Skip to main content

Disabled Children’s Childhood Studies and Leadership as Experts by Experience’ Leadership: Learning Activism in Health and Social Care Education

  • Chapter
  • First Online:
The Palgrave Handbook of Disabled Children’s Childhood Studies

Abstract

People involved in disabled children’s childhood studies, and others who contribute their experience of using health and social care services, strongly object to being seen by professionals as ‘the problem’. In contrast Experts by Experience involved in a leadership project used strategies of mutual support towards change. We see learning activism as core to a professional practice that is also about change and explore critical pedagogy for students to directly experience such collaborative ways of working. The chapter begins and ends with reflections by the authors on sharing their personal and political concerns as part of collaborative learning encouraged by the opportunities to join and support the voices of disabled children and their families.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 219.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 279.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Amsler, S. (2011). From ‘Therapeutic’ to Political Education: The Centrality of Affective Sensibility in Critical Pedagogy. Critical Studies in Education, 52(1), 47–63.

    Article  Google Scholar 

  • BASW. (2012). The Code of Ethics for Social Work. http://cdn.basw.co.uk/upload/basw_112315-7.pdf

  • Beckett, A. E. (2015). Anti-oppressive Pedagogy and Disability: Possibilities and Challenges. Scandinavian Journal of Disability Research, 17(1), 76–94.

    Article  Google Scholar 

  • Beresford, P., & Branfield, F. (2006). Developing Inclusive Partnerships: User-Defined Outcomes, Networking and Knowledge − A Case Study. Health & Social Care in the Community, 14(5), 436–444.

    Article  Google Scholar 

  • Brown, J. (2001). The World Café: Living Knowledge Through Conversations that Matter. The Systems Thinker, 12(5), 1–5.

    Google Scholar 

  • Burman, E., Greenstein, A., & Kumar, M. (2015). Editorial: Frames and Debates for Disability, Childhood and the Global South: Introducing the Special Issue. Disability and the Global South, 2(2), 563–569.

    Google Scholar 

  • Burstow, B., LeFrancois, B. A., & Diamond, S. (Eds.). (2014). Psychiatry Disrupted: Theorizing Resistance and Crafting the (R)evolution. Quebec: MQUP.

    Google Scholar 

  • Chataika, T., & McKenzie, J. (2013). Considerations of an African Childhood Disability Studies. In T. Curran & K. Runswick-Cole (Eds.), Disabled Children’s Childhood Studies: Critical Approaches in a Global Context (pp. 89–104). Basingstoke: Palgrave Macmillan.

    Google Scholar 

  • Coles, B. (2015). A ‘Suitable Person’: An ‘Insider’ Perspective. British Journal of Learning Disabilities, 43, 135–141.

    Article  Google Scholar 

  • Curran, T. (1997). Power, Post Modernism and Participation: Mental Health Education. Social Work Education, 16(3), 21–36.

    Article  Google Scholar 

  • Curran, T. (2010). Social Work and Disabled Children’s Childhoods: A Foucauldian Framework for Practice Transformation. British Journal of Social Work, 40(3), 806–825.

    Article  Google Scholar 

  • Curran, T., & Runswick-Cole, K. (2013). Disabled Children’s Childhood Studies: Critical Approaches in a Global Context. Basingstoke: Palgrave Macmillan.

    Book  Google Scholar 

  • Curran, T., & Runswick-Cole, K. (2014). Disabled Children’s Childhood Studies: A Distinct Approach? Disability and Society, 29(10), 1617–1630.

    Article  Google Scholar 

  • Curran, T., Sayers, R., & Percy-Smith, B. (2015). Leadership as Experts by Experience in Professional Education. Procedia – Social and Behavioral Sciences, 186, 624–629. doi:10.1016/j.sbspro.2015.04.005.

    Article  Google Scholar 

  • Dalrymple, J., & Burke, B. (2006). Anti-oppressive Practice and the Law (2nd ed.). Open University Press. ISBN 9780335218011. Available from: http://eprints.uwe.ac.uk/1458

  • Friere, P. (1972). Pedagogy of the Oppressed. New York: Herder & Herder.

    Google Scholar 

  • Gibbons, M., Limoges, C., Nowotny, H., Schwartzman, S., Scott, P., & Trow, M. (1994). The New Production of Knowledge: The Dynamics of Science and Research in Contemporary Societies. London: Sage.

    Google Scholar 

  • Goffman, E. (1963). Notes on the Management of Spoiled Identity. London: Penguin.

    Google Scholar 

  • Goodley, D. (2007). Towards Socially Just Pedagogies: Deleuzoguattarian Critical Disability Studies. International Journal of Inclusive Education, 11(3), 317–334.

    Article  Google Scholar 

  • Gould, N. (2004). The Learning Organisation and Reflective Practice – The Emergence of a Concept. In N. Gould & M. Baldwin (Eds.), Social Work, Critical Reflection and the Learning Organisation (pp. 1–11). Hants: Ashgate.

    Google Scholar 

  • Grech, S. (2013). Disability, Childhood and Poverty: Critical Perspectives on Guatemala. In T. Curran & K. Runswick-Cole (Eds.), Disabled Children’s Childhood Studies: Critical Approaches in a Global Context (pp. 89–104). Basingstoke: Palgrave Macmillan.

    Chapter  Google Scholar 

  • Gronn, P. (2002). Distributed Leadership as Unit of Analysis. The Leadership Quarterly, 13, 423–451.

    Article  Google Scholar 

  • Honneth, A. (1995). The Struggle for Recognition (J. Anderson, Trans.). Cambridge: Polity Press.

    Google Scholar 

  • Kemmis, S. (2001). Exploring the Relevance of Critical Theory for Action Research: Emancipatory Action Research in the Footsteps of Jurgen Habermas. In P. Reason & H. Bradbury (Eds.), Handbook of Action Research: Participative Inquiry and Practice (pp. 91–102). London: Sage.

    Google Scholar 

  • Ladkin, D. (2008). Leading Beautifully: How Mastery, Congruence and Purpose Create the Aesthetic of Embodied Leadership Practice. The Leadership Quarterly, 19, 31–41.

    Article  Google Scholar 

  • Mills, C., & Fernando, S. (2014). Globalising Mental Health or Pathologising the Global South? Mapping the Ethics, Theory and Practice of Global Mental Health. Disability and the Global South, 1(2), 188–202.

    Google Scholar 

  • Office of the Children’s Commissioner. (2014). They Still Need to Listen More. In A Report About Disabled Children and Young People’s Rights in England. London: Office of the Children’s Commissioner.

    Google Scholar 

  • Oliver, M. (1991). The Politics of Disablement. London: Macmillan.

    Google Scholar 

  • Open Dialogue. (2016, September 16). http://www.mindfreedom.org/kb/mental-health-alternatives/finland-open-dialogue

  • Percy-Smith, B., & Walsh, D. (2006). Improving Services for Children and Families: Listening and Learning, Report from a Systemic Action Inquiry Evaluation Process. Northampton: Children’s Fund Northamptonshire/SOLAR.

    Google Scholar 

  • Percy-Smith, B., & Weil, S. (2003). Practice-Based Research as Development: Innovation and Empowerment in Youth Intervention Initiatives Using Collaborative Action Inquiry. In A. Bennett (Ed.), Researching Youth. London: Palgrave Publishing.

    Google Scholar 

  • Pilgrim, D. (2005). Protest and Co-option – The Voice of Mental Health Service Users. In A. Bell & P. Lindley (Eds.), Beyond the Water Towers: The Unfinished Revolution in Mental Health Services 1985–2005 (pp. 17–26). London: The Sainsbury Centre for Mental Health.

    Google Scholar 

  • Preston, S., & Aslett, J. (2014). Resisting Neoliberalism from Within the Academy: Subversion Through an Activist Pedagogy. Social Work Education: The International Journal, 33(4), 502–518.

    Article  Google Scholar 

  • Razack, N. (2009). Decolonizing the Pedagogy and Practice of International Social Work. International Social Work, 52(1), 9–21.

    Article  Google Scholar 

  • Reason, P., & Bradbury, H. (2001). The Handbook of Action Research: Participative Inquiry and Practice. London: Sage.

    Google Scholar 

  • Saleebey, D. S., & Scanlon, E. (2005). Is a Critical Pedagogy for the Profession of Social Work Possible? Journal of Teaching in Social Work, 25(3–4), 1–18.

    Article  Google Scholar 

  • The College of Social Work. (2012). Professional Capabilities Framework. http://www.tcsw.org.uk/pcf.aspx. Accessed 10 Sept 2014.

  • Thomas, N. (2012). Love, Rights and Solidarity: Studying Children’s Participation Using Honneth’s Theory of Recognition. Childhood, 19(4). http://journals.sagepub.com/doi/abs/10.1177/0907568211434604

  • Tremain, S. (2006). On the Government of Disability: Foucault, Power and the Subject of Impairment. In L. J. Davis (Ed.), The Disability Studies Reader (2nd ed., pp. 185–197). New York/Abingdon: Taylor and Francis Group.

    Google Scholar 

  • Tremain, S. (2015). Foucault and the Government of Disability (2nd ed.). Ann Arbor: University of Michigan Press.

    Book  Google Scholar 

  • Uhl-Bien, M., Marion, R., & McKelvey, B. (2007). Complexity Leadership Theory: Shifting Leadership from the Industrial Age to the Knowledge Era. The Leadership Quarterly, 18, 298–318.

    Article  Google Scholar 

  • Weil, S. (1997). Rhetorics and Realities in Public Service Organisations: Systemic Practice and Organisational as Critically Reflexive Action Research (CRAR). Systemic Practice and Action Research, 11(1), 37–61.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Copyright information

© 2018 The Author(s)

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Curran, T., Sayers, R., Percy-Smith, B. (2018). Disabled Children’s Childhood Studies and Leadership as Experts by Experience’ Leadership: Learning Activism in Health and Social Care Education. In: Runswick-Cole, K., Curran, T., Liddiard, K. (eds) The Palgrave Handbook of Disabled Children’s Childhood Studies. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-54446-9_31

Download citation

  • DOI: https://doi.org/10.1057/978-1-137-54446-9_31

  • Published:

  • Publisher Name: Palgrave Macmillan, London

  • Print ISBN: 978-1-137-54445-2

  • Online ISBN: 978-1-137-54446-9

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics