Abstract
What does it mean to live at home at the end of life? What does it mean to support someone through this? In this chapter we present a dialogue and narratives from life and research experience about this challenging and amazing part of community-based care. It is clear that most people want to die at home (PCA, 2010), not in intensive care, or a hospital ward or even a hospice. And the people they want around them are people they know, people they trust, and people they can laugh and cry with.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
References
Australian Bureau of Statistics. (2012). Caring in the community: Australia (Cat no. 4436.0). Canberra: ABS.
Grande, G., Stajduhar, K., Aoun, S., Toye, C., Funk, L., Addington-Hall, J., Payne, S., & Todd, C. (2009). Supporting lay carers in end of life care: Current gaps and future priorities. Palliative Medicine, 23, 339-344.
hooks, b, (1994). Teaching to transgress: Education as the practice of freedom. New York: Routledge.
Horsfall, D., Leonard, R., Noonan, K., & Rosenberg, J. (2013). Working together-apart: What role do formal palliative support networks play in establishing, supporting and maintaining informal caring networks for people dying at home? Progress in Palliative Care, 21(6), 331-336.
Horsfall, D., Noonan, K., & Leonard, R. (2012). Bringing our dying home: Creating community at end of life. Health Sociology Review: Special Issue Culture, Death and Dying with Dignity, 21(4), 373-382.
Palliative Care Australia. (2010). Health system reform and care at the end of life: A guidance document. Canberra: Palliative Care Australia.
Sadler, E., & McKevitt, C., (2013). Expert carers’: An emergent normative model of the caregiver. Theory & Health, 11, 40-58.
Zapart, S., Kenny, P., Hall, J., Servic, B., & Wiley, S. (2007). Home-based palliative care in Sydney, Australia: The carer’s perspective on the provision of informal care. Health and Social Care in the Community, 15(2), 97-107.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2017 Sense Publishers
About this chapter
Cite this chapter
Horsfall, D., Higgs, J. (2017). Palliative Care. In: Tasker, D., Higgs, J., Loftus, S. (eds) Community-Based Healthcare. Practice, Education, Work and Society. SensePublishers, Rotterdam. https://doi.org/10.1007/978-94-6300-995-9_15
Download citation
DOI: https://doi.org/10.1007/978-94-6300-995-9_15
Publisher Name: SensePublishers, Rotterdam
Online ISBN: 978-94-6300-995-9
eBook Packages: EducationEducation (R0)