Skip to main content

Public Deliberation and the Role of Stakeholders as a New Frontier in the Governance of Science: The British Columbia Biobank Deliberation and the DePGx Project

  • Chapter
  • First Online:
Ethics, Law and Governance of Biobanking

Part of the book series: The International Library of Ethics, Law and Technology ((ELTE,volume 14))

Abstract

With the ever rapid development of scientific and technological research in the 19th century, the power growth of scientific institutions and their specific influence have expanded incredibly due to the results they have achieved in several research areas.

This article is the result of a mutual collaboration between the two authors due to a grant obtained from the Canadian Institutes of Health Research. The primary result of this grant, the DePGx Project, consists in a deliberative experiment that has taken place at Montreal, Canada in between the end of May and the beginning of June 2010.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    For a more detailed account of this point see Habermas (2003) on a unified sense of validity to be adopted for both the empirical-epistemic (descriptive) and the evaluative approach to the world.

References

  • Avard, D., et al. 2009. Public health genomics (PHG) and public participation: points to consider. Journal of public deliberation 5(1): 5–15.

    Google Scholar 

  • Burgess, M., O’Doherty, K., and Secko, D. (2008). Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement. Personalized Medicine 5(3): 285–296. doi:10.2217/17410541.5.3.285

  • O’Doherty, K.C., and M.M. Burgess. 2009. Engaging the public on Biobanks: Outcomes of the BC biobank deliberation, Public Health Genomics 4(12).

    Google Scholar 

  • Godard, B., et al. 2007. Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project. Community Genetics 10(3):147–158.

    Google Scholar 

  • Habermas, J. 2003. Truth and justification. Cambridge: MIT Press.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Claudio Corradetti .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2015 Springer Science+Business Media Dordrecht

About this chapter

Cite this chapter

Corradetti, C., Bartlett, G. (2015). Public Deliberation and the Role of Stakeholders as a New Frontier in the Governance of Science: The British Columbia Biobank Deliberation and the DePGx Project. In: Mascalzoni, D. (eds) Ethics, Law and Governance of Biobanking. The International Library of Ethics, Law and Technology, vol 14. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-9573-9_17

Download citation

  • DOI: https://doi.org/10.1007/978-94-017-9573-9_17

  • Published:

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-94-017-9572-2

  • Online ISBN: 978-94-017-9573-9

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics