Abstract
The story of phantom data, of digital specters and data revenants, is a true story. It is a story born from and haunted by death, in which death is made lively through data’s mobility. You could say that it is a hard-boiled ghost story. Focus is on how these data phantoms haunt health information in the USA. Such information is often assumed to be “private data,” as it is produced by patients within digitized healthcare systems, but these data in fact go on to be innovated upon, packaged into new data assets, commodified and traded among data brokers.
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Ebeling, M.F.E. (2016). Out of Death, a Birth. In: Healthcare and Big Data. Palgrave Macmillan, New York. https://doi.org/10.1057/978-1-137-50221-6_1
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