Abstract
As we have seen, the scientific collection of tissue for research was widely viewed as unproblematic for much of the twentieth century. But this practice became contentious during the 1970s and 1980s, when excised tissues became the subject of often heated debate, with scientists, social groups, lawyers and a new breed known as ‘bioethicists’ questioning the ethics and legality of the procedures that transformed them into experimental tools. These questions played out in academic conferences and journals, in court, in bioethical reports and government legislation, in newspapers and even spilled onto the streets in protests.
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Salter (2004). See also Clive Seale, Debbie Cavers and Mary Dixon-Woods, ‘Commodification of Body Parts: By Medicine or by Media?’, Body and Society, Vol. 12 (2006), pp. 25–42; Waldby and Mitchell (2007), pp. 37–8.
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Graeme Laurie, Genetic Privacy: A Challenge to Medico-Legal Norms (Cambridge: Cambridge University Press, 2002).
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Wildgoose, ‘Who Really Owns Our Bodies?’ (2001).
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L.J.C. Clarke, cited in Nuffield Council on Bioethics consultation paper, Give and Take? Human Bodies in Medicine and Research (London: Nuffield Council on Bioethics, April 2010), p. 26.
See, for example, Andrews and Nelkin, Body Bazaar (2001).
Kimbrell, The Human Body Shop (1997).
On how interest groups interpret and represent the ‘public’, see David Cantor, ‘Representing “the Public”’, in Steve Sturdy (ed.), Medicine, Health and the Public Sphere in Britain, 1600–2000 (London: Routledge, 2002), pp. 145–69. A growing literature on the recent emergence of patient rights groups also highlights the complex and often contradictory nature of ‘public opinion’.
See, for example, Steven Epstein, Impure Science: AIDS, Activism and the Politics of Knowledge (Berkeley: University of California Press, 1996).
Paul Rabinow, French DNA: Trouble in Purgatory (Chicago: University of Chicago Press, 1997).
Klaus Hoeyer, ‘Person, Patent and Property: A Critique of the Commodification Hypothesis’, Biosocieties, Vol. 2 (2007), pp. 327–48.
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© 2011 Duncan Wilson
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Wilson, D. (2011). Nobody’s Thing? Consent, Ownership, and the Politics of Tissue Culture. In: Tissue Culture in Science and Society. Science, Technology and Medicine in Modern History. Palgrave Macmillan, London. https://doi.org/10.1057/9780230307513_6
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