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Healthcare Professional Narratives on Moral Distress: Disciplinary Perspectives

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Moral Distress in the Health Professions

Abstract

Moral distress, although not always recognized or named as such, is a phenomenon experienced by healthcare professionals from most disciplines and in diverse settings. Although the causes and experience of moral distress may vary with role responsibilities and practice context, powerlessness and lack of control over the situation are common themes across the spectrum. This chapter captures the perspectives of contributors who are nurses, doctors, social workers, chaplains, and pharmacists about their experience of moral distress as healthcare professionals.

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References

  1. Jameton A. Nursing practice: the ethical issues. Englewood Cliffs: Prentice Hall; 1984.

    Google Scholar 

  2. Jameton A. A reflection on moral distress in nursing together with a current application of the concept. J Bioeth Inq. 2013;10(3):297–308. https://doi.org/10.1007/s11673-013-9466-3.

    Article  PubMed  Google Scholar 

  3. Storch J, Rodney P, Varcoe C, Pauly B, Starzomski R, Stevenson L, et al. Leadership for ethical policy and practice (LEPP): participatory action project. Nurs Leadersh (Tor Ont). 2009;22(3):68–80.

    Article  Google Scholar 

  4. Davis A, Aroskar M. Ethical dilemmas & nursing practice. Saddle River: Appleton Century Crofts; 1978.

    Google Scholar 

  5. Stein LI. The doctor-nurse game. Arch Gen Psychiatry. 1967;16(6):699–703.

    Article  CAS  PubMed  Google Scholar 

  6. Stein LI. The doctor-nurse game. Am J Nurs. 1968;68(1):101–5.

    Google Scholar 

  7. Stein LI, Watts DT, Howell T. The doctor-nurse game revisited. N Engl J Med. 1990;322(8):546–9. https://doi.org/10.1056/NEJM199002223220810.

    Article  CAS  PubMed  Google Scholar 

  8. Davis AJ, Fowler M, Aroskar M. Ethical dilemmas & nursing. 5th ed. Boston: Pearson; 2010.

    Google Scholar 

  9. Kramer M. Reality shock: why nurses leave nursing. St. Louis: C.V. Mosby; 1974.

    Google Scholar 

  10. Vaughn RH. The actual incidence of moral problems in nursing: a preliminary study in empirical ethics. Washington DC: Catholic University of America; 1935.

    Google Scholar 

  11. Lemkuhl A. Theologia Moralis (2 vols. cpl/2 Bande)- Vol 1. Theologiam moralem generalem et ex speciali theologia morali tractatus de virtutibus et officiis vitae christianae/Vol, II. Theologiae moralis specialis parten secundam seu tractatus De subsidiis vitae christianae cum duabus appendicibus. Herder: Frigurgi Brisgoviae; 1910.

    Google Scholar 

  12. Parsons SE. Nursing problems and obligations. Boston: M. Barrows & Co.; 1928. p. 109.

    Google Scholar 

  13. American Nurses’ Association (ANA). Code of ethics for nurses with interpretive statements. Silver Spring: American Nurses Association; 2015. p. 37.

    Google Scholar 

  14. Robb IAH. Nursing ethics: for hospital and private use. New York: Koeckert; 1900. p. 256–7.

    Google Scholar 

  15. Hirschman AO. Exit, voice, and loyalty: responses to decline in firms, organizations and states. Cambridge: Harvard University Press; 1970.

    Google Scholar 

  16. Donley R, Flaherty MJ. Revisiting the American Nurses Association’s first position on education for nurses. Online J Issues Nurs. 2008;13(2). http://www.nursingworld.org/MainMenuCategories/ANAMarketplace/ANAPeriodicals/OJIN/TableofContents/vol132008/No2May08/ArticlePreviousTopic/EntryIntoPracticeUpdate.html

  17. American Nurses’ Association (ANA). Education for nursing. Am J Nurs. 1965;65(12):106–11.

    Google Scholar 

  18. Fowler MD. Heritage ethics: toward a thicker account of nursing ethics. Nurs Ethics. 2016;23(1):7–21. Published online before print November 23, 2015

    Article  PubMed  Google Scholar 

  19. Fowler M. Why the history of nursing ethics matters. Nurs Ethics. 2017;24(3):292–304.

    Article  PubMed  Google Scholar 

  20. Fowler M. Guide to nursing’s social policy statement: understanding the essence of the profession from social contract to social covenant. Silver Spring: American Nurses Association; 2015.

    Google Scholar 

  21. Sullivan WM. Work and integrity: the crisis and promise of professionalism in America. 2nd ed. San Francisco, CA: Jossey-Bass; 2005. p. 2–3.

    Google Scholar 

  22. Sullivan W, Benner P. Challenges to professionalism: work integrity and the call to renew and strengthen the social contract of the professions. Am J Crit Care. 2005;14(1):79.

    Google Scholar 

  23. Johnstone MJ, Hutchinson A. ‘Moral distress’ – time to abandon a flawed nursing construct? Nurs Ethics. 2015;22(1):10.

    Article  Google Scholar 

  24. Fowler M, Mahon K. Moral development and clinical decision making. Nurs Clin North Am. 1979;14(1):3–12. Publication of authorship correction in subsequent issue

    Google Scholar 

  25. McCarthy J, Gastmans C. Moral distress: a review of the argument-based nursing ethics literature. Nurs Ethics. 2015;22(1):131–52. https://doi.org/10.1177/0969733014557139.

    Article  PubMed  Google Scholar 

  26. McCarthy J, Deady R. Moral distress reconsidered. Nurs Ethics. 2008;15(2):254–62.

    Article  PubMed  Google Scholar 

  27. Peter E, Liaschenko J. Moral distress reexamined: a feminist interpretation of nurses’ identities, relationships, and responsibilites. J Bioeth Inq. 2013;10(3):337–45. https://doi.org/10.1007/s11673-013-9456-5.

    Article  PubMed  Google Scholar 

  28. Peter E. Guest editorial: three recommendations for the future of moral distress scholarship. Nurs Ethics. 2015;22(1):3–4.

    Article  PubMed  Google Scholar 

  29. Jameton A. What moral distress in nursing history could suggest about the future of health care. AMA J Ethics. 2017;19(6):617–28.

    Article  PubMed  Google Scholar 

  30. Baer ED, D’Antonio P, Rinker S, Lanaugh JE. Enduring issues in American nursing. New York: Springer; 2002. p. 337.

    Google Scholar 

  31. Craig SL, Muskat B. Bouncers, brokers, and glue: the self-described roles of social workers in urban hospitals. Health Soc Work. 2013;38(1):7–16.

    Article  PubMed  Google Scholar 

  32. Gregorian C. A career in hospital social work: do you have what it takes? Soc Work Health Care. 2005;40(3):1–14. https://doi.org/10.1300/J010v40n03_01.

    Article  PubMed  Google Scholar 

  33. Congress E. What social workers should know about ethics: understanding and resolving practice dilemmas. Adv Soc Work. 2000;1(1):1–22.

    Google Scholar 

  34. Mattison M. Ethical decision making: the person in the process. Soc Work. 2000;45(3):201–12.

    Article  CAS  PubMed  Google Scholar 

  35. Weinberg M. Moral distress: a missing but relevant concept for ethics in social work. Can Soc Work Rev. 2009;26(2):139–51.

    Google Scholar 

  36. Epstein E, Delgado S. Understanding and addressing moral distress. Online J Issues Nurs. 2010;15(3):1. Manuscript 1.

    Google Scholar 

  37. Fourie C. Moral distress and moral conflict in clinical ethics. Bioethics. 2015;29(2):91–7. https://doi.org/10.1111/bioe.12064.

    Article  PubMed  Google Scholar 

  38. Hamric AB. A case study of moral distress. J Hosp Palliat Care. 2014;16(8):457–63.

    Google Scholar 

  39. Hamric AB, Blackhall LJ. Nurse-physician perspectives on the care of dying patients in intensive care units: collaboration, moral distress, and ethical climate. Crit Care Med. 2007;35(2):422–9. https://doi.org/10.1097/01.CCM.0000254722.50608.2D.

    Article  PubMed  Google Scholar 

  40. Hamric AB, Borchers CT, Epstein EG. Development and testing of an instrument to measure moral distress in healthcare professionals. AJOB Prim Res. 2012;3(2):1–9.

    Article  Google Scholar 

  41. Varcoe C, Pauly B, Storch J, Newton L, Makaroff K. Nurses’ perceptions of and responses to morally distressing situations. Nurs Ethics. 2012;19(4):488–500. https://doi.org/10.1177/0969733011436025.

    Article  PubMed  Google Scholar 

  42. Wiegand DL, Funk M. Consequences of clinical situations that cause critical care nurses to experience moral distress. Nurs Ethics. 2012;19(4):479–87. https://doi.org/10.1177/0969733011429342.

    Article  PubMed  Google Scholar 

  43. Allen R, Judkins-Cohn T, deVelasco R, Forges E, Lee R, Clark L, Procunier M. Moral distress among healthcare professionals at a health system. JONAS Healthc Law Ethics Regul. 2013;15(3):111–118; . quiz 119-120. https://doi.org/10.1097/NHL.0b013e3182a1bf33.

    Article  PubMed  Google Scholar 

  44. de Veer AJ, Francke AL, Struijs A, Willems DL. Determinants of moral distress in daily nursing practice: a cross sectional correlational questionnaire survey. Int J Nurs Stud. 2013;50(1):100–8. https://doi.org/10.1016/j.ijnurstu.2012.08.017.

    Article  PubMed  Google Scholar 

  45. Moffatt M. Reducing moral distress in case managers. Prof Case Manag. 2014;19(4):173–86.

    Article  Google Scholar 

  46. Trotochaud K, Coleman JR, Krawiecki N, McCracken C. Moral distress in pediatric healthcare providers. J Pediatr Nurs. 2015;30(6):908–14. https://doi.org/10.1016/j.pedn.2015.03.001.

    Article  PubMed  Google Scholar 

  47. Bruce CR, Miller SM, Zimmerman JL. A qualitative study exploring moral distress in the ICU team: the importance of unit functionality and intrateam dynamics. Crit Care Med. 2015;43(4):823–31. https://doi.org/10.1097/CCM.0000000000000822.

    Article  PubMed  Google Scholar 

  48. Houston S, Casanova MA, Leveille M, Schmidt KL, Barnes SA, Trungale KR, Fine RL. The intensity and frequency of moral distress among different healthcare disciplines. J Clin Ethics. 2013;24(2):98–112. https://www.ninr.nih.gov.

    PubMed  Google Scholar 

  49. Manttari-van der Kuip M. Moral distress among social workers: the role of insufficient resources. Int J Soc Welf. 2016;25(1):86–97.

    Article  Google Scholar 

  50. Ulrich C, O’Donnell P, Taylor C, Farrar A, Danis M, Grady C. Ethical climate, ethics stress, and the job satisfaction of nurses and social workers in the United States. Soc Sci Med. 2007;65(8):1708–19. https://doi.org/10.1016/j.socscimed.2007.05.050.

    Article  PubMed  PubMed Central  Google Scholar 

  51. Blomberg H, Kallio J, Kroll C, Saarinen A. Job stress among social workers: determinants and attitude effects in the Nordic countries. Br J Soc Work. 2015;45(7):2089–105.

    Article  Google Scholar 

  52. Huxley P, Evans S, Gately C, Webber M, Mears A, Pajak S, Kendall T, Medina J, Katona C. Stress and pressures in mental health social work: the worker speaks. Br J Soc Work. 2005;35(7):1063–79.

    Article  Google Scholar 

  53. Kim H, Stoner M. Burnout and turnover intention among social workers: effects of role stress, job autonomy and social support. Adm Soc Work. 2008;32(3):5–25.

    Article  Google Scholar 

  54. Rossi A, Cetrano G, Pertile R, Rabbi L, Donisi V, Grigoletti L, Curtolo C, Tansella M, Thornicroft G, Amaddeo F. Burnout, compassion fatigue, and compassion satisfaction among staff in community-based mental health services. Psychiatry Res. 2012;200(2–3):933–8.

    Article  PubMed  Google Scholar 

  55. DiFranks NN. Social workers and the NASW code of ethics: belief, behavior, disjuncture. Soc Work. 2008;53(2):167–76.

    Article  PubMed  Google Scholar 

  56. Fenton J. An analysis of ‘ethical stress’ in criminal justice social work in Scotland: the place of values. Br J Soc Work. 2015;45:1415–32.

    Article  Google Scholar 

  57. Taylor MF. Professional dissonance: a promising concept for clinical social work. Smith College Studies in Social Work. 2007;77(1):89–99.

    Article  Google Scholar 

  58. Lev S, Ayalon L. Moral distress among long-term care social workers: questionnaire validation. Research on social work practice from Online First. 2016. Retrieved from http://journals.sagepub.com/doi/abs/10.1177/1049731516672070.

  59. Corley MC, Elswick RK, Gorman M, Clor T. Development and evaluation of a moral distress scale. J Adv Nurs. 2001;33(2):250–6.

    Article  CAS  PubMed  Google Scholar 

  60. Hamric AB. Empirical research on moral distress: issues, challenges, and opportunities. HEC Forum. 2012;24(1):39–49. https://doi.org/10.1007/s10730-012-9177-x.

    Article  PubMed  Google Scholar 

  61. Fantus S, Greenberg RA, Muskat B, Katz D. Exploring moral distress for hospital social workers. The British Journal of Social Work. 2017. Online First .

    Google Scholar 

  62. Cullen AF. Leaders in our own lives: suggested indications for social work leadership from a study of social work practice in a palliative care setting. Br J Soc Work. 2013;43(8):1527–44.

    Article  Google Scholar 

  63. Otis-Green S, Sidhu RK, Del Ferraro C, Ferrell B. Integrating social work into palliative care for lung cancer patients and families: a multidimensional approach. J Psychosoc Oncol. 2014;32(4):431–46. https://doi.org/10.1080/07347332.2014.917140.

    Article  PubMed  PubMed Central  Google Scholar 

  64. Stein GL, Fineberg IC. Advance care planning in the USA and UK: a comparative analysis of policy, implementation and the social work role. Br J Soc Work. 2013;43(2):233–48.

    Article  Google Scholar 

  65. Kalliath P, Kalliath T. Does job satisfaction mediate the relationship between work-family conflict and psychological strain? A study of Australian social workers. Asia Pac J Soc Work Dev. 2013;23(2):91–105.

    Article  Google Scholar 

  66. Manttari-van der Kuip M. The deteriorating work-related well-being among statutory social workers in a rigorous economic context. Eur J Soc Work. 2014;17(5):672–88.

    Article  Google Scholar 

  67. Sutinen R, Kivimaki M, Elovainio M, Virtanen M. Organizational fairness and psychological distress in hospital physicians. Scand J Public Health. 2002;30(3):209–15. https://doi.org/10.1080/14034940210133843.

    Article  CAS  PubMed  Google Scholar 

  68. Auerbach C, Mason SE, Heft Laporte H. Evidence that supports the value of social work in hospitals. Soc Work Health Care. 2007;44(4):17–32. https://doi.org/10.1300/J010v44n04_02.

    Article  PubMed  Google Scholar 

  69. Lloyd C, King R, Chenoweth L. Social work, stress and burnout: a review. J Ment Health. 2002;11(3):255–65.

    Article  Google Scholar 

  70. Gibson M. Social worker shame: a scoping review. Br J Soc Work. 2016;46(2):549–65.

    Article  Google Scholar 

  71. Jansson BS, Dodd SJ. Ethical activism: strategies for empowering medical social workers. Soc Work Health Care. 2002;36(1):11–28. https://doi.org/10.1300/J010v36n01_02.

    Article  PubMed  Google Scholar 

  72. Beddoe L, Davys AM, Adamson C. Never trust anybody who says “I don’t need supervision”: practitioners’ beliefs about social worker resilience. Pract Soc Work Action. 2014;26(2):113–30.

    Google Scholar 

  73. Bogo M, Paterson J, Tufford L, King R. Supporting front-line practitioners’ professional development and job satisfaction in mental health and addiction. J Interprof Care. 2011;25(3):209–14. https://doi.org/10.3109/13561820.2011.554240.

    Article  PubMed  Google Scholar 

  74. Landau R. Ethical dilemmas in general hospitals: social workers’ contribution to ethical decision-making. Soc Work Health Care. 2000;32(2):75–92.

    Article  CAS  PubMed  Google Scholar 

  75. Acker GM. The challenges in providing services to clients with mental illness: managed care, burnout and somatic symptoms among social workers. Community Ment Health J. 2010;46(6):591–600. https://doi.org/10.1007/s10597-009-9269-5.

    Article  PubMed  Google Scholar 

  76. Leichtentritt RD. Beyond favourable attitudes of end-of-life rights: the experiences of Israeli health care social workers. Br J Soc Work. 2011;41(8):1459–76.

    Article  Google Scholar 

  77. Sabin JE. Using moral distress for organizational improvement. J Clin Ethics. 2017;28(1):33–6.

    PubMed  Google Scholar 

  78. Whitehead PB, Herbertson RK, Hamric AB, Epstein EG, Fisher JM. Moral distress among healthcare professionals: report of an institution-wide survey. J Nurs Scholarsh Off Publ Sigma Theta Tau Int Honor Soc Nurs. 2015;47(2):117–25. https://doi.org/10.1111/jnu.12115.

    Google Scholar 

  79. Shanafelt TD, Balch CM, Bechamps G, et al. Burnout and medical errors among American surgeons. Ann Surg. 2010;251(6):995–1000. https://doi.org/10.1097/SLA.0b013e3181bfdab3.

    Article  PubMed  Google Scholar 

  80. Fuks A, Brawer J, Boudreau JD. The foundation of physicianship. Perspect Biol Med. 2012;55(1):114–26. https://doi.org/10.1353/pbm.2012.0002.

    Article  PubMed  Google Scholar 

  81. Minogue B. The two fundamental duties of the physician. Acad Med J Assoc Am Med Coll. 2000;75(5):431–42.

    Article  CAS  Google Scholar 

  82. Cruess SR, Cruess RL. Professionalism and medicine’s social contract with society. Virtual Mentor VM. 2004;6(4). https://doi.org/10.1001/virtualmentor.2004.6.4.msoc1-0404.

  83. Long C, Tsay EL, Jacobo SA, Popat R, Singh K, Chang RT. Factors associated with patient press ganey satisfaction scores for ophthalmology patients. Ophthalmology. 2016;123(2):242–7. https://doi.org/10.1016/j.ophtha.2015.09.044.

    Article  PubMed  Google Scholar 

  84. Sinsky C, Colligan L, Li L, et al. Allocation of physician time in ambulatory practice: a time and motion study in 4 specialties. Ann Intern Med. 2016;165(11):753–60. https://doi.org/10.7326/M16-0961.

    Article  PubMed  Google Scholar 

  85. Rushton CH, Kaszniak AW, Halifax JS. A framework for understanding moral distress among palliative care clinicians. J Palliat Med. 2013;16(9):1074–9. https://doi.org/10.1089/jpm.2012.0490.

    Article  PubMed  Google Scholar 

  86. Austin CL, Saylor R, Finley PJ. Moral distress in physicians and nurses: impact on professional quality of life and turnover. Psychol Trauma Theory Res Pract Policy. 2017;9(4):399–406. https://doi.org/10.1037/tra0000201.

    Article  Google Scholar 

  87. Fumis RRL, Junqueira Amarante GA, de Fátima Nascimento A, Vieira Junior JM. Moral distress and its contribution to the development of burnout syndrome among critical care providers. Ann Intensive Care. 2017;7(1):71. https://doi.org/10.1186/s13613-017-0293-2.

    Article  PubMed  PubMed Central  Google Scholar 

  88. Wurm W, Vogel K, Holl A, et al. Depression-burnout overlap in physicians. PLoS One. 2016;11(3):e0149913. https://doi.org/10.1371/journal.pone.0149913. van Wouwe J, ed.

    Article  PubMed  PubMed Central  CAS  Google Scholar 

  89. Bianchi R, Schonfeld IS, Laurent E. Physician burnout is better conceptualised as depression. Lancet Lond Engl. 2017;389(10077):1397–8. https://doi.org/10.1016/S0140-6736(17)30897-8.

    Article  Google Scholar 

  90. Center C, Davis M, Detre T, et al. Confronting depression and suicide in physicians: a consensus statement. JAMA. 2003;289(23):3161–6. https://doi.org/10.1001/jama.289.23.3161.

    Article  PubMed  Google Scholar 

  91. Campbell SM, Ulrich CM, Grady C. A broader understanding of moral distress. Am J Bioeth AJOB. 2016;16(12):2–9. https://doi.org/10.1080/15265161.2016.1239782.

    Article  PubMed  Google Scholar 

  92. Larson CP, Dryden-Palmer KD, Gibbons C, Parshuram CS. Moral distress in PICU and neonatal ICU practitioners: a cross-sectional evaluation. Pediatr Crit Care Med. 2017;18(8):e318–26. https://doi.org/10.1097/PCC.0000000000001219.

    Article  PubMed  Google Scholar 

  93. Garros D, Austin W, Carnevale FA. Moral distress in pediatric intensive care. JAMA Pediatr. 2015;169(10):885–6. https://doi.org/10.1001/jamapediatrics.2015.1663.

    Article  PubMed  Google Scholar 

  94. Brandon D, Ryan D, Sloane R, Docherty SL. Impact of a pediatric quality of life program on providers’ moral distress. MCN Am J Matern Child Nurs. 2014;39(3):189–97.

    Article  PubMed  Google Scholar 

  95. Rosenberg AR, Orellana L, Kang TI, Geyer JR, Feudtner C, Dussel V, Wolfe J. Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol. 2014;32(27):3005–11. https://doi.org/10.1200/JCO.2014.55.4659.

    Article  PubMed  PubMed Central  Google Scholar 

  96. Hilden JM, Emanuel EJ, Fairclough DL, Link MP, Foley KM, Clarridge BC, et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey. J Clin Oncol. 2001;19(1):205–12. https://doi.org/10.1200/JCO.2001.19.1.205.

    Article  CAS  PubMed  Google Scholar 

  97. Mack JW, Smith TJ. Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol. 2012;30(22):2715–7. https://doi.org/10.1200/JCO.2012.42.4564.

    Article  PubMed  Google Scholar 

  98. Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Hope and prognostic disclosure. J Clin Oncol. 2007;25(35):5636–42. https://doi.org/10.1200/JCO.2007.12.6110.

    Article  PubMed  Google Scholar 

  99. Kaye E, Mack JW. Parent perceptions of the quality of information received about a child’s cancer. Pediatr Blood Cancer. 2013;60(11):1896–901. https://doi.org/10.1002/pbc.24652.

    Article  PubMed  Google Scholar 

  100. Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006;24(33):5265–70. https://doi.org/10.1200/JCO.2006.06.5326.

    Article  PubMed  Google Scholar 

  101. Whitehead K. Motherhood as a gendered entitlement: intentionality, “othering,” and homosociality in the online infertility community. Can Rev Sociol. 2016;53(1):94–122. https://doi.org/10.1111/cars.12093.

    Article  PubMed  Google Scholar 

  102. Hill DL, Miller V, Walter JK, Carroll KW, Morrison WE, Munson DA, et al. Regoaling: a conceptual model of how parents of children with serious illness change medical care goals. BMC Palliat Care. 2014;13(1):9. https://doi.org/10.1186/1472-684X-13-9.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  103. Bronfenbrenner U. In: Bronfenbrenner U, editor. Making human beings human: bioecological perspectives on human development. Thousand Oaks: Sage; 2005.

    Google Scholar 

  104. Kazak AE. Comprehensive care for children with cancer and their families: a social ecological framework guiding research, practice, and policy. Child Serv Soc Policy Res Pract. 2001;4(4):217–33.

    Article  Google Scholar 

  105. Mooney-Doyle K, Deatrick JA. Parenting in the face of childhood life-threatening conditions: the ordinary in the context of the extraordinary. Palliat Support Care. 2016;14(3):187–98. https://doi.org/10.1017/S1478951515000905.

    Article  PubMed  Google Scholar 

  106. Feudtner C, Walter JK, Faerber JA, Hill DL, Carroll KW, Mollen CJ, et al. Good-parent beliefs of parents of seriously ill children. JAMA Pediatr. 2015;169(1):39–47. https://doi.org/10.1001/jamapediatrics.2014.2341.

    Article  PubMed  PubMed Central  Google Scholar 

  107. Hinds PS, Oakes LL, Hicks J, Powell B, Srivastava DK, Spunt SL, et al. “Trying to be a good parent” as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. J Clin Oncol. 2009;27(35):5979–85. https://doi.org/10.1200/JCO.2008.20.0204.

    Article  PubMed  PubMed Central  Google Scholar 

  108. Mooney-Doyle K, dos Santos MR, Szylit R, Deatrick JA. Parental expectations of support from healthcare providers during pediatric life-threatening illness: a secondary, qualitative analysis. J Pediatr Nurs. 2017;36:163–72.

    Article  PubMed  Google Scholar 

  109. Laing CM, Moules NJ, Estefan A, Lang M. Stories that heal: understanding the effects of creating digital stories with pediatric and adolescent/young adult oncology patients. J Pediatr Oncol Nurs. 2017;34(4):272–82. https://doi.org/10.1177/1043454216688639.

    Article  PubMed  Google Scholar 

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Author information

Authors and Affiliations

  1. University of California, San Francisco, American Academy of Nursing “Living Legend” in Nursing, San Francisco, CA, USA

    Anne J. Davis

  2. Department of Ethics, Azusa Pacific University, Azusa, CA, USA

    Marsha Fowler

  3. Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA

    Sophia Fantus

  4. Division of Medical Ethics, Weill Cornell Medical College, New York, NY, USA

    Joseph J. Fins

  5. New York Presbyterian Hospital Weill Cornell Medical Center, New York, NY, USA

    Joseph J. Fins

  6. Consortium for the Advanced Study of Brain Injury, Weill Cornell and Rockefeller University, New York, NY, USA

    Joseph J. Fins

  7. Solomon Center for Health, Law and Policy, Yale Law School, New Haven, CT, USA

    Joseph J. Fins

  8. Hospital of the University of Pennsylvania, Philadelphia, PA, USA

    Michelle Joy

  9. Pediatric Critical Care, Children’s Respiratory and Critical Care Specialists, Minneapolis, MN, USA

    Katherine Kruse

  10. Department of Clinical Ethics, D, Children’s Hospital and Clinics of Minnesota, Minneapolis, MN, USA

    Katherine Kruse

  11. Department of Anesthesiology, Perioperative, and Pain Management, Lucile Packard Children’s Hospital at Stanford, Stanford Center for Biomedical Ethics, Stanford University, Stanford, CA, USA

    Alyssa Burgart

  12. Board Certified Chaplain, Association of Professional Chaplains, State College, PA, USA

    Margaret Lindsey

  13. University of Maryland School of Nursing, Baltimore, MD, USA

    Kim Mooney-Doyle

  14. Pain Management and Palliative Care, Hospital of the University of Pennsylvania, Philadelphia, PA, USA

    Tanya Uritsky

  15. Department of Bioethics, National Institutes of Health, Bethesda, MD, USA

    Christine Grady

Authors
  1. Anne J. Davis
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  2. Marsha Fowler
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  3. Sophia Fantus
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  4. Joseph J. Fins
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  5. Michelle Joy
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  6. Katherine Kruse
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Correspondence to Christine Grady .

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Editors and Affiliations

  1. Lillian S. Brunner Endowed Chair, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania, USA

    Connie M. Ulrich

  2. Department of Bioethics, National Institute of Health Clinical Center, Bethesda, Maryland, USA

    Christine Grady

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Davis, A.J. et al. (2018). Healthcare Professional Narratives on Moral Distress: Disciplinary Perspectives. In: Ulrich, C., Grady, C. (eds) Moral Distress in the Health Professions . Springer, Cham. https://doi.org/10.1007/978-3-319-64626-8_3

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  • DOI: https://doi.org/10.1007/978-3-319-64626-8_3

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  • Online ISBN: 978-3-319-64626-8

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