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Passive Victims of Faulty Machines? Anticipating and Taming ICD Shocks

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Resilient Cyborgs

Part of the book series: Health, Technology and Society ((HTE))

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Abstract

New technologies produce new sensory experiences. This claim is perhaps revealed most vividly when people with implantable defibrillators endure the shocks these devices give to intervene in life-threatening heart-rhythm disturbances to help prevent a sudden cardiac arrest. Because ICD shocks may happen anywhere, understanding the techno-geography of resilience requires the study of important new spaces such as public places, the home, and online communities. Importantly, defibrillators may give shocks even when they don’t need to. This unwanted agency should not be considered as an intrinsic property of the technology, but it emerges in a techno-legal culture that prioritizes the economic principle of avoiding lawsuits over the quality of care. Reflecting on these findings, I suggest that the vulnerabilities constituted by ICDs introduce a particular kind of ‘existential uncertainty’ (Giddens, Modernity and self-identity: Self and society in the late modern age. Cambridge: Polity Press, 1991). This technology-mediated existential uncertainty involves both constitutive parts of the cyborg: ICDs enhance awareness of both the fragility of bodies and the vulnerability of technologies. Despite these vulnerabilities, people living with ICDs don’t position themselves as passive victims of faulty machines but engage actively in sensing and taming the unwanted agency of their devices to diminish their existential uncertainties.

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Notes

  1. 1.

    News item Medtronic, 29 March 2011. http://www.medicalnewstoday.com. Accessed 15 October 2014.

  2. 2.

    See Chap. 2, endnote 15 for a more detailed description of this source.

  3. 3.

    See Pollock (2008) for similar observations.

  4. 4.

    For example, the educational meeting at the VUMC I observed paid no attention to what patients can expect when their ICDs fire. Hospital websites may include a very brief explanation; for example, that the experiences of shocks varies among patients “from a light thump to a strong kick in the chest” (https://stanfordhealthcare.org/medical-treatments/i/icd.html. Accessed 22 November 2015), but there is no information about inappropriate shocks.

  5. 5.

    The Dutch Society for Heart and Vascular Nurses, for example, distributes a leaflet among patients who have experienced shocks that includes a detailed explanation of the symptoms and experiences of ICD shocks (Anonymous 2014).

  6. 6.

    Oral communication, Heather M. Ross, Arizona State University.

  7. 7.

    See Palmboom and Willems (2014, 281) for a similar observation.

  8. 8.

    Recent articles in cardiology journals also report that inappropriate shocks increase the risk of mortality (Rees et al. 2011, 14), although this risk is downplayed by other researchers affiliated with major ICD manufacturers in the US (Kaiser et al. 2013). Obviously, the stakes are high when it concerns death related to faulty machines. Other damage reported in the scientific literature includes increased risk of heart failure or malign arrhythmia and cellular damage (Toquero et al. 2012).

  9. 9.

    As has been described in Chap. 3, the wires that connect the ICD to the heart are considered as its weakest part. In the past decade, the FDA has issued several recalls of models of major ICD brands because of fractured leads. During these recalls, all affected people were notified of the potential risk of inappropriate shocks, and physicians received instructions for reprogramming or replacing the devices (Frascone et al. 2008).

  10. 10.

    Obviously, ICD manufacturers seem less reluctant to give magnets to patients. They reduce the risk of liability by asking patients to sign off that they understand how to use a magnet and what it does (Bouthillet 2009, 9).

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Oudshoorn, N. (2020). Passive Victims of Faulty Machines? Anticipating and Taming ICD Shocks. In: Resilient Cyborgs. Health, Technology and Society. Palgrave Macmillan, Singapore. https://doi.org/10.1007/978-981-15-2529-2_4

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  • DOI: https://doi.org/10.1007/978-981-15-2529-2_4

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