Skip to main content

Conflicting Aims and Minimizing Harm: Uncovering Experiences of Trauma in Digital Storytelling with Young Women

  • Chapter
  • First Online:
Ethics and Visual Research Methods

Abstract

This chapter discusses a digital storytelling project that combined aims to gain fine-grained understanding of, and address, sexual health inequities among Puerto Rican Latinas in the project community. The authors begin by introducing digital storytelling as a culture-centered approach for use in public health research and intervention. They then trace two emerging ethical issues in research using digital storytelling, both related to key project findings of current and historical trauma among participants: (1) conflicting aims in the project and (2) the ethical standard to minimize harm. The authors conclude that these issues can be resolved if projects are guided by a sensitive ethical protocol, and that digital storytelling and other participatory, visual, and arts-based methods can be harnessed for the design of effective sexual health interventions.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 129.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 129.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Basu, Ambar, and Mohan Dutta. 2009. Sex workers and HIV/AIDS: Analyzing participatory culture-centered health communication strategies. Human Communication Research 35: 86–114.

    Article  Google Scholar 

  • Bosticco, C., and Teresa L. Thompson. 2008. Let me tell you a story: Narratives and narration in health communication research. In Emerging Perspectives in Health Communication: Meaning, Culture, and Power, ed. H. Zoller, and Mohan Dutta, 39–62. New York: Routledge.

    Google Scholar 

  • Brown, William J., and Michael Basil. 1995. Media celebrities and public health: Responses to “Magic” Johnson’s HIV disclosure and its impact on AIDS risk and high-risk behaviors. Health Communication 7(4): 345–370.

    Article  Google Scholar 

  • Buchanan, David. 2000. An Ethic for Health Promotion: Re-thinking the Sources of Human Well-being. London: Oxford University Press.

    Google Scholar 

  • Cox, Susan, Sarah Drew, Marilys Guillemin, Catherine Howell, Deborah Warr, and Jenny Waycott. 2014. Guidelines for Ethical Visual Research Methods. Victoria: Centre for Health Equity, Melbourne School of Population and Global Health.

    Google Scholar 

  • Dutta, Mohan. 2007. Communicating about culture and health: Theorizing culture-centered and cultural sensitivity approaches. Communication Theory 17: 304–328.

    Article  Google Scholar 

  • ———. 2008. Communicating Health: A Culture-Centered Approach. Maldon: Polity Press.

    Google Scholar 

  • Freire, Paulo. 1970. Pedagogy of the Oppressed. London: Bloomsbury.

    Google Scholar 

  • Geertz, Clifford. 1985. Local Knowledge: Further Essays in Interpretive Anthropology. New York City: Basic Books.

    Google Scholar 

  • Green, M., and Timothy C. Brock. 2000. The role of transportation in the persuasiveness of public narratives. Journal of Personality and Social Psychology 79: 701–721.

    Article  Google Scholar 

  • Green, Melanie, Timothy Brock, and Geoff F. Kaufman. 2004. Understanding media enjoyment: The role of transportation into narrative worlds. Communication Theory 14(4): 311–327.

    Article  Google Scholar 

  • Gubrium, Aline. 2009. Digital storytelling: An emergent method for health promotion research and practice. Health Promotion Practice 10(2): 186–191.

    Article  Google Scholar 

  • Gubrium, Aline, and Timothy Scott. 2010. Speaking to social change: Digital storytelling as an organizing strategy for increasing access to public higher education. Societies Without Borders 5(2): 126–151.

    Google Scholar 

  • Gubrium, Aline, Amy Hill, and Sarah Flicker. 2014a. A situated practice of ethics for participatory visual and digital methods in public health research and practice: A focus on digital storytelling. American Journal of Public Health 104(9): 1606–1614.

    Article  Google Scholar 

  • Gubrium, Aline, Elizabeth Krause, and Kasey Jernigan. 2014b. Strategic authenticity and voice: Ways of seeing and being seen as young mothers through digital storytelling. Sexuality Research and Social Policy 11: 337–347.

    Article  Google Scholar 

  • Gubrium, A., and G. DiFulvio. 2011. Girls in the world: Digital storytelling as a feminist public health approach. Girlhood Studies 4: 28–46.

    Article  Google Scholar 

  • Hancox, Donna. 2012. The process of remembering with the Forgotten Australians: Digital storytelling and marginalized groups. Human Technology 8: 65–76.

    Article  Google Scholar 

  • Herman, Judith L. 2015. Trauma and Recovery: The Aftermath of Violence—from Domestic Abuse to Political Terror. New York: Basic Books.

    Google Scholar 

  • Holstein, James A., and Jaber F. Gubrium. 1995. The active interview. New York: Sage Publications, Inc..

    Book  Google Scholar 

  • Lambert, Joseph. 2010. Digital Storytelling: Capturing Lives, Creating Community. Berkeley: Digital Diner Press.

    Google Scholar 

  • Larkey, Linda. 2006. Toward a measure of reciprocal support in health promotion. Annals of Behavioral Science and Medical Education 12(2): 58–64.

    Google Scholar 

  • Larkey, Linda, Ana Maria Lopez, and Denise Roe. 2008. Measures to assess narrative influences on cancer prevention behaviors. Paper presented at the American Association for Cancer Research: Frontiers in Cancer Prevention Research.

    Google Scholar 

  • Lupton, Deborah. 1995. The Imperative of Health: Public Health and the Regulated Body. London: Sage Publications.

    Google Scholar 

  • Pennebaker, James. 2000. Telling stories: The health benefits of narrative. Literature and Medicine 19(1): 3–18.

    Article  Google Scholar 

  • Slater, Michael, and Donna Rouner. 2002. Entertainment-education and elaboration likelihood: Understanding the processing of narrative persuasion. Communication Theory 12(2): 173–191.

    Google Scholar 

  • StoryCenter. n.d. Digital Storyteller’s bill of rights. Retrieved from: http://storycenter.org/ethical-practice/.6. Aug 2015.

  • Vannini, Phillip. 2015. Foreword. In Participatory Visual and Digital Research in Action, ed. Aline Gubrium, Krista Harper, and Marty Otanez, 11–12. Walnut Creek: Left Coast Press.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Copyright information

© 2016 The Author(s)

About this chapter

Cite this chapter

Gubrium, A., Fiddian-Green, A., Hill, A. (2016). Conflicting Aims and Minimizing Harm: Uncovering Experiences of Trauma in Digital Storytelling with Young Women. In: Warr, D., Guillemin, M., Cox, S., Waycott, J. (eds) Ethics and Visual Research Methods. Palgrave Macmillan, New York. https://doi.org/10.1057/978-1-137-54305-9_12

Download citation

Publish with us

Policies and ethics