Abstract
Whilst increasing numbers of children and young people are actively engaging in research, disabled children and young people’s voices remain marginalised. There are examples of disabled children’s active participation in research studies, but traditionally their roles have been that of passive recipients and objects of enquiry. Seeking out only voices that are easy to hear and easily translatable severely limits the soundscapes of childhood. The ethnography explored here adopts a reflexive approach, using active listening skills as opposed to passive hearing and giving children with disabilities a platform from which to project their voices. This illustrates how disabled children and young people can share their experiences of using augmentative and alternative forms of communication and acknowledges that they have much to say.
My apprenticeship into ethnography began as I started my PhD studies in 2008 whereupon I undertook research with disabled children and young people who had little or no speech. As I engaged with the young participants, my skills as an ethnographer developed and my sensorial acclimatisation to social practices began. By paying close attention, my ability to listen to voices that were different became much more acute. As an embodied knowledge of these young participants began to emerge, I started talking and writing about personal accounts of doing social research and sharing my stories of interactions with others.
This chapter continues with this practice and shares some aspects of my research journey, drawing on the sensory experiences of ethnographic practices of listening that I have encountered thus far.
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References
Abbott, D. (2013). Who Says What, Where, Why and How? Doing Real-World Research with Disabled Children, Young People and Family Members. In T. Curran & K. Runswick-Cole (Eds.), Disabled Children’s Childhood Studies. Basingstoke: Palgrave Macmillan.
Alcoff, L. M. (2009). The Problem of Speaking for Others. In A. Y. Jackson & L. A. Mazzei (Eds.), Voice in Qualitative Inquiry. Challenging Conventions, Interpretive and Critical Conceptions in Qualitative Research. London: Routledge.
Alderson, P., & Montgomery, J. (1996). Healthcare Choices: Making Decisions with Children. London: Institute for Public Policy Research.
Archer, M. (1995). Realist Social Theory: The Morphogenetic Approach. Cambridge: Cambridge University Press.
Back, L. (2007). The Art of Listening. Oxford: Berg.
Becker, H. (1967, Winter). Whose Side Are We On? Social Problems, 14(3), 239–247.
Beresford, B. (1997). Personal Accounts: Involving Disabled Children in Research. Norwich: Social Policy Research Unit.
Bluebond-Langner, M. (1978). The Private World of Dying Children. Princeton, NJ: Princeton University Press.
Boggis, A. (2011). Deafening Silences: Researching with Inarticulate Children. Disability Studies Quarterly, 31(4), 1–7.
Booth, T., & Booth, W. (1996). Sounds of Silence: Narrative Research with Inarticulate Subjects. Disability and Society, 18(Pt. 4), 431–442.
Christensen, P., & Prout, A. (2002). Working with Ethical Symmetry in Social Research with Children. Childhood, 9(4), 477–497.
Clarke, A., & Moss, P. (2001). Listening to Young Children: The Mosaic Approach. London: National Children’s Bureau.
Cloke, P., Cook, I., Crang, P., Goodwin, M., Painter, J., & Philo, C. (2004). Practicing Human Geographies. London: Sage.
Corsaro, W. A. (1997). The Sociology of Childhood. Thousand Oaks, CA: Pine Forges Press.
Crang, M., & Cook, I. (2007). Doing Ethnographies. London: Sage.
Curran, T., & Runswick-Cole, K. (Eds.). (2013). Disabled Children’s Childhood Studies. Critical Approaches in a Global Context. London: Palgrave Macmillan.
Eisner, E. (1991). The Enlightened Eye: Qualitative Inquiry and the Enhancement of Educational Practice. Toronto: Collier Macmillan Canada.
Emond, R. (2000). Survival of the Skilful: An Ethnographic Study of Two Groups of Young People in Residential Care. Unpublished doctoral thesis, University of Stirling.
Fine, M. (1992). Passions, Politics and Power: Feminist Research Possibilities. In M. Fine (Ed.), Disruptive Voices: The Possibilities of Feminist Research. Ann Arbor: University of Michigan Press.
Franklin, A., & Sloper, P. (2009). Supporting the Participation of Disabled Children and Young People in Decision-Making. Children and Society, 23, 3–15.
Giddens, A. (1984). The Constitution of Society. Cambridge: Polity Press.
Gilligan, C. (1993). In a Different Voice (2nd ed.). London: Harvard University Press.
Goodley, D. (2011). Disability Studies: An Interdisciplinary Introduction. London: Sage.
Goodley, D., & Runswick-Cole, K. (2011). Cyborgs: Photovoice and Disabled Children. Presentation to ESRC Seminar Series: Researching the Lives of Disabled Children with a Focus on their Perspectives Seminar 4. Recent Research, University of Bristol, 21st January. Retrieved January 14, 2016, from http://www.strath.ac.uk/humanities
Haugen, G. M. D. (2008). Children’s Perspectives on Everyday Experiences of Shared Residence: Time, Emotions and Agency Dilemmas. Children and Society, 11, 71–94.
Huber, J., & Clandinin, D. J. (2002). Ethical Dilemmas in Relational Narrative Enquiry with Children. Qualitative Inquiry, 8(Pt. 6), 785–803.
James, A., & Prout, A. (1997). Re-presenting Childhood: Time and Transition in the Study of Childhood. In A. James & A. Prout (Eds.), Constructing and Reconstructing Childhood. London: Falmer Press.
Komarovsky, M. (1988). The New Feminist Scholarship: Some Precursors and Polemics. Journal of Marriage and Family, 50, 585–593.
Lewis, A. (2010). Silence in the Context of ‘Child Voice’. Children and Society, 24, 14–23.
MacNaughton, G., Hughes, P., & Smith, K. (2007). Young Children’s Rights and Public Policy: Practices and Possibilities for Citizenship in the Early Years. Children and Society, 21, 458–469.
Mascia-Lees, F. E., Sharpe, P., & Cohen, C. B. (1989). The Postmodern Turn in Anthropology: Cautions from a Feminist Perspective. Signs, 15, 7–33.
Mayall, B. (2002). Towards a Sociology for Childhood. Thinking from Children’s Lives. Maidenhead: Open University Press.
Mazzei, L. A. (2009). An Impossibly Full Voice. In A. Y. Jackson & L. A. Mazzei (Eds.), Voice in Qualitative Inquiry. London: Routledge.
Morris, J. (1993). Independent Lives: Community Care and Disabled People. Basingstoke: Macmillan.
Morris, J. (1998). Don’t Leave Us Out! Involving Disabled Children and Young People with Communication Impairments. York: Joseph Rowntree Foundation.
Oliver, M. (1983). Social Work and Disabled People. Basingstoke: Macmillan.
Oliver, M. (1990). The Politics of Disablement. Basingstoke: Macmillan.
Oliver, M. (2009). Understanding Disability: From Theory to Practice (2nd ed.). Basingstoke: Palgrave Macmillan.
Paterson, K., & Hughes, B. (1999). Disability Studies and Phenomenology: The Carnal Politics of Everyday Life. Disability and Society, 14(Pt. 5), 597–611.
Pink, S. (2015). Doing Sensory Ethnography (2nd ed.). London: Sage.
Priestly, M. (1999). Discourse and Identity: Disabled Children in Mainstream High Schools. In M. Corker & S. French (Eds.), Disability Discourse. Buckingham: Open University Press.
Prout, A. (2000). The Body, the Childhood and Society. Basingstoke: Macmillan Press.
Prout, A., & Hallett, C. (2003). Introduction. In Hearing the Voices of Children: Social Policy for a New Century. London: RoutledgeFalmer.
Reinharz, S. (1992). Feminist Methods in Social Research. Oxford: Oxford University Press.
Richards, S., Clark, J., & Boggis, A. (2015). Ethical Research with Children. Untold Narratives and Taboos. Basingstoke: Palgrave Macmillan.
Richardson, L. (1990). Writing Strategies: Researching Diverse Audiences. Thousand Oaks, CA: Sage.
Rose, G. (1997). Situating Knowledges: Positionality, Reflexivities and Other Tactics. Progress in Human Geography, 21(Pt. 3), 305–320.
Sherman Heyl, B. (2001). Ethnographic Interviewing. In C. Seale (Ed.), Researching Society and Culture. London: Sage.
Smart, C., Neale, B., & Wade, A. (2001). The Changing Experience of Childhood: Families and Divorce. Cambridge: Polity Press.
Stalker, K., & Connors, C. (2003). Communicating with Disabled Children. Adoption and Fostering, 27(1), 26–35.
Stanley, L., & Wise, S. (1993). Breaking Out: Feminist Consciousness and Feminist Research. London: Routledge and Kegan Paul.
Stones, R. (2005). Structuration Theory. Basingstoke: Palgrave Macmillan.
Temple, B., & Young, A. (2004). Qualitative Research and Translation Dilemma. Qualitative Research, 4(Pt. 2), 161–178.
United Nations. (1989). Conventions on the Rights of the Child. Geneva: United Nations.
Veale, A. (2005). Creative Methodologies in Participatory Research with Children. In S. Green & D. Hogan (Eds.), Researching Children’s Experience: Approaches and Methods. London: Sage.
Weinberg, D. (2006). The Language of Social Science: A Brief Introduction. In P. Drew, G. Raymond, & D. Weinberg (Eds.), Talk and Interaction in Social Research Methods. London: Sage.
Wickenden, M. (2011). ‘Give Me Time and I Will Tell You’: Using Ethnography to Investigate Aspects of Identity with Teenagers Who Use Alternative and Augmentative Methods to Communication. In S. Roulstone & S. McLeod (Eds.), Listening to Children and Young People with Speech, Language and Communication Needs. Guildford: J&R Press.
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Boggis, A. (2018). Ethnographic Practices of Listening. In: Vine, T., Clark, J., Richards, S., Weir, D. (eds) Ethnographic Research and Analysis. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-58555-4_5
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