Patient-Based Evidence in HTA

Abstract

This chapter provides an introduction to patient-based evidence, which can be based on patients’ experiences, perspectives, perceptions, needs, preferences or attitudes about their care and health (Staniszewska et al. 2010). It explores the concept of patient-based evidence and its role in HTA and compares it to patient input. Some of the challenges that arise about patient-based evidence due to the sometimes rigid application of evidence hierarchies designed for clinical research are considered. We review case studies where patient-based evidence has been used in HTA and consider how misconceptions about patient-based evidence might be overcome in order to encourage a greater use of the concept in HTA. Barriers and enablers to the development and use of patient-based evidence are suggested that require action by all stakeholders. We note the importance of co-production in the development of patient-based evidence and the need for further research to develop patient-based evidence as a concept.