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Social Change and Caregiving

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Part of the book series: Clinical Sociology: Research and Practice ((CSRP))

Abstract

Caregiving has always been a universal experience of compassion and familial responsibility in American society, but due to social change caregiving has become an essential and growing part of healthcare, long-term care, and social service policy-making. Family caregivers provide about 80 % of all long-term services and support for family members and friends across the lifespan, yet they are the most neglected group in the health and long-term care system. In conjunction with the growing numbers of older persons, the U.S. faces changes in the rates and outcomes of various conditions and disabilities. For example, the estimated cost of Alzheimer’s disease to public programs totaled $50 billion in 2000 and is projected to be $ 200 billion by 2012. Immigration issues have implications for policy. Along with increased immigration are increases in interethnic and interracial marriage. Diversity presents policy and service challenges especially regarding assimilation, income disparities, and poverty. The effect of a changing age structure will create new and broad changes in American life.

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Notes

  1. 1.

    Since the passage of the Family and Medical Leave Act (FMLA) in 1993, 21 states have dropped the family component of the original law and, instead, reduced coverage to baby care or parental leave. This shifts the emphasis on family, including care of elderly parents, to parental, baby care only. With the baby boom population aging the demand for family care will increase and employers will be pressured by employees for release time to assist aging parents. See Wisensale (2003).

  2. 2.

    M. Schulman pointed to 12 key diseases whose control has altered history. They are: smallpox, tuberculosis, syphilis, HIV/AIDS, influenza, bubonic plague, cholera, malaria, yellow fever, hemophilia and porphyria, and plant disease. See Schulman (2008).

  3. 3.

    Also see National Center for Health Statistics (2011).

  4. 4.

    See Levine (2008).

References

  • Aumann, K., Galinsky, E., & Matos, K. (2011). The new male mystique. New York: Families and Work Institute.

    Google Scholar 

  • Beggs, S., Haines, V. A., & Hurlbert, J. S. (1996). Revisiting the rural-urban contrast: Personal networks in nonmetropolitan and metropolitan settings. Rural Sociology, 61(2), 306–325.

    Article  Google Scholar 

  • Boris, E., & Lewis, C. H. (2006). Caregiving and wage-earning: A historical perspective on work and family. In M. Pitt-Catsouphes, E. E. Kossek, & S. Sweet (Eds.), The work and family handbook: Multi-disciplinary perspectives, methods, and approaches (pp. 73–87). Mahwah: Lawrence Erlbaum.

    Google Scholar 

  • Centers for Disease Control and Prevention and the Merck Company Foundation (2007). The state of aging in America, 2007. Whitehouse Station, NJ. The Merck Company Foundation. www.cdc.gov/aging and www.merck.com/cr.

  • Danaei, G., Ding, E. L., Mozaffarian, O., Taylor, B., Rehm, J., Murray, C. J. L., & Ezzati, M. (2009). The preventable causes of death in the United States: Comparative risk assessment of dietary, lifestyle, and metabolic risk factors. PLoS Medicine, 6(4), e1000058. doi:10.1371/journal.pmed.1000058.

    Article  Google Scholar 

  • Domrose, C. (29 April 2011). The civil war and nursing. http://news.nurse.com/article/20110429/NATIONAL01/304290019/-/frontpage. Accessed 25 April 2012.

  • Egenes, K. J. (2009). History of nursing. In G. Roux & J. A. Halstead (Eds.), Issues and trends in nursing: Essential knowledge for today and tomorrow (pp. 1–26). Sudbury: Jones & Bartlett Publishers.

    Google Scholar 

  • Feinberg, L. F. (2004). Caregiving on the public policy agenda. In C. Levine (Ed.), Always on call: When illness turns families into caregivers (pp. 193–207). Nashville: Vanderbilt University Press.

    Google Scholar 

  • Feinberg, L. F., Horvath, J., Hunt, G., Plooster, L., Kagan, J., Levine, C., Lynn, J., Mintz, S., & Wilkinson, A. (1 December 2003). Family caregiving and public policy principles for change. http://www.caregiving.org/data/principles04.pdf. Accessed 10 July 2010.

  • Galinsky, E., Aumann, K., & Bond, J. T. (2009). Times are changing: Gender and generation at work and at home. New York: Families and Work Institute. http://familiesandwork.org/site/research/reports/Times_Are_Changing.pdf.

    Google Scholar 

  • Glasgow, N. (2000). Rural/urban patterns of aging and caregiving in the United States. Journal of Family Issues, 21, 611–631.

    Article  Google Scholar 

  • Granovetter, M. S. (1973). The strength of weak ties. American Journal of Sociology, 78(6), 1360–1380.

    Article  Google Scholar 

  • Hampton, T. (2006). U.S. cell research lagging. Journal of the American Medical Association, 295(19), 2233.

    Google Scholar 

  • Institute for Health and Aging, University of California, San Francisco, CA. (1996). Chronic care in America: A 21st century challenge. Princeton: The Robert Wood Johnson Foundation. (publications@rwjf.org).

    Google Scholar 

  • Jenkins, C. L. (1997). Women, work, and caregiving: How do these roles affect women’s well-being. Journal of Women & Aging, 9(3), 27–45.

    Article  Google Scholar 

  • Kass, L. R. (2005). Taking care: Ethical caregiving in our aging society. Washington, DC: The President’s Council on bioethics.

    Google Scholar 

  • Larson, R. D. (1997). White roses: Stories of civil war nurses. Gettysburg: Thomas.

    Google Scholar 

  • Levine, C. (Ed.) (2004). Introduction: The many worlds of family caregivers. In C. Levine (Ed.), Always on call: When illness turns families into caregivers (pp. 1–19). Nashville: Vanderbilt University Press.

    Google Scholar 

  • Levine, C. (2008). Family caregiving. The Hastings Center. http://www.thehastingscenter.org/Publications/BriefingBook/Detail.aspx?id=2172.

  • Manring, M. M., Hawk, A., Calhoun, J. H., & Anderson, R. C. (2009). Treatment of war wounds: A historical review. Clinical Orthopaedics and Related Research, 467(8), 2168–2191.

    Article  Google Scholar 

  • McKay, B. (2012). The ABCs of beating obesity. The Wall Street Journal, (9 May).

    Google Scholar 

  • Mokdad, A. H., Marks, J. S., Stroup, D. F., & Gerberding, J. L. (2004). Actual causes of death in the United States, 2000. Journal of the American Medical Association, 291(10), 1238–1245.

    Article  Google Scholar 

  • National Center for Health Statistics. (2011). Health, United States, 2010: With special feature on death and dying. Hyattsville: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention. (DHHS Pub. No. 2011–1232).

    Google Scholar 

  • Scharlach, A. (2008). Historical overview: Lessons from the past, challenges for the future in family caregiving. American Journal of Nursing, 108(9 Suppl), 16–22.

    Article  Google Scholar 

  • Schulman, M. (2008) 12 diseases that altered history. U.S. News & World Report, January 3.

    Google Scholar 

  • Shrestha, L. B., & Heisler, E. J. (2011). The changing demographic profile of the United States. Congressional Research Service 7-5700. www.crs.gov. Accessed 31 March 2001.

  • Tanielian, T., & Jaycok, L. H. (Eds.). (2008). Invisible wounds of war: Psychological and cognitive injuries, their consequences, and services to assist recovery. Washington, DC: Rand Corporation. (Monograph MG-720).

    Google Scholar 

  • Thomas, S. G. (2012). Are dads the new moms? The Wall Street Journal, (May 12–13).

    Google Scholar 

  • Wahdan, M. H. (1996). The epidemiological transition. Eastern Mediterranean Health Journal, 2(1), 8–20.

    Google Scholar 

  • Wisensale, S. K. (2003). Two steps forward, one step back: The Family and Medical Leave Act as retrenchment policy. Review of Policy Research, 20(1), 135–151.

    Article  Google Scholar 

  • Wuthnow, R. (1991). Acts of compassion: Caring for others and helping ourselves. Princeton: Princeton University Press.

    Google Scholar 

  • Wuthnow, R. (1998). Loose connections: Joining together in America’s fragmented communities. Cambridge: Harvard University Press.

    Google Scholar 

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Correspondence to John G. Bruhn .

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Bruhn, J., Rebach, H. (2014). Social Change and Caregiving. In: The Sociology of Caregiving. Clinical Sociology: Research and Practice. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-8857-1_2

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