Going ‘Off Grid’: A Mother’s Account of Refusing Disability
This chapter provides an account of a mother’s efforts to refuse ‘disability’ on behalf of her son. Using queer studies, queer phenomenology and Titchkosky’s recent work on the pedagogic possibilities of the disabled body, this chapter uses a mother’s account of living through and beyond ‘disability’ to highlight how counting as human off the ableist grid is a problematic but necessary risk. It includes, as a performative act of unbecoming, a letter written to the family doctor explaining the mother’s refusal to follow through with a psychiatric consultation for her son in fear of reconnecting with the disabling ableist grid.
KeywordsDisableism Refusing disability Critical disability studies Becoming human Unbecoming disabled
- Bhabha, H. K. (1994). The Location of Culture. New York: Routledge.Google Scholar
- Butler, J. (2004). Undoing Gender. New York: Routledge.Google Scholar
- Halberstam, J. (1998). The Anti-social Turn in Queer Studies. GJSS Graduate Journal of Social Science, 5(2), 140–156.Google Scholar
- Harwood, V. (2006). Diagnosing ‘Disorderly’ Children: A Critique of Behaviour Disorder Discourses. London: Routledge.Google Scholar