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A Professional Perspective on End-of-Life Care

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Care Professions and Globalization
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Abstract

In this chapter, my aim is to reflect on the peculiarities or “specialities” associated with end-of-life care. To begin with, it is important to note that end-of-life care is “special” because the patient is “special.” The particular characteristics of terminal patients or patients in an advanced stage of a disease mean they will have very specific needs. At the same time, many professionals “specialize” in end-of-life care, and they do so in accordance with a series of principles related to palliative care that should be better known to those outside of professional palliative care. Discussion of these particularities of professional palliative care is the aim of the first section of this chapter (“The Peculiarities of Terminal Care”). In the second section of this chapter (“The Professional Carer”), I describe why many of those working in professional palliative care have come to the conclusion that the “specialities” it requires are not suited to every kind of person. Palliative care requires a distinct approach to the patient and her care, and this approach requires the palliative care professional to focus on “taking care” of himself or herself, as this kind of care can be very taxing on our personal and emotional states. For this reason, I also spend some time discussing the sources of “burnout” in such professionals. In the third section of this chapter (“The Art of Healing in Terminal Care”), I suggest that while palliative care cannot offer the patient a “cure,” it can be a source of healing.

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  1. Katalin Koller and Kenneth Rockwood, “Frailty in Older Adults: Implications for End-of-Life Care,” Cleveland Clinic Journal of Medicine 80, no. 3 (2013): 168–174.

    Article  Google Scholar 

  2. Susan D. Block, “Psychological Considerations, Growth, and Transcendence at the End of Life,” JAMA: The Journal of the American Medical Association 285, no. 22 (2001): 2898–2905.

    Article  Google Scholar 

  3. Eileen O’Grady, Laura Dempsey, and Carole Fabby, “Anger: A Common Form of Psychological Distress among Patients at the End of Life,” International Journal of Palliative Nursing 18, no. 12 (2012): 592–596.

    Article  Google Scholar 

  4. Saunders, Cicely, Watch with Me: Inspiration for a Life in Hospice Care (Mortal Press, 2003).

    Google Scholar 

  5. Abdullah Ladha et al., “Care of the Frail Elder: The Nexus of Geriatrics and Palliative Care,” Minnesota Medicine 96, no. 4 (2013): 39–42.

    Google Scholar 

  6. Harvey Max Chochinov, “Dignity and the Essence of Medicine: The A, B, C, and D of Dignity Conserving Care,” British Medical Journal 335, no. 7612 (2007): 183–187.

    Article  Google Scholar 

  7. Cicely Saunders, “Hospice Care,” The American journal of Medicine 65, no. 5 (1978): 726–728.

    Article  Google Scholar 

  8. Elisabeth Kübler-Ross, On Death and Dying (New York: Scribner, 1969).

    Google Scholar 

  9. William B Bean, “Peace at the Last: A Survey of Terminal Care in the United Kingdom; A Report to the Calouste Gulbenkian Foundation 1960,” Archives of Internal Medicine 107, no. 4 (1961): 631–632.

    Article  Google Scholar 

  10. Cicely Saunders, “Watch with Me,” Nursing Times 61, no. 48 (1965): 1615–1617.

    Google Scholar 

  11. Tom A. Hutchinson, ed., Whole Person Care: A New Paradigm for the 21st Century (New York: Springer, 2011).

    Google Scholar 

  12. The European Association for Palliative Care has recently synthesized the skills and levels that any professional must possess to be considered competent in the field of palliative care. See Claudia Gamondi, Phillip Larkin, and Sheila Payne, “Core Competencies in Palliative Care: An EAPC White Paper on Palliative Care Education,” European Journal of Palliative Care 20, no. 2 (2013): 86–91.

    Google Scholar 

  13. Emanuel Mpinga et al., “End of Life Conflicts in Palliative Care: A Systematic Review of the Literature” [article written originally in French], Rech Soins Infirm 86 (2006): 68–95.

    Article  Google Scholar 

  14. G. Riel-Roberge, “Results of SATIN I (Satisfaction of Nurses): Nursing Care at the End of Life” [article written originally in French], Perspect Infirm, 10, no. 2 (2013): 59.

    Google Scholar 

  15. Balfour M. Mount, “Dealing with Our Losses,” Journal of Clinical Oncology 4, no. 7 (1986): 1127–1134.

    Google Scholar 

  16. P. Ragazzoni et al., “Occupational Stress and Assessment of Human Resources in Health: From Assessment to the Changing Process” [article written originally in Italian], Giornale italiano di medicina del lavoro ed ergonomia 26, no. 2 (2004): 119–126.

    Google Scholar 

  17. Carlos Centeno et al., “Estudio sobre el síndrome de burnout en profesionales de enfermería de cuidados paliativos del país vasco,” Revista de Medicina 53, no. 1 (2009): 3–8.

    Google Scholar 

  18. Bruce Pierce et al., “Staff Stress, Work Satisfaction, and Death Attitudes on an Oncology Palliative Care Unit, and on a Medical and Radiation Oncology Inpatient Unit,” Journal of Palliative Care 23, no. 1 (2007): 32–39.

    Google Scholar 

  19. J. Graham et al., “Job Stress and Satisfaction among Palliative Physician,” Palliative Medicine, 10, no. 3 (1996): 185–194.

    Article  Google Scholar 

  20. Mary Vachon, “Staff Stress in Hospice/Palliative Care: A Review,” Palliative Medicine 9, no. 2 (1995): 91–122.

    Article  Google Scholar 

  21. CL McWilliam, J. Burdock, and J. Wamsley, “The Challenging Experience of Palliative Care Support-Team Nursing.” Oncology Nursing Forum 20, no. 5 (1993): 779–785.

    Google Scholar 

  22. Michael K. Kearney et al., “Self-Care of Physicians Caring for Patients at the End of Life,” The Journal of the American Medical Association 301, no. 11 (2009): 1155–1164.

    Article  Google Scholar 

  23. Sandra Sanchez-Reilly et al., “Caring for Oneself to Care for Others: Physicians and Their Self-Care,” Journal of Supportive Oncology 11, no. 2 (2013): 75–81.

    Article  Google Scholar 

  24. Karen Mann, Jill Gordon, and Anna MacLeod, “Reflection and Reflective Practice in Health Professions Education: A Systematic Review,” Advances in Health Sciences Education 14, no. 4 (2009): 595–621.

    Article  Google Scholar 

  25. Balfour Mount and Michael Kearney, “Healing and Palliative Care: Charting Our Way Forward,” Palliative Medicine 17 (2003): 657–658.

    Google Scholar 

  26. Eric J. Cassell, The Nature of Healing: The Modern Practice of Medicine (Oxford: Oxford University Press, 2012).

    Book  Google Scholar 

  27. Thomas R. Egnew, “The Meaning of Healing: Transcending Suffering,” The Annals of Family Medicine 3, no. 3 (2005): 255–262.

    Article  Google Scholar 

  28. Shane Sinclair et al., “Spiritual Care: How to Do It,” British Medical Journal of Supportive Palliative Care, no. 2 (2012): 319–327.

    Article  Google Scholar 

  29. Eric J. Cassell, “The Nature of Suffering and the Goals of Medicine,” The New England Journal of Medicine 306, no. 11 (1982): 639–645.

    Article  Google Scholar 

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© 2014 Ana Marta González and Craig Iffland

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Centeno, C. (2014). A Professional Perspective on End-of-Life Care. In: González, A.M., Iffland, C. (eds) Care Professions and Globalization. Palgrave Macmillan, New York. https://doi.org/10.1057/9781137376480_12

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