Working with Assistive Technologies and People Living with Dementia
Assistive technologies (ATs) are currently put forward as one of the solutions to the growing prevalence of dementia and crises of care emerging in major Western economies. However, both design philosophies for technology in dementia and policy discourses for technology implementation have excluded people with dementia. This exclusion has meant that technology research has not yet adequately explored how people with dementia use technology in everyday practice and the spatial, social and technical arrangements in which technologies are used. In this chapter, we explore how technology use among people with dementia is conceptualised, before discussing some of the issues which influence how people with dementia use technologies. We argue that a more nuanced understanding of technologies is gained through exploring the social and technical arrangements in which they are used. Drawing on the notion of an ethics in practice, we also explore how people living with dementia negotiate the dilemmas arising from the everyday use of technology. Finally, the chapter discusses alternative methodologies for investigating technology use in dementia based on co-creation and co-production, alongside some of the practical issues arising when conducting research in relation to technology and its role in dementia care.
KeywordsAssistive technology Telecare People living with dementia Ethics in practice Co-production
This paper presents independent research funded in part by the UK National Institute for Health Research (NIHR) under its ‘Research Professorship’ scheme (Reference Number NIHR-RP-011-043). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR of the Department of Health.
- Baker, S., Waycott, J., Vetere, F., & Hoang, T. (2018). The technology explorers: Partnering with older adults to engage with virtual reality and virtual avatars. In B. Neves & F. Vetere (Eds.), Ageing and digital technology: Designing and evaluating emerging technologies for older adults.Google Scholar
- Cook, E. Randhawa, G., Guppy, A., Sharp, C., Barton, G., Bateman, A., & Crawford-White, J. (2017). Exploring factors that impact the decision to use assistive telecare: Perspectives of family caregivers of older people in the United Kingdom. Ageing and Society. doi: https://doi.org/10.1017/S0144686X1700037X.CrossRefGoogle Scholar
- Gibson, G., Dickinson, C., Brittain, K., & Robinson, L. (2015). The everyday use of assistive technology by people with dementia and their family carers: A qualitative study. BMC Geriatrics. https://doi.org/10.1186/s12877-015-0091-3.
- Greenhalgh, T., Fahy, N., & Shaw, S. (2018). The bright elusive butterfly of value in health technology development: Comment on 'Proividing value to new health technology: the early contribution of entrepreneurs, investors and regulatory agencies. International Journal of Health Policy and Management., 7(1), 81–85.CrossRefGoogle Scholar
- Greenhalgh, T., Fahy, N., & Shaw, S. (2017). The bright effusive butterfly of value in health technology development. International Journal of Health Policy and Management. doi: 0.15171/ijhpm.2017.65.Google Scholar
- Greenhalgh, T., Procter, R., Wherton, J., Sugarhood, P., Hinder, S., & Rouncefield, M. (2015). What is quality in assisted living technology? The ARCHIE framework for effective telehealth and telecare services. BMC Medicine, 13(91). https://doi.org/10.1186/s12916-015-0279-6.
- Greenhalgh, T., Shaw, S., Wherton, J., Hughes, G., Lynch, J., A’Court, C., … & Stones, R. (2016). SCALS: A fourth generation study of assisted living technologies in their organisational, social, political and policy context. BMJ Open, 6(2). http://dx.doi.org/10.1136/bmjopen-2015-010208.CrossRefGoogle Scholar
- Lehoux, P., Miller, F., Daudelin, G., & Denis, J. (2017). Providing value to new health technology: The early contribution on entrepreneurs, investors and regulatory agencies. International Journal of Health Policy and Management. Available at http://ijhpm.com/article_3314.html.
- Lindsay S., Brittain K., Jackson D., Ladha C., Ladha K., & Olivier P. (2012). Empathy, participatory design and people with dementia. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (pp. 521–530, May 5).Google Scholar
- Megges, H., Freiesleben, S., Jankowski, N., Haas, B., & Peters, O. (2017). Technology for home dementia care: A prototype locating system put to the test. Alzheimers & Dementia: Translational Research and Clinical Interventions, 3(3), 332–338.Google Scholar
- Meiland, F., Innes, A., Robinson, L., van der Roest, H, Garcia-Casal, J., Gove, D., … & Franco-Martin, M. (2017). Technologies to support community-dwelling persons with dementia: A position paper on issues regarding development, usability, effectiveness and cost-effectiveness, deployment, and ethics. JIMR Rehabilitation and Assistive Technologies, 1(e1). https://doi.org/10.2196/rehab.6376. CrossRefGoogle Scholar
- Metropolitan Police. (2017). Met launches Safer Walking campaign. http://news.met.police.uk/news/met-launches-safer-walking-campaign-242404.
- Orpwood, R., Sixsmith, A., Torrington, J., Chadd, J., & Chalfont, G. (2007). Designing technology to support quality of life of people with dementia. Technology and Disability, 19(2–3), 103–112.Google Scholar
- Pols, J. (2010). What patients care about. In A. Mol, I. Moser, & J. Pols (Eds.), Care in practice: On tinkering in clinics, homes and farms. Bielefeld: Verlag.Google Scholar
- Tan, L., & Szebeko, D. (2009). Co-designing for dementia: The Alzheimer 100 project. Australasian Medical Journal, 1(12), 185–198.Google Scholar
- UK Government. (2005). Mental capacity act. London: UK Government.Google Scholar
- Van Der Roest, H., Wenborn, J., Pastink, C., Droes, R., & Orrell, M. (2017). Assistive technology for memory support in dementia. Cochrane database of Systematic Reviews, (6). https://doi.org/10.1002/14651858.cd009627.pub2.
- Wherton, J., Sugarhood, P., Procter, R., Hinder, S., & Greenhalgh, T. (2015). Co-production in practice: How people with assisted living needs can help design and evolve technologies and services. Implementation Science,10 (75). https://doi.org/10.1186/s13012-015-0271.