Skip to main content

Personalisation Policy and Parents: The Formalisation of Family Care for Adult Children with Learning Disabilities in England

  • Chapter
  • First Online:
The Palgrave Handbook of Disabled Children’s Childhood Studies
  • 2175 Accesses

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 219.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 279.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Anonymous Family Carer. (2008). In Control? Making Sure We Are Not Out of Control! Some Issues for People Considering a Direct Payment or Individualized Budget. The Journal of Adult Protection, 10(3), 14–22.

    Article  Google Scholar 

  • Arksey, H., & Baxter, K. (2012). Exploring the Temporal Aspects of Direct Payments. British Journal of Social Work, 42(1), 147–164.

    Article  Google Scholar 

  • Beresford, P. (2001). Service Users, Social Policy and the Future of Welfare Critical Social Policy, 21(4), 494–512.

    Article  Google Scholar 

  • Carers UK. (2008). Choice or Chore? Carers Experience of Direct Payments. London: Carers UK.

    Google Scholar 

  • Coles, B. A. (2013). ‘Suitable People’: An (Auto) Ethnographic Study of Parents’ Experiences of Managing Direct Payments for Their Adult Children Who Have Severe Learning Disabilities and Complex Support Needs. Unpublished, Norah Fry Research Centre, University of Bristol.

    Google Scholar 

  • Coles, B. (2015). A ‘Suitable Person’: An ‘Insider’ Perspective. British Journal of Learning Disabilities (John Wiley & Sons Ltd.), 43, 135–141.

    Google Scholar 

  • Department of Health. (1996). Disabled Persons (Services, Consultation and Representation) Act. London: HMSO.

    Google Scholar 

  • Department of Health. (2003). Direct Payment Guidance: Community Care Services for Carers and Children’s Services (Direct Payment Guidance). London: HMSO.

    Google Scholar 

  • Department of Health. (2005). Mental Capacity Act (England and Wales). London: HMSO.

    Google Scholar 

  • Department of Health. (2006). Our Health, Our Care, Our Say. London: HMSO.

    Google Scholar 

  • Department of Health. (2008). An Introduction to Personalisation. London: HMSO.

    Google Scholar 

  • Department of Health. (2009). Guidance on Direct Payments for Community Care, Services for Carers and Children’s Services: England 2009. London: HMSO.

    Google Scholar 

  • Department of Health. (2010a). Carers and Personalisation: Improving Outcomes. London: HMSO.

    Google Scholar 

  • Department of Health. (2010b). Recognised, Valued and Supported: Next Steps for the Carers Strategy. London: HMSO.

    Google Scholar 

  • Emerson, E., & Hatton, C. (2008). People with Learning Disabilities in England (pp. 26–27). Lancaster: Centre for Disability Research. Lancaster University.

    Google Scholar 

  • Foucault, M. (1982). The Subject and Power (Afterword). In H. L. Drefus & P. Rabinow (Eds.), Michel Foucault: Beyond Structuralism and Hermeneutics. Brighton: Harvester.

    Google Scholar 

  • Geertz, C. (1989). Works and Lives: The Anthropologist as Author. In Spry, T. (2001). Performing Autoethnography: An Embodied Methodological Praxis. Qualitative Enquiry, 7(6).

    Google Scholar 

  • Glendinning, C., Moran, N., & Rabiee, P. (2008). Evaluation of the Individual Budget Initiative (IBSEN). York: Social Policy Research Unit, University of York. http://php.york.ac.uk/inst/spru/research/summs/ibsen.php

  • Glendinning, C., Tjadens, F., Arksey, H., Moree, M., Moran, N., & Nies, H. (2009). Care Provision Within Families and Its Socio-Economic Impact on Care Providers. York: Social Policy Research Unit, University of York.

    Google Scholar 

  • Hammersley, M., & Atkinson, P. (2009). Ethnography: Principles and Practice (3rd ed.). London/New York: Routledge.

    Google Scholar 

  • Held, V. (2006). The Ethics of Care: Personal, Political and Global. In Lloyd, L. (2012). Health and Care in Ageing Societies: A New International Approach (p. 4). The Policy Press.

    Google Scholar 

  • Mitchell, W., Glendinning, C., & Brooks, J. (2014). Carers’ Roles in Personal Budgets: Tensions and Dilemmas in Front Line Practice. British Journal of Social Work. doi:10.1093/bjsw/bcu018.

  • Moran, N., Glendinning, C., Stevens, M., Manthorpe, J., Jacobs, S., Wilberforce, M., Knapp, M., Challis, D., Fernandez, J. L., Jones, K., & Netten, A. (2011). Joining Up Government by Integrating Funding Streams? The Experiences of the Individual Budget Pilot Projects for Older and Disabled People in England. International Journal of Public Administration, 34(4), 232–233.

    Article  Google Scholar 

  • Spry, T. (2001). Performing Autoethnography: An Embodied Methodological Praxis. Qualitative Inquiry, 7, 706–723.

    Article  Google Scholar 

  • Taylor, S., & Bogdan, R. (1989). Introduction to Qualitative Research. In Aronson, J. (1994). A Pragmatic View of Thematic Analysis. The Qualitative Report, 2(1, Spring).

    Google Scholar 

  • Williams, F. (2010). Claiming and Framing in the Making of Our Policies: The Recognition and Redistribution of Care. In Lloyd, L. (2012). Health and Care in Ageing Societies: A New International Approach. The Policy Press.

    Google Scholar 

  • Williams, V. (2013). Learning Disability Policy and Practice: Changing Lives? London: Palgrave Macmillan.

    Book  Google Scholar 

  • Williams, V., & Robinson, C. (2000). In Their Own Right: The Carers Act and Carers of People with Learning Disabilities. Bristol: The Policy Press.

    Google Scholar 

  • Williams, V., & Robinson, C. (2001). More Than One Wavelength: Identifying, Understanding and Resolving Conflicts of Interest Between People with Intellectual Disabilities and the Family Carers. Journal of Applied Research in Intellectual Disabilities, 14, 30–46.

    Article  Google Scholar 

  • Williams, V., Robinson, C., Simons, K., Gramlich, S., McBride, G., Snelham, N., & Myres, B. (2003). Paying the Piper and Calling the Tune? The Relationship Between Parents and Direct Payments for People with Learning Disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 219–228.

    Article  Google Scholar 

  • Williams, V., Porter, S., & Strong, S. (2013). The Shifting Sands of Support Planning. Journal of Integrated Care, 21(3), 139–147.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Copyright information

© 2018 The Author(s)

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Coles, B. (2018). Personalisation Policy and Parents: The Formalisation of Family Care for Adult Children with Learning Disabilities in England. In: Runswick-Cole, K., Curran, T., Liddiard, K. (eds) The Palgrave Handbook of Disabled Children’s Childhood Studies. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-54446-9_19

Download citation

  • DOI: https://doi.org/10.1057/978-1-137-54446-9_19

  • Published:

  • Publisher Name: Palgrave Macmillan, London

  • Print ISBN: 978-1-137-54445-2

  • Online ISBN: 978-1-137-54446-9

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics