Abstract
Palliative care involves the care for patients with a life threatening disease, often advanced cancer, aiming at an optimal quality of life for the patient and his/her family. Although many patients with advanced cancer live at home in the last phase of disease, hospital transfers are often performed increasing burdening of patients and families and health care costs. Teleconsultation may be able to bring hospital expertise to the patient’s home, thereby supporting home care and fostering continuity of care. This research will combine qualitative and quantitative research to investigate whether teleconsultation will contribute to aspects of symptom management and quality of life in palliative patients residing at home. Research objectives will not only cover domains of quality of care but will also include ethical and communication aspects of teleconsultation for palliative patients.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Aoun, S.M., L.J. Kristjanson, D.C. Currow, and P.L. Hudson. 2005. Caregiving for the terminally ill: At what cost? Palliative Medicine 19: 551–555.
Bainbridge, D., P. Krueger, L. Lohfeld, and K. Brazil. 2009. Stress processes in caring for an end-of-life family member: Application of a theoretical model. Aging & Mental Health 13: 537–545.
Bashsur, R.L. 1995. On the definition and evaluation of telemedicine. Telemedicine Journal 1: 19–30.
Beccaro, M., M. Costantini, P.G. Rossi, G. Miccinesi, M. Grimaldi, and P. Bruzzi. 2006. Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC). Journal of Epidemiology and Community Health 60: 412–416.
Bordewijk, J.L., and B. Van Kaam. 1982. Allocutie. Enkele gedachten over communicatievrijheid in een bekabeld land. Baarn: Bosch & Keuning nv.
Bowles, K.H., and A.C. Baugh. 2007. Applying research evidence to optimize telehomecare. The Journal of Cardiovascular Nursing 22: 5–15.
Burge, F.I., B. Lawson, P. Critchley, and D. Maxwell. 2005. Transitions in care during the end of life: Changes experienced following enrolment in a comprehensive palliative care program. BMC Palliative Care 4: 3.
Charmaz, K. 2009. Constructing grounded theory. A practical guide through qualitative analysis. London: Sage.
Cohen, S.R., P. Boston, B.M. Mount, and P. Porterfield. 2001. Changes in quality of life following admission to palliative care units. Palliative Medicine 15: 363–371.
Corbin, J.M., and A.L. Strauss. 2008. Basics of qualitative research techniques and procedures for developing grounded theory. Los Angeles: Sage.
Eminovic, N., N.F. de Keizer, J.C. Wyatt, G. ter Riet, N. Peek, H.C. van Weert, C.A. Bruijnzeel-Koomen, and P.J.E. Bindels. 2009. Teledermatologic consultation and reduction in referrals to dermatologists: A cluster randomized controlled trial. Archives of Dermatology 145: 558–564.
Hebert, M.A., R. Brant, D. Hailey, and M. van der Pol. 2006. Potential and readiness for video-visits in rural palliative homecare: Results of a multi-method study in Canada. Journal of Telemedicine and Telecare 12(Suppl 3): 43–45.
Higgingson, I.J., and G.J.A. Sen-Gupta. 2000. Place of care in advanced cancer. A qualitative systematic literature review of patient preferences. Palliative Medicine 3: 287–300.
Ihde, D. 1979. Technics and praxis. A philosophy of technology. Dordrecht: D. Reidel Publishing Company.
Ihde, D. 1990. Technology and the lifeworld from garden to earth. Bloomington: Indiana University Press.
Ingleton, C., J. Chatwin, J. Seymour, and S. Payne. 2011. The role of health care assistants in supporting district nurses and family carers to deliver palliative care at home: Findings from an evaluation project. Journal of Clinical Nursing 20: 2043–2052.
Jordhoy, M.S., P. Fayers, T. Saltnes, M. Ahlner-Elmqvist, M. Jannert, and S. Kaasa. 2000. A palliative care intervention and death at home: A cluster randomised trial. Lancet 356: 888–893.
Kitamura, C., L. Zurawel-Balaura, and R.K.S. Wong. 2010. How effective is video consultation in clinical oncology? A Systematic Review. Current Oncology 17: 17–27.
Klinkenberg, M., G. Visser, M.I. van Groenou, G. van der Wal, D.J. Deeg, and D.L. Willems. 2005. The last 3 months of life: care, transitions and the place of death of older people. Health & Social Care in the Community 13: 420–430.
Knol, A., Th.W. van den Akker, R.J. Damstra, and J. de Haan. 2006. Teledermatology reduces the number of patient referrals to a dermatologist. Journal of Telemedicine and Telecare 12: 75–78.
La Pastina, A.C. 2005. Audience ethnographies: A media engagement approach. In Media anthropology, ed. E.W. Rothenbuhler and M. Coman, 139–148. Thousand Oaks: Sage.
Laila, M., V. Rialle, L. Nicolas, C. Duguay, and A. Franco. 2008. Videophones for the delivery of home healthcare in oncology. Studies in Health Technology and Informatics 136: 39–44.
Mason, J. 2002. Qualitative researching. London: Sage.
McCorkle, R., and J.V. Pasacreta. 2001. Enhancing caregiver outcomes in palliative care. Cancer Control 8: 36–45.
Meier, D.E., and L. Beresford. 2008. Palliative care’s challenge: Facilitating transitions of care. Palliative Medicine 11: 416–421.
Melin-Johansson, C., B. Axelsson, F. Gaston-Johansson, and E. Danielson. 2010. Significant improvement in quality of life of patients with incurable cancer after designation to a palliative homecare team. European Journal of Cancer Care 19: 243–250.
Morley, D. 2007. Media, modernity and technology the geography of the new. London: Routledge.
Murray, S.A., M. Kendall, K. Boyd, and A. Sheikh. 2005. Illness trajectories and palliative care. BMJ 330: 1007–1011.
Orlikowski, W.J. 2007. Sociomaterial practices: Exploring technology at work. Organization Studies 28(9): 1435–1448.
Ramirez, A., J. Addington-Hall, and M. Richards. 1998. ABC of palliative care: The carers. BMJ 316: 208–211.
Seale, C. 2000. Changing patterns of death and dying. Social Science & Medicine 51: 917–930.
Shugarman, L.R., S.L. Decker, and A. Bercovitz. 2009. Demographic and social characteristics and spending at the end of life. Journal of Pain and Symptom Management 38: 15–26.
Smeenk, F.W.J.M., J.C.M. van Haastregt, L.P. de Witte, and H.F.J.M. Crebolder. 1998. Effectiveness of home care programmes for patients with incurable cancer on their quality of life and time spent in hospital: Systematic review. BMJ 316: 1939–1944.
Smith, A.C. 2007. Telepaediatrics. Journal of Telemedicine and Telecare 13: 163–166.
Teno, J.M., B.R. Clarridge, V. Casey, L.C. Welch, T. Wetle, R. Shield, and V. Mor. 2004. Family perspectives on end-of-life care at the last place of care. JAMA 291: 88–93.
Tronto, J.C. 1993. Moral boundaries: A political argument for an ethic of care. New York: Routledge.
Van den Block, L., R. Deschepper, J. Bilsen, V. Van Casteren, and L. Deliens. 2007. Transitions between care settings at the end of life in Belgium. JAMA 298: 1638–1639.
van Gurp, J., M. van Selm, E. van Leeuwen, and J. Hasselaar. 2013a. Transmural palliative care by means of teleconsultation: A window of opportunities and new restrictions. BMC Medical Ethics 14(March 7): 12.
van Gurp, J., J. Hasselaar, E. van Leeuwen, P. Hoek, K. Vissers, and M. van Selm. 2013b. Connecting with patients and instilling realism in an era of emerging communication possibilities: A review on palliative care communication heading to telecare practice. Patient Education and Counseling 93(3): 504–514.
Van Ryn, M., S. Sanders, K. Kahn, C. van Houtven, J.M. Griffin, M. Martin, A.A. Atienza, S. Phelan, D. Finstad, and J. Rowland. 2011. Objective burden, resources, and other stressors among informal cancer caregivers: A hidden quality issue? Psycho-Oncology 20: 44–52.
van Wynsberghe, A., and C. Gastmans. 2008. Telesurgery: An ethical appraisal. Journal of Medical Ethics 34(10): e22.
Verbeek, P.P. 2008a. Cultivating humanity: Towards a non-humanist ethics of technology. In New waves in philosophy of technology, ed. J.-K. Berg Olsen, E. Selinger, and S. Riis, 241–266. Hampshire: Palgrave MacMillan.
Verbeek, P.P. 2008b. Morality in design: Design ethics and the morality of technological artifacts. In Philosophy and design: From engineering to architecture, ed. P.E. Vermaas, A. Light, and S.A. Moore, 91–103. Dordrecht: Springer.
Verhoeven, F., L. van Gemert-Pijnen, K. Dijkstra, N. Nijland, E. Seydel, and M. Steehouder. 2007. The contribution of teleconsultation and videoconferencing to diabetes care: A systematic literature review. Journal of Medical Internet Research 9: e37.
Whited, J.D., R.P. Hall, M.E. Foy, L.E. Marbrey, S.C. Grambow, T.K. Dudley, S. Datta, D.L. Simel, and E.Z. Oddone. 2002. Teledermatology’s impact on time to intervention among referrals to a dermatology consult service. Telemedicine Journal and E-Health 8: 313–321.
Wootton, R., S.E. Bloomer, R. Corbett, D.J. Eedy, N. Hicks, H.E. Lotery, C. Mathews, J. Paisley, K. Steele, and M.A. Loane. 2000. Multicentre randomised control trial comparing real time teledermatology with conventional outpatient dermatological care: Societal cost-benefit analysis. BMJ 320: 1252–1256.
World Health Organization. 2004. Palliative care: The solid facts, ed. E. Davies and I.J. Higginson. Copenhagen: World Health Organization.
Yates, J., and W.J. Orlikowski. 1992. Genres of organizational communication – A structurational approach to studying communication and media. Academy of Management Review 17(2): 299–326.
Yates, J., W.J. Orlikowski, and A. Jackson. 2008. The six key dimensions of understanding media. Mit Sloan Management Review 49(2): 63–69.
Acknowledgements
We would like to thank Ms. Duursma for her involvement in an earlier draft version of this chapter.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Appendix
Appendix
Rights and permissions
Copyright information
© 2014 Springer Science+Business Media Dordrecht
About this chapter
Cite this chapter
Hasselaar, J., Van Gurp, J., Van Selm, M., Schers, H.J., van Leeuwen, E., Vissers, K. (2014). Optimization of Complex Palliative Care at Home via Teleconsultation. In: van den Hoven, J., Doorn, N., Swierstra, T., Koops, BJ., Romijn, H. (eds) Responsible Innovation 1. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-8956-1_15
Download citation
DOI: https://doi.org/10.1007/978-94-017-8956-1_15
Published:
Publisher Name: Springer, Dordrecht
Print ISBN: 978-94-017-8955-4
Online ISBN: 978-94-017-8956-1
eBook Packages: Humanities, Social Sciences and LawPhilosophy and Religion (R0)