Skip to main content

Valorising Disability on Screen: When Did ‘Inspirational’ Become a Dirty Word?

  • Chapter
  • First Online:
Documentary and Disability

Abstract

This chapter examines autobiographical documentary in general and intellectual disability in particular. Wain reflects upon the creation of 18q- A Different Kind of Normal, a documentary feature, risks of self-representation and representation of those with intellectual disability. In countering entrenched disability narratives of despair and parent as hero characterisations used in disability-driven documentary and drama, she discusses the challenges in delivering a film to inspire, yet remaining true to realistic portrayals of parenting a person with intellectual disability. Drawing upon Dilthey’s historicity, disability studies and Rabiger’s narrative analysis, the film inspires parents of children living with intellectual disability in general and chromosomal differences on the 18th chromosome in particular by adhering to narrative conventions, yet departing from them in the context of disability.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 139.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 179.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    See e.g. Couser’s (2004) discussion of the novel The Broken Cord by Michael Dorris.

Bibliography

  • Areheart, B.A. (2008). ‘When Disability Isn’t “Just Right”: The Entrenchment of the Medical Model of Disability and the Goldilocks Dilemma’. Indiana Law Journal, 83(1), 180–232.

    Google Scholar 

  • Barnes, C. (2009). Understanding the Social Model of Disability. Background Notes to a Verbal Presentation at Från forskningsobjekt till medaktör. Available at: http://www.hso.se/Global/Projekt/Fr%C3%A5n%20forskningsobjekt/Forskning/Anteckningar%20Colin%20Barnes%20091118.pdf (accessed 30 March 2016).

  • Braddock, D. and Parish, S. (2001). ‘An Institutional History of Disability’ in G. Albrecht, K. Seelman and M. Bury (eds), Handbook of Disability Studies. Thousand Oaks: SAGE Publications, pp. 11–69.

    Chapter  Google Scholar 

  • Brueggemann, B. (2012). Arts and Humanities. Thousand Oaks: SAGE Publications.

    Google Scholar 

  • Couser, G.T. (2004). Vulnerable Subjects: Ethics in Life Writing. New York: Cornell University Press.

    Google Scholar 

  • Dilthey, W. (1914–2006). Gesammelte Schriften, 26 vols. Göttingen: Vandenhoeck & Ruprecht, The volumes below are used in this text (original publishing dates used): 1924, Vol. V, Die geistige Welt: Einleitung in die Philosophie des Lebens. Erste Hälfte: Abhandlungen zur Grundlegung der Geisteswissenschaften, G. Misch (ed.).

    Google Scholar 

  • Dovey, J. (2002). Freakshow: First Person Media and Factual Television. London: Pluto Press.

    Google Scholar 

  • Edwards, C. and Imrie, R. (2003). ‘Disability and Bodies as Bearers of Value’. Sociology, 37(2), 239–256. Available at: http://research.gold.ac.uk/view/goldsmiths/Imrie=3ARob=3A=3A.html (accessed 25 May 2016).

    Article  Google Scholar 

  • Forrester, M., Merz, R. and Yoon, P. (1998). ‘Impact of Prenatal Diagnosis and Elective Termination on the Prevalence of Selected Birth Defects in Hawaii’. American Journal of Epidemiology, 148(12), 1206–1211.

    Article  Google Scholar 

  • Griffiths, T. (2013). ‘Representing History and the Filmmaker in the Frame’. Available at: http://www.doc.ubi.pt/15/dossier_trent_griffiths.pdf (accessed 15 June 2016).

    Google Scholar 

  • Guryeva, I., Mazayeva, O. and Kruglikovai, M. (2015). ‘Wilhlem Dilthey as Expert Historian’ in International Conference on Research Paradigms Transformation in Social Sciences 2015. Tomsk, Russia: SHS Web of Conferences, pp. 1–5. Available at: http://www.shs-conferences.org/articles/shsconf/pdf/2016/06/shsconf_rptss2016_01044.pdf (accessed 5 July 2016).

  • Haller, B.A. (2010). Representing Disability in an Ableist World: Essay on Mass Media. Louisville, KY: Advocado Press.

    Google Scholar 

  • Hamilton, S. (2013). ‘Pituitary Network Association’. Available at: http://pituitary.org/about-pna/scott-hamilton (accessed 1 January 2016).

  • Hardwig, W. (1997). Stories and their Limits: Narrative Approaches to Bioethics. New York: Routledge.

    Google Scholar 

  • Lutfiyya, Z., Schwartz, K. and Hansen, N. (2009). ‘False Images: Re-framing the End-of-Life Portrayal of Disability in the Film Million Dollar Baby’ in S. Shapsay (ed.) Bioethics at the Movies. Baltimore: Johns Hopkins University Press, pp. 225–241.

    Google Scholar 

  • Lutfiyya, Z., Schwartz, K. and Hansen, N. (2011). ‘False Images: Re-framing the End-of-Life Portrayal of Disability in the Film Million Dollar Baby’ in S. Shapsay (ed.) Bioethics at the Movies. Baltimore: Johns Hopkins University Press, pp. 225–241.

    Google Scholar 

  • Mitchell, D. (2000). Body Solitaire: The Singular Subject of Disability Autobiography’. American Quarterly, 53(2), 311–315.

    Article  Google Scholar 

  • Mitchell, D.T. and Snyder, S.L. (2000). Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: University of Michigan Press.

    Google Scholar 

  • Rabiger, M. (1998). Directing the Documentary. Boston: Focal Press.

    Google Scholar 

  • Rabiger, M. (2004). Directing the Documentary, 4th edn. Boston: Focal Press.

    Google Scholar 

  • Reid, J. (2001). ‘Dilthey’s Epistemology of the Geisteswissenschaften: Between Lebensphilosophie and Wissenschaftstheorie’. Journal of the History of Philosophy, 39(3), 407–436.

    Article  Google Scholar 

  • Riley, C.A. (2005). Disability and the Media: Prescriptions for Change. Lebanon: UNE.

    Google Scholar 

  • Snyder, S.L. and Mitchell, D.T. (2006). Cultural Locations of Disability. Chicago: University of Chicago Press.

    Book  Google Scholar 

  • Turner, G. (2006). Film as Social Practice. New York: Routledge.

    Google Scholar 

  • Young, S. (2012). ‘We’re Not Here for Your Inspiration’. ABC News. Available at: http://www.abc.net.au/news/2012-07-03/young-inspiration-porn/4107006 (accessed 12 February 2016).

Filmography

  • My Flesh and Blood (2003). [DVD] USA: Jonathon Karsh.

    Google Scholar 

  • A Mother’s Courage: Talking Back to Autism (2009). [DVD] Iceland: Fridrik Por Fridriksson.

    Google Scholar 

  • Forrest Gump (1984) [Film]. USA: Robert Zemeckis.

    Google Scholar 

  • Sherman’s March (2002) [DVD]. USA: Ross McElwee.

    Google Scholar 

  • What’s Eating Gilbert Grape (1994) [Film]. USA: Lasse Hallstrom.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Veronica Wain .

Editor information

Editors and Affiliations

Copyright information

© 2017 The Author(s)

About this chapter

Cite this chapter

Wain, V. (2017). Valorising Disability on Screen: When Did ‘Inspirational’ Become a Dirty Word?. In: Brylla, C., Hughes, H. (eds) Documentary and Disability. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-59894-3_4

Download citation

Publish with us

Policies and ethics