Abstract
Long-term care has become an increasingly urgent policy issue. The objective is not to minimize the importance of the home and family members in care but rather to support them as partners in a coordinated system of care involving professional caregivers and community-based resources. As the demand for caregivers increases there will be a need for employers and policy makers to accommodate the needs of working caregivers. Family caregiving continues to be an essential part of the care of the aging and disabled persons in our society. There, nevertheless, is a need for a national healthcare policy that addresses the needs of an aging society with a shortage of caregivers. As of 2011 and every day for the next 19 years, 10,000 baby boomers will reach 65 according to the Pew Foundation. There are resources and initiatives currently available from national and state levels but most are inadequately funded, lack an evaluation of their effectiveness, and are not well publicized. The recently passed Affordable Care Act is an attempt to provide greater access to primary care services, reduce barriers, and facilitate coordination across the continuum of care.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Notes
- 1.
- 2.
The group was comprised of Lynn Friss Feinberg of the National Center on Caregiving/Family Caregiving Alliance; Jane Horvath, a health policy analyst; Gail Hunt and Les Plooster of the National Alliance for Caregiving; Jill Kagan of the National Respite Coalition; Carol Levine of the Families and Healthcare Project, United Fund; Joanne Lynn MD of Americans for Better Care of the Dying; Suzanne Mintz of the National Family Caregivers Association; and Ann Wilkinson of the Rand Corporation.
- 3.
See A Guide to the National Family Support Program and its Inclusion of Grandparents and Other Relatives Raising Children. 2nd edition, September, 2003. Generations United, Washington, DC. guogu.org.
- 4.
The Affordable Care Act also provides the opportunity to redesign the nation’s mental health system. It promotes new programs such as health homes, interdisciplinary care teams, the co-location of physical health and behavioral services, collaborative care, and the broadening of the Medicaid Home and Community-based Services option. The Act offers the opportunity to insure more people, reimburse previously unreimbursed services, integrate care, confront complex chronic comorbidities, and adopt underused evidence-based interventions (See Mechanic 2012).
- 5.
See the Annual Report of the White House Task Force on the Middle Class, November, 2010, Office of the Vice President, Chaired by Vice President Joe Biden. http://www.whitehouse.gov/sites/default/files/microsites/100226-annual-report-middle-class.pdf.
- 6.
See the Family Caregiver Alliance website for federal and state legislation and policy reports and initiatives that directly impact caregivers of older adults and adults with disabilities. http://caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2324&chcategory=30.
References
Berkman, L. F., & Glymour, M. M. (2006). How society shapes aging: The centrality of variability. Daedalus, 135(1), 105–114.
Boult, C., Green, A., Boult, L. B., Pascala, J. T., Snyder, C., & Left, B. (2007). Successful models of comprehensive healthcare for multi-morbid older persons: A review of effects on health and healthcare. Paper commissioned by the IOM committee on the future healthcare workforce for older Americans.
Davis, K., Abrams, M., & Stremikis, K. (2011). How the Affordable Care Act will strengthen the nation’s primary care foundation. Journal of General Internal Medicine, 26(10), 1201–1203.
Elmore, D. L., & Talley, R. C. (2009). Family caregiving and U.S. federal policy. In S. H. Qualls & S. H. Zarit (Eds.), Aging families and caregiving (pp. 209–231). New York: Wiley.
Families USA (2011). The Affordable Care Act: Provisions that will help caregivers. Washington, DC. www.familiesusa.org.
Feinberg, L. F., & Newman, S. L. (2004). A study of 10 states since passage of the National Family Caregiver Support Program: Policies, perceptions, and program development. The Gerontologist, 44(6), 760–769.
Feinberg, L. F., Newman, S. L., Gray, L., Kolb, K. N., & Fox-Grage, W. (Nov 2004). The state of the states in family caregiver support: A 50-state study. National Center on Caregiving, National Caregiving Alliance and National conference of State Legislatures.
Feinberg, L. F., Reinhard, S. C., Houser, A., & Choula, R. (2011). Valuing the invaluable: 2011 update. The growing contributions and costs of family caregiving. AARP Public Policy Institute, Washington, DC. www.aarp.org/ppi.
Hacker, J. S. (Ed.). (2008). Health at risk: America’s ailing health system—and how to heal it. New York: Columbia University Press.
Hardcastle, L. E., Record, K. L., Jacobson, P. D., & Gostin, L. O. (2011). Improving the population’s health: The Affordable Care Act and the importance of integration. Journal of Law, Medicine & Ethics, 39(3), 317–327.
Hudson, R. B. (2011). America’s opportunity: The potential of an aging society. Public policy and aging report. National academy on an aging society. A policy institute of the Gerontological Society of America (Vol. 21, No. 4). Fall, Washington, DC.
Institute of Medicine. (2008). Retooling for an aging America: Building the healthcare workforce. Washington, DC: The National Academies Press.
Kaiser Family Foundation (2010). Focus on health reform. Summary of new health reform law. Patient protection and affordable care act (P.L. 111–148). http://www.kff.org/healthreform/upload/8061.pdf.
Kelly, K. (28 Sep 2010). Supporting caregivers across the lifespan: Federal initiatives and technical assistance for program development. 2010 National Home & Community-based services conference. Family Caregiving Alliance, National Center on Caregiving, San Francisco, CA.
McGlynn, E. A., Meltzer, D., & Hacker, J. S. (2008). Just how good is American medical care? In J. S. Hacker (Ed.), Health at risk. America’s ailing health system—and how to heal it (pp. 88–105). New York: Columbia University Press.
Mechanic, D. (2006). The truth about healthcare. New Brunswick: Rutgers University Press.
Mechanic, D. (2006). The truth about healthcare: Why reform is not working in America (pp. 51–66). New Brunswick: Rutgers University Press.
Mechanic, D. (2012). Seizing opportunities under the Affordable Care Act for transforming the mental and behavioral health system. Health Affairs, 31(2), 376–382.
Metlife Mature Market Institute (2008). The Metlife study of caregiving costs to working caregivers: Double jeopardy for baby boomers caring for their parents. Mature Market Institute @ metlife.com.
Mintz, S., Feinberg, L. F., Horvath, J., Hunt, G., Plooster, L., Kagin, J., Levine, C., Lynn, J., & Wilkinson, A. (2003). Family caregiving and public policy principles for change. www.caregiver.com/articles/general/.family_caregiving_public_policy. htm
Navaie Waliser, M., Feldman, P. H., Gould, D. A., Levine, C., Kuerbis, A. N., & Donelan, K. (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92(3), 409–413.
O’Shaughnessy, C. V. (20 July 2012). Family caregivers: The primary providers of assistance to people with functional limitations and chronic impairments. Background paper No. 84, National Health Policy Forum. The George Washington University, Washington, DC. www.nhpf@gwu.org.
Rowe, J. W. (2011). Successful societal adaptation to the aging of America. In R. B. Hudson (Ed.), America’s opportunity: The potential of an aging society (pp. 11–16). Public policy and aging report. Washington, DC: National Academy on an Aging Society.
Rowe, J. W., & Kahn, R. I. (1998). Successful aging. New York: Dell.
Stone, R. I. (2000). Long-term care for the elderly with disabilities: Current policy, emerging trends, and implications for the twenty-first century. Milbank Memorial fund, New York.
Turiel, J. S. (2005). Our parents ourselves. How American healthcare imperils middle age and beyond. Berkeley: University of California Press.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
Copyright information
© 2014 Springer Science+Business Media Dordrecht
About this chapter
Cite this chapter
Bruhn, J., Rebach, H. (2014). National Caregiving Policy Initiatives. In: The Sociology of Caregiving. Clinical Sociology: Research and Practice. Springer, Dordrecht. https://doi.org/10.1007/978-94-017-8857-1_13
Download citation
DOI: https://doi.org/10.1007/978-94-017-8857-1_13
Published:
Publisher Name: Springer, Dordrecht
Print ISBN: 978-94-017-8856-4
Online ISBN: 978-94-017-8857-1
eBook Packages: Humanities, Social Sciences and LawSocial Sciences (R0)