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References
Anonymous Family Carer. (2008). In Control? Making Sure We Are Not Out of Control! Some Issues for People Considering a Direct Payment or Individualized Budget. The Journal of Adult Protection, 10(3), 14–22.
Arksey, H., & Baxter, K. (2012). Exploring the Temporal Aspects of Direct Payments. British Journal of Social Work, 42(1), 147–164.
Beresford, P. (2001). Service Users, Social Policy and the Future of Welfare Critical Social Policy, 21(4), 494–512.
Carers UK. (2008). Choice or Chore? Carers Experience of Direct Payments. London: Carers UK.
Coles, B. A. (2013). ‘Suitable People’: An (Auto) Ethnographic Study of Parents’ Experiences of Managing Direct Payments for Their Adult Children Who Have Severe Learning Disabilities and Complex Support Needs. Unpublished, Norah Fry Research Centre, University of Bristol.
Coles, B. (2015). A ‘Suitable Person’: An ‘Insider’ Perspective. British Journal of Learning Disabilities (John Wiley & Sons Ltd.), 43, 135–141.
Department of Health. (1996). Disabled Persons (Services, Consultation and Representation) Act. London: HMSO.
Department of Health. (2003). Direct Payment Guidance: Community Care Services for Carers and Children’s Services (Direct Payment Guidance). London: HMSO.
Department of Health. (2005). Mental Capacity Act (England and Wales). London: HMSO.
Department of Health. (2006). Our Health, Our Care, Our Say. London: HMSO.
Department of Health. (2008). An Introduction to Personalisation. London: HMSO.
Department of Health. (2009). Guidance on Direct Payments for Community Care, Services for Carers and Children’s Services: England 2009. London: HMSO.
Department of Health. (2010a). Carers and Personalisation: Improving Outcomes. London: HMSO.
Department of Health. (2010b). Recognised, Valued and Supported: Next Steps for the Carers Strategy. London: HMSO.
Emerson, E., & Hatton, C. (2008). People with Learning Disabilities in England (pp. 26–27). Lancaster: Centre for Disability Research. Lancaster University.
Foucault, M. (1982). The Subject and Power (Afterword). In H. L. Drefus & P. Rabinow (Eds.), Michel Foucault: Beyond Structuralism and Hermeneutics. Brighton: Harvester.
Geertz, C. (1989). Works and Lives: The Anthropologist as Author. In Spry, T. (2001). Performing Autoethnography: An Embodied Methodological Praxis. Qualitative Enquiry, 7(6).
Glendinning, C., Moran, N., & Rabiee, P. (2008). Evaluation of the Individual Budget Initiative (IBSEN). York: Social Policy Research Unit, University of York. http://php.york.ac.uk/inst/spru/research/summs/ibsen.php
Glendinning, C., Tjadens, F., Arksey, H., Moree, M., Moran, N., & Nies, H. (2009). Care Provision Within Families and Its Socio-Economic Impact on Care Providers. York: Social Policy Research Unit, University of York.
Hammersley, M., & Atkinson, P. (2009). Ethnography: Principles and Practice (3rd ed.). London/New York: Routledge.
Held, V. (2006). The Ethics of Care: Personal, Political and Global. In Lloyd, L. (2012). Health and Care in Ageing Societies: A New International Approach (p. 4). The Policy Press.
Mitchell, W., Glendinning, C., & Brooks, J. (2014). Carers’ Roles in Personal Budgets: Tensions and Dilemmas in Front Line Practice. British Journal of Social Work. doi:10.1093/bjsw/bcu018.
Moran, N., Glendinning, C., Stevens, M., Manthorpe, J., Jacobs, S., Wilberforce, M., Knapp, M., Challis, D., Fernandez, J. L., Jones, K., & Netten, A. (2011). Joining Up Government by Integrating Funding Streams? The Experiences of the Individual Budget Pilot Projects for Older and Disabled People in England. International Journal of Public Administration, 34(4), 232–233.
Spry, T. (2001). Performing Autoethnography: An Embodied Methodological Praxis. Qualitative Inquiry, 7, 706–723.
Taylor, S., & Bogdan, R. (1989). Introduction to Qualitative Research. In Aronson, J. (1994). A Pragmatic View of Thematic Analysis. The Qualitative Report, 2(1, Spring).
Williams, F. (2010). Claiming and Framing in the Making of Our Policies: The Recognition and Redistribution of Care. In Lloyd, L. (2012). Health and Care in Ageing Societies: A New International Approach. The Policy Press.
Williams, V. (2013). Learning Disability Policy and Practice: Changing Lives? London: Palgrave Macmillan.
Williams, V., & Robinson, C. (2000). In Their Own Right: The Carers Act and Carers of People with Learning Disabilities. Bristol: The Policy Press.
Williams, V., & Robinson, C. (2001). More Than One Wavelength: Identifying, Understanding and Resolving Conflicts of Interest Between People with Intellectual Disabilities and the Family Carers. Journal of Applied Research in Intellectual Disabilities, 14, 30–46.
Williams, V., Robinson, C., Simons, K., Gramlich, S., McBride, G., Snelham, N., & Myres, B. (2003). Paying the Piper and Calling the Tune? The Relationship Between Parents and Direct Payments for People with Learning Disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 219–228.
Williams, V., Porter, S., & Strong, S. (2013). The Shifting Sands of Support Planning. Journal of Integrated Care, 21(3), 139–147.
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Coles, B. (2018). Personalisation Policy and Parents: The Formalisation of Family Care for Adult Children with Learning Disabilities in England. In: Runswick-Cole, K., Curran, T., Liddiard, K. (eds) The Palgrave Handbook of Disabled Children’s Childhood Studies. Palgrave Macmillan, London. https://doi.org/10.1057/978-1-137-54446-9_19
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