, through the balance of his or her life. Family members, friends, and caregivers are also impacted by the survivorship experience and are therefore included in this definition. Adapted from the National Coalition for Cancer Survivorship. http://cancercontrol.cancer.gov/ocs/definitions.html.

  3. CBTRUS. Statistical Report: Primary Brain Tumors in the United States, 1998–2002. Published by the Central Brain Tumor Registry of the United States, 2005.

    Google Scholar 

  4. http://planning.cancer.gov/disease/Brain-Snapshot.pdf

  5. http://seer.cancer.gov/statfacts/html/brain_print.html

  6. CBTRUS (2005). Statistical Report: Primary Brain Tumors in the United States, 1998–2002. Published by the Central Brain Tumor Registry of the United States.

    Google Scholar 

  7. While some brain tumors can be benign or slow growing, all are neoplasia and can be disabling. “Cancer” is used here to apply to all types of brain tumors.

    Google Scholar 

  8. Epstein S. Impure Science: AIDS,Activism,and the Politics of Knowledge. Berkeley, CA: University of California Press, 1996.

    Google Scholar 

  9. Effective Lobbying Increases U.S. Funds for Breast Cancer Research. New York Times, October 19, 1992.

    Google Scholar 

  10. Clark E, Stovall E. Advocacy: the cornerstone of cancer survivorship. Cancer Pract. 1996;4(5):239–244.

    PubMed  CAS  Google Scholar 

  11. Weiner SL, McCabe MS, Smith G, Monaco GP, Fiduccia D. Pediatric cancer: Advocacy, legal, insurance and employment Issues. In: Pizzo P, and Poplack D, eds. Principles and Practice of Pediatric Oncology, 4th ed. Philadelphia: Lippincott Raven Publishers, 2001.

    Google Scholar 

  12. Hoffman B, Stovall E. Survivorship perspectives and advocacy. J Clin Oncol. 2006;24:5154–5159.

    Article  PubMed  Google Scholar 

  13. For example, the American Brain Tumor Association, http://www.abta.org, the National Brain Tumor Foundation, http://www.braintumor.org, and the Children’s Brain Tumor Foundation, http://www.cbtf.org.

  14. National Cancer Institute 2006 Fact Book, http://obf.cancer.gov/financial/attachments/06Factbk.pdf.

  15. Personal communication, Brain Tumor Funders’ Collaborative.

    Google Scholar 

  16. See for example, the Sontag Foundation at http://www.sontagfoundation.org

  17. http://www.braintumour.ca/braintumour.nsf/eng/research

  18. American Brain Tumor Association and Pediatric Brain Tumor Foundation of the US.

    Google Scholar 

  19. http://abta.org/index.cfm?contentid=38 http://www.braintumor.org.http://www.sontagfoundation.org.

  20. http://spores.nci.nih.gov/current/brain/brain.html

  21. http://www.pbtc.org

  22. http://www.pbtfus.org

  23. http://www.fightplga.org

  24. http://www.tugmcgraw.org http://www.gullikson.org

  25. http://www.braintumorfunders.org

  26. http://getinvolved.nih.gov/

  27. Institute of Medicine, Committee on the NIH Research Priority-Setting Process, Scientific Opportunities and Public Needs: Improving Priority Setting and Public Input at the National Institutes of Health, 1998.

    Google Scholar 

  28. North American Brain Tumor Consortium and New Approached to Brain Tumor Therapy (which at this writing are merging) and Pediatric Brain Tumor Consortium.

    Google Scholar 

  29. http://www.nabraintumor.org

  30. http://www.cancerleadership.org

  31. http://www.cabto.ca

Download references

Acknowledgments

The authors would like to thank Elizabeth Goss, long-time policy counsel to NABTC, for her substantive contributions and commitment to advocacy for brain tumor patients, survivors and families.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Susan L. Weiner PhD .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2009 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Weiner, S.L., Lustig, C. (2009). Pathways to Brain Tumor Advocacy. In: Goldman, S., Turner, C. (eds) Late Effects of Treatment for Brain Tumors. Cancer Treatment and Research, vol 150. Springer, Boston, MA. https://doi.org/10.1007/b109924_25

Download citation

  • DOI: https://doi.org/10.1007/b109924_25

  • Published:

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-0-387-77102-1

  • Online ISBN: 978-0-387-77103-8

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics