Abstract
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Most African families with disabled children in Africa lack support in raising their disabled children.
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An unsupportive environment makes it very difficult for families to foster the development of their disabled family member.
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African child development systems have the potential of supporting disabled children and their families.
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Such systems are based on the philosophy that it takes the whole village to raise a child.
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There is need for the support of disability organisations as well as inclusion in community groups and self-advocacy of disabled children.
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References
Abberley, P. (1987). The Concept of Oppression and The Development of Social Theory of Disability. Disability, Handicap and Society, 2, 5–19.
ACPF. (2014). The African Report on Children with Disabilities: Promising Starts and Persisting Challenges. Addis Ababa. The African Child Policy Forum (ACPF).
Aldersey, H. M. (2012). Family Perceptions of Intellectual Disability: Understanding and Support in Dar es Salaam. African Journal of Disability, 1(1). doi:10.4102/ajod.v1i1.32.
Barnes, C. (1990). “Cabbage Syndrome”: The Social Construction of Dependence. London: Falmer Press.
Barrios, S., Bertinelli, L., & Strobl, E. (2006). Climatic Change and Rural–Urban Migration: The Case of Sub-Saharan Africa. Journal of Urban Economics, 60(3), 357–371.
Burman, E. (2008). Developments: Child, Image, Nation. New York: Routledge.
California Department of Developmental Services. (2012). Effective Practice in Providing Family Support: Making It Real for Families of Infants and Toddlers with Disabilities. Retrieved from: http://www.dds.ca.gov/EarlyStart/docs/17739_EffectivePractice_FamilySupport_final100212.pdf. Accessed 17 Dec 2015.
Casale, M. (2015). The Importance of Family and Community Support for the Health of HIV-Affected Populations in Southern Africa: What Do We Know and Where to From Here? British Journal of Health Psychology, 20(1), 21–35. doi:10.1111/bjhp.12127.
Ceballo, R., & McLoyd, V. C. (2002). Social Support and Parenting in Poor, Dangerous Neighborhoods. Child Development, 73(4), 1310–1321.
Chataika, T. (2007). Inclusion of Disabled Students in Higher Education in Zimbabwe: From Idealism to Reality-a Social Ecosystem Perspective (Doctoral Dissertation, University of Sheffield).
Chataika, T. (2013). Cultural and Religious Explanations of Disability and Promoting Inclusive Communities. In J. M. Claassen, L. Swartz, & L. Hansen (Eds.), Search for Dignity: Conversations on Human Dignity, Theology and Disability (pp. 117–128). Cape Town: African Sun Media (Stellenbosch University). ISBN 978-1-919985-47-3.
Chataika, T., & McKenzie, J. (2013). Considerations of an African Childhood Disability Studies. In K. Runswick-Cole & T. Curran (Eds.), Disabled Children’s Childhood Studies: Critical Approaches in a Global Context (pp. 152–163). New York: Palgrave Macmillan.
De Sas Kropiwnicki, Z. O., Elphick, J., & Elphick, R. (2014). Standing by Themselves: Caregivers’ Strategies to Ensure the Right to Education for Children with Disabilities in Orange Farm, South Africa. Childhood, 21(3), 354–368. doi:10.1177/0907568214526263.
Gara, N. (2007). Effects of Caring on Mothers of Intellectually Disabled Children in Alice, Eastern Cape, South Africa. (M Phil, School of Health and Rehabilitation Sciences, Faculty of Health).
Grech, S. (2013). Disability, Childhood and Poverty: Critical Perspectives on Guatemala. In K. Runswick-Cole & T. Curran (Eds.), Disabled Children’s Childhood Studies: Critical Approaches in a Global Context (pp. 89–104). Basingstoke: Palgrave Macmillan.
Greeff, A. P., & Loubser, K. (2008). Spirituality as a Resiliency Quality in Xhosa-Speaking Families in South Africa. Journal of Religion and Health, 47(3), 288–301.
Ha, J., Greenberg, J. S., & Seltzer, M. M. (2010). Parenting a Child with a Disability: The Role of Social Support for African American Parents. Families in Society, 92(4), 405–411.
Harkness, S., & Super, C. M. (1992). Parental Ethnotheories in Action. In I. Sigel, A. V. McGillicuddy-DeLisi, & J. Goodnow (Eds.), Parental Belief Systems: The Psychological Consequences for Children (2nd ed., pp. 373–392). Hillsdale: Erlbaum.
Hartley, S., Ojwang, P., Baguwemu, A., Ddamulira, M., & Chavuta, A. (2005). How Do Carers of Disabled Children Cope? The Ugandan Perspective. Child: Care, Health and Development, 31(2), 167–180. doi:10.1111/j.1365-2214.2004.00464.x.
James, A. L. (2010). Competition or Integration? The Next Step in Childhood Studies? Childhood, 17(4), 485–499. doi:10.1177/0907568209350783.
Kalyanpur, M. (2014). Distortions and Dichotomies in Inclusive Education for Children with Disabilities in Cambodia in the Context of Globalisation and International Development. International Journal of Disability, Development & Education, 61(1), 80–94. doi:10.1080/1034912X.2014.878546.
Kisanji, J. (1995). Growing Up Disabled. In P. Zinkin & H. McConachie (Eds.), Disabled Children and Developing Countries (pp. 183–199). London: MacKeith.
Kittay, E. (1999). Love’s Labour: Essays on Women, Equality and Dependency. New York: Routledge.
Kittay, E., Jennings, B., & Wasunna, A. A. (2005). Dependency, Difference and the Global Ethic of Longterm Care. Journal of Political Philosophy, 13(4), 443–469. Retrieved from doi:10.1111/j.1467-9760.2005.00232.
Knussen, C., & Sloper, P. (1992). Stress in Families of Children with Disability: A Review of Risk and Resistance Factors. Journal of Mental Health, 1(3), 241–256.
Louw, D. J. (2006). The African Concept of Ubuntu. In D. Sullivan & L. Tifft (Eds.), Handbook of Restorative Justice: A Global Perspective (pp. 161–174). New York: Routledge.
McKenzie, J. (2013). Disabled People in Rural South Africa Talk About Sexuality. Culture, Health & Sexuality, 15(3), 372–386. doi:10.1080/13691058.2012.748936.
McKenzie, J. A. (2016). An Exploration of an Ethics of Care in Relation to People with Intellectual Disability and Their Family Caregivers in the Cape Town Metropole in South Africa. ALTER-European Journal of Disability Research/Revue Européenne de Recherche sur le Handicap, 10(1), 67–78.
McKenzie, J., & McConkey, R. (2016). Caring for Adults with Intellectual Disability: The Perspectives of Family Carers in South Africa. Journal of Applied Research in Intellectual Disabilities, 29(6), 531–541.
Meekosha, H. (2008). Contextualizing Disability: Developing Southern/Global Theory. Powerpoint Presentation. 4th Biennial Disability …(September). Retrieved from http://wwda.org.au/meekosha2008.pdf. Accessed 10 Feb 2016.
Mladenov, T. (2015). Neoliberalism, Postsocialism, Disability. Disability & Society, 30(3), 445–459.
Moore, E., & Govender, R. (2013). Marriage and Cohabitation in South Africa: An Enriching Explanation? Journal of Comparative Family Studies, 44(5), 623–639.
Muderedzi, J., & Ingstad, B. (2011). Disability and Social Suffering in Zimbabwe. In A. E. Eide & B. Ingstad (Eds.), Disability and Poverty, A Global Challenge. Bristol: Policy.
Nsamenang, A. B. (2003). Conceptualizing Human Development and Education in Sub-Saharan Africa at the Interface of Indigenous and Exogenous Influences. In T. S. Saraswathi (Ed.), Cross-Cultural Perspectives in Human Development: Theory, Research, and Applications (pp. 213–235). New Delhi: Sage.
Nsamenang, A. B. (2004). Cultures of human development and education: Challenge to growing up African. New York, NY: Nova Science Publishers.
Nsamenang, A. B. (2005). The Intersection of Traditional African Education with School Learning. In L. Swartz, C. de la Rey, & N. Duncan (Eds.), Psychology. Oxford: Oxford University Press.
Nsamenang, B. (2006). Human Ontogenesis: An Indigenous African View on Development and Intelligence. International Journal of Psychology, 41(4), 293–297.
Nsamenang, A. B., & Lamb, M. E. (1994). Socialization of Nso Children in the Bamenda Grassfields of Northwest Cameroon. In P. M. Greenmailed & R. R. Cocking (Eds.), Cross-Cultural Roots of Minority Child Development (pp. 133–146). Hillsdale: Lawrence Erlbaum Associates, Inc.
Ogunaike, O. A., & Houser, R. F., Jr. (2002). Yoruba Toddler’s Engagement in Errands and Cognitive Performance on the Yoruba Mental Subscale. International Journal of Behavioral Development, 26, 145–153.
Oliver, M. (1996). Understanding Disability: From Theory to Practice. New York: St. Martin’s Press.
Palmer, M. (2011). Disability and Poverty: A Conceptual Review. Journal of Disability Policy Studies, 21(4), 210–218.
Pence, A., & Nsamenang, B. (2008). A Case for Early Childhood Development in Sub-Saharan Africa (Working Paper No. 51). The Hague, The Netherlands: Bernard van Leer Foundation.
Rauktis, M. E., Koeske, G. F., & Tereshko, O. (1995). Negative Social Interactions, Distress, and Depression Among Those Caring for a Seriously and Persistently Mentally III Relative. American Journal of Community Psychology, 23(2), 279–299.
Rogoff, B. (2003). The Cultural Nature of Human Development. New York: Oxford University Press.
Serpell, R. (1994). An African Social Selfhood: Review of A. Bame Nsamenang (1992): Human Development in Cultural Context. Cross-Cultural Psychology Bulletin, 28, 17–21.
Serpell, R., Mariga, L., & Harvey, K. (1993). Mental retardation in African countries: Conceptualization, services, and research. International review of research in mental retardation, 19, 1–39.
Smith, T. B., Oliver, M. N., & Innocenti, M. S. (2001). Parenting Stress in Families of Children with Disabilities. American Journal of Orthopsychiatry, 71(2), 257.
Tarusarira, W. (2016). The Family-Support Needs of Zimbabwean Asylum-Seeking Families Living with Their Disabled Children in the Western Cape Province of South Africa. Master’s in Philosophy (MPhil) in Disability Studies. Faculty of Health Sciences. University of Cape Town.
Terre des Hommes Nederland. (2007). Hidden Shame: Violence Against Children with Disabilities in East Africa. Retrieved from: http://www.ohchr.org/Documents/Issues/Women/WRGS/GirlsAndDisability/OtherEntities/TerreDesHommes.pdf. Accessed 16 Dec 2015.
The African Child Policy Forum. (2014). The African Report on Children with Disabilities: Promising Starts and Persisting Challenges. Addis Ababa: The African Child Policy Forum (ACPF).
Times Live. (2015). West Africa Schools Tackle Stigma of Disability. Retrieved from: http://www.timeslive.co.za/africa/2015/12/02/West-Africa-schools-tackle-stigma-of-disability. RETUERS. Accessed 17 Dec 2015.
UNICEF. (2013). The State of the World’s Children 2013: Children with Disabilities. New York: UNICEF.
Watermeyer, B., & McKenzie, J. (2014). Mothers of Disabled Children: In Mourning or on the March? Journal of Social Work Practice, 28(4), 405–416.
Weisner, T. S. (1987). Socialization for Parenthood in Sibling Caretaking Societies. In J. B. Lancaster, J. Altman, A. S. Rossi, & L. R. Sherrod (Eds.), Parenting Across the Lifespan: Biosocial Dimensions (pp. 237–270). Hawthorne: Aldine de Gruyter.
World Health Organisation & World Bank. (2011). World Report on Disability. New York: WHO & World Bank.
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McKenzie, J., Chataika, T. (2018). Supporting Families in Raising Disabled Children to Enhance African Child Development. In: Runswick-Cole, K., Curran, T., Liddiard, K. (eds) The Palgrave Handbook of Disabled Children’s Childhood Studies. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-54446-9_21
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