‘How Did You Get that Scar?’ Gender and the Appropriation of Visibly Marked Bodies
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This chapter aims to unravel how gender and age intersect in the ways in which women learn to live with pacemakers and ICDs. Although all wired heart cyborgs have to appropriate their technologically transformed bodies, women may face other vulnerabilities, partly because these devices are designed to fit adult male bodies. During my fieldwork, I learnt that scars, resulting from the implantation of pacemakers and ICDs, constitute a major problem, particularly for women. Although these heart devices are inserted under the skin, they leave their marks on the body. To conceptualize how women learn to live with their visibly marked bodies, I adopt and refine the theory of passing developed in disability studies. This chapter describes how gendered mismatches between devices, bodies, and Western cultural norms about femininity and beauty contribute to a techno-geography of resilience, which delegates new responsibilities to women.
- Altman, L. K. (2002, January 18). Arne H. W. Larsson, 86, had first internal pacemaker. The New York Times. www.nytimes.com/2002/01/18/world/arne-h-w-larsson-86-had-first-internal-pacemaker.html. Accessed 7 Feb 2012.
- Anonymous. (2001). Biography of Arne Larsson. Heart Rhythm Society online. www.hrsonline.org/news/ep-history/notable-figures/arnelarsson.cfm. Accessed 7 Feb 2012.
- Anonymous. (2010). ICDs at a glance. http://icdusergroup.blogspot.co.UK/2010/09/icds-at-glance.html. Accessed 10 Feb 2012.
- Anonymous. (2015, November 2). New push for pint-sized medical devices to treat sick kids. Associated Press. Epoch Times, 5.Google Scholar
- Anonymous. (2017). Patient information about pacemaker insertion procedures at the Johns Hopkins Medical Department. http://www.hopkinsmedicine.org/healthlibrary/test_procedures/cardiovascular/pacemaker_insertion_. Accessed 5 Jan 2017.
- Bartky, S. L. (1997). Foucault, femininity, and the modernization of patriarchal power. In K. Conboy, N. Medina, & S. Stanbury (Eds.), Writing on the body: Female embodiment and feminist theory (pp. 128–154). New York: Columbia University Press.Google Scholar
- Boorsma, P., & Zaadstra, P. (2011). Cijfers en statistieken. ICD Journaal, 2, 29.Google Scholar
- Bordo, S. (1997). The body and the reproduction of femininity. In K. Conboy, N. Medina, & S. Stanbury (Eds.), Writing on the body: Female embodiment and feminist theory (pp. 90–110). New York: Columbia University Press.Google Scholar
- Borkman, T., & Munn-Giddings, C. (2008). Self-help organisations and changing relations between patients/consumers and health care systems in the U.S. and the U.K. In M. S. Chambre & M. Goldner (Eds.), Advances in medical sociology, volume 10: Patients, consumers and civil society (pp. 127–150). Bingley: Emerald Group Publishing Limited.CrossRefGoogle Scholar
- Brune, J. A., & Wilson, D. J. (Eds.). (2013). Disability and Passing: Blurring the lines of identity. Excerpt. Philadelphia: Temple University Press.Google Scholar
- Chandler, E. (2014). Disability and the desire for community. Thesis, University of Toronto.Google Scholar
- Crenshaw, K. (1989). Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics. University of Chicago Legal Forum, 1, Article 8. http://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8. Accessed 8 Apr 2017.
- Crenshaw, K. W. (1991). Mapping the margins: Intersectionality, identity politics, and violence against women of color. Stanford Law Review, 43(6), 1241–1299.Google Scholar
- Cunningham, D., Charles, R., Cunningham, M., de Lange, A. (2012). Cardiac rhythm management: UK National Clinical Audit 2010. London: National Institute for Cardiovascular Outcomes Research.Google Scholar
- Dalibert, L. (2014). Posthumanism and Somatechnologies: Exploring the intimate relations between humans and technologies. PhD thesis, University of Enschede, Enschede.Google Scholar
- de Boer, M.. (2016). Extended bodies: An empirical-philosophical study of women’s bodily experiences in breast cancer. PhD thesis, Maastricht University, Maastricht.Google Scholar
- Derksen, R. (2011). De eigenlijke implantatie van een ICD. ICD Journal, 3, 4–6.Google Scholar
- Epstein, S. (1996). Impure science: Aids, activism, and the politics of knowledge. Berkeley: University of California Press.Google Scholar
- Huberty, D. (2016). Wired4life. My Journey to Becoming Wired. River Falls: CreateSpace Independent Publishing Platform. Updated version 6/2016.Google Scholar
- Jeffrey, K. (2001). Machines in our hearts: The cardiac pacemaker, the implantable defibrillator, and American health care. Baltimore/London: The Johns Hopkins University.Google Scholar
- Kimman, G. P. (2014). Goede uitleg van essentieel belang. STIN Journaal, 3, 22–23.Google Scholar
- Lie, M., & Lykke, N. (Eds.). (2017). Assisted reproduction across Borders: Feminist perspectives on normalizations, disruptions and transmissions. New York and London: Routledge.Google Scholar
- McCall, L. (2005). The complexity of intersectionality. Journal of Women in Culture and Society. http://www.journals.uchicago.edu/doi/pdf/10.1086/426800. Accessed 8 Apr 2017.
- McRuer, R. (2006). Crip theory: Cultural Signs of Queerness and Disability. New York: New York University Press.Google Scholar
- Medtronic, (2017). Getting a Pacemaker Implanted. http://www.medtronic.com/us-en/patients/treatments-therapies/pacemakers/getting.html. Accessed 5 Jan 2017.
- Mol, F., & Sterks, G. (2014). Relativeren is een schone zaak. STIN Journaal, 2, 27.Google Scholar
- Nederlandse Hartstichting. (2017). Hart-en vaatziekten in Nederland in 2017. Cijfers over leeftijd, risicofactoren, ziekte en sterfte.Google Scholar
- Pollock, A. (2008). The internal cardiac defibrillator. In S. Turkle (Ed.), The inner history of devices (pp. 98–110). Cambridge, MA: MIT Press.Google Scholar
- Redberg, R. F. (2007). Disparities in use of implantable cardioverter-defibrillators. Moving beyond process measures to outcomes data. Journal of the American Medical Association, 298(3), 1564–1569.Google Scholar
- Split, R. (2019). De STIN gaat door. https://www.stin.nl. Accessed 7 Mar 2019.
- Taborsky M., & Krautzner, J. (2014). Summary of the 2013 ESC guidelines on cardia pacing and cardia resynchronization. Cor et Vasa, E57–E74.Google Scholar
- Williams, J. L., & Stevenson, R. T. (2017). Complications of pacemaker implantation. In A. Roka (Ed.), Current issues and recent advances in pacemaker therapy. Chapter 6. http://www.intechopen.com/books/current-issues-and-recent-advances-in-pacemaker-therapy. Accessed 2 Feb 2018.
- Witters, C. (2011). Bevolkingsonderzoek naar borstkanker bij ICD draagsters. ICD Journaal, 3, 10–12.Google Scholar
- Yarlagadda, C. (2014). Permanent pacemaker insertion technique. http://emedicine.medscape.com/article/1839735-technique2. Accessed 8 Apr 2017.