Abstract
In the West the normalisation of HIV has crystallised a singular, dominant, medical construction of HIV infection. Of course medical constructions of HIV have always been present and central to understanding HIV, yet recently, in conjunction with the advent of antiretroviral therapy (ART), they have become far more salient. This chapter, with an exploration of the experiences of people living with HIV in the UK, seeks to refocus the reader upon a range of psychosocial issues which can sometimes be overlooked, or overshadowed, when faced with the brightness and clarity of the biomedical narrative of HIV. Through drawing on a range of positive people’s experiences the chapter tentatively explores how processes of HIV normalisation rely upon the medicalisation of HIV and a concomitant process of the minimisation of psychosocial issues. In the global context of difficulties accessing treatments and care, these psychosocial concerns may indeed appear minor, yet sometimes, and often in surprising ways, the biomedical depends upon the psychosocial to function.
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsPreview
Unable to display preview. Download preview PDF.
References
Blanch J., Rousaud, A., Martínez, E., De Lazzari, E., Peri, J., Milinkovic, A., Perez-Cuevas, J., Blanco, J., Gatell, J. (2002) ‘Impact of lipodystrophy on the quality of life of HIV-1-infected patients’, Journal of Acquired Immune Deficiency Syndromes, 31, 4, 404–7.
Brashers, D., Neidig, N., Cardillo, N., Dobbs, L., Russell, J. A. and Haas, S. M. (1999) ‘“In an important way, I did die”: uncertainty and revival in persons living with HIV or AIDS’, AIDS Care, 11, 201–9.
Chesney, M. A. and Smith, A. W. (1999) ‘Critical delays in HIV testing and care: the potential role of stigma’, American Behavioural Scientist, 42, 1162–74.
Ciesla, J. and Roberts, J. (2001) ‘Meta-analysis of the relationship between HIV Infection and risk for depressive disorders’, American Journal of Psychiatry, 158, 725–30.
Collins, E., Wagner, C. and Walmsley, M. (2000) ‘Psychosocial impact of the lipidystrophy syndrome in HIV infection’, AIDS Reader, 10, 9, 546–51.
DeCock, K. and Johnson, A. (1998) ‘From exceptionalism to normalisation: a reappraisal of attitudes and practice around HIV testing’, British Medical Journal, 316, 290–3.
Ezzy, D. (2000), ‘Illness narratives: time, hope and HIV’, Social Science and Medicine, 50, 605–17.
Flowers, P., Duncan, B. and Knussen, C. (2001) ‘Re-appraising HIV testing amongst Scottish gay men: the impact of new treatments’, Journal of Health Psychology, 6, 665–79.
Garcia, F., De Lazzari, E., Plana, M., Castro, P., Mestre, G. and Nomdedeu, M. (2004) ‘Long-term CD4+ T-cell response to highly active antiretroviral therapy according to baseline CD4+ T-cell count’, Journal of Acquired Immune Deficiency Syndrome, 36, 702–13.
Green, G. and Smith, R. (2004) ‘The psychosocial and health care needs of HIV positive people in the UK: a review’, HIV Medicine, 5, 5–46.
Gulick, R. M., Meibohm, A., Havlir, D., Eron, J. J., Mosley, A. and Chodakewitz, J. A. (2003) ‘Six-year follow-up of HIV-1-infected adults in a clinical trial of antiretroviral therapy with indinavir, zidovudine, and lamivudine’, AIDS, 17, 2345–9.
Herek, G., Capitano J. P. and Widaman, K. F. (2002). ‘HIV-Related Stigma and Knowledge in the United States: Prevalence and Trends, 1991–1999’, American Journal of Public Health, 92, 371–7.
Kalichman, S. and Sikkema, K. (1994) ‘Psychological sequelae of HIV-infection and AIDS–review of empirical-findings’, Clinical Psychology Review, 14, 7, 611–32.
Katz, I. and Wright, A. (2008) ‘Circumcision — a surgical strategy for HIV prevention in Africa’, New England Journal of Medicine, 359, 2412–15.
Kaufmann, G. R., Perrin, L., Pantaleo, G., Opravil, M., Furrer, H. and Telenti, A., (2003) ‘CD4 T-lymphocyte recovery in individuals with advanced HIV-1 infection receiving potent antiretroviral therapy for 4 years: the Swiss HIV Cohort Study’, Archives of Internal Medicine, 163, 2187–95.
Myers, T., Orr, K. W., Locker, D. and Jackson, E. A. (1993) ‘Factors affecting gay and bisexual men’s decisions and intentions to seek HIV testing’, American Journal of Public Health, 83, 701–4.
Pierret, J. (2001) ‘Interviews and biographical time: the case of longterm HIV nonprogressors’, Sociology of Health & Illness, 23, 159–79.
Roth, N. and Nelson, M. (1994) ‘HIV diagnosis rituals and HIV identity narratives’, AIDS Care, 9, 161–80.
Scambler, G. (1998) ‘Stigma and disease: changing paradigms’, Lancet, 352, 1054–5.
Siegel, K. and Lekas, H. (2002) ‘AIDS as a chronic illness: psychosocial implications’, AIDS, 16, S69–S76.
Smith, J. A., Flowers, P. and Larkin, M. (2009) Interpretative Phenomenological Analysis: Method and Research (London: Sage).
Stall, R., Hoff, C., Coates, T. J., Paul, J., Phillips, K., Ekstrand, M., Kegeles, S., Catania, J., Daigle, D., Diaz, R. (1996) ‘Decisions to get HIV tested and to accept antiretroviral therapies among gay/bisexual men: implications for secondary prevention efforts’, Journal of Acquired Immune Deficiency Syndromes and Human Retrovirology, 11, 151–60.
Tewksbury, R. and McGaughey, D. (1998) ‘Identities and identity transformations among persons with HIV disease’, International Journal of Sexuality and Gender Studies, 3, 213–32.
Treichler, P. (1987) ‘AIDS, homophobia and biomedical discourse: an epidemic of signification’, Cultural Studies, 1, 263–305.
Varas-Díaz, N., Serrano-García, I. and Toro-Alfonso, J. (2005) ‘AIDS-related stigma and social interaction: Puerto Ricans living with HIV/AIDS’, Qualitative Health Research, 15, 2, 169–87.
Editor information
Editors and Affiliations
Copyright information
© 2010 Paul Flowers
About this chapter
Cite this chapter
Flowers, P. (2010). HIV Transitions: Consequences for Self in an Era of Medicalisation. In: Davis, M., Squire, C. (eds) HIV Treatment and Prevention Technologies in International Perspective. Palgrave Macmillan, London. https://doi.org/10.1057/9780230297050_6
Download citation
DOI: https://doi.org/10.1057/9780230297050_6
Publisher Name: Palgrave Macmillan, London
Print ISBN: 978-1-349-31534-5
Online ISBN: 978-0-230-29705-0
eBook Packages: Palgrave Social Sciences CollectionSocial Sciences (R0)