Skip to main content
SpringerLink
Log in

Measuring the quality of life of patients with rheumatoid arthritis

  • Chapter
Quality of Life Assessment: Key Issues in the 1990s

  • 293 Accesses

Abstract

Rheumatoid arthritis is a prototypical chronic disease, as its impacts are largely functional and rarely fatal. Because cure or death are rare outcomes, rheumatologists have entirely sought alternative measures of therapeutic response, and have recently devised several arthritis-specific measures of health status. The purpose of this chapter is to review the pressures for improving health status assessment in arthritis, to examine whether newer instruments offer an advantage over older ones, and to review the performance of several recently devised scales. Finally, the particular problem of measuring changes over time, as in the typical design of a therapeutic trial, will be considered.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Balaban, D., Sagi, P.C., Goldfarb, N.I. et al. Weights for scoring the quality of well-being instruments among rheumatoid arthritics: a comparison to general population weights. Med. Care 1986; 24: 973–980.

    Article  PubMed  CAS  Google Scholar 

  2. Bergner, M. Bobbit, R.A., Carter, W.B. et al. The Sickness Impact Profile: development and final testing of a health status measure. Med Care 1981; 19: 19787–805.

    Article  Google Scholar 

  3. Bombardier, C., Ware, J. Russell, I.J. et al. Auranofin therapy and quality of life in patients with rheumatoid arthritis: results of a multicenter trial. Am. J. Med. 1986; 81: 565–578.

    Article  PubMed  CAS  Google Scholar 

  4. Brook, R.H., Ware, J.W., Davies-Avery, A. et al. Overview of adult health status measures fielded in Rand's Health Insurance Study. Med. Care 1979; 17 (7 Suppl.): iii–x, 1–131.

    Article  PubMed  CAS  Google Scholar 

  5. Buchanan, W.W. Assessment of joint tenderness, grip strength, digital joint circumference and morning stiffness in rheumatoid arthritis. J. Rheumatol. 1982; 9: 763–766.

    PubMed  CAS  Google Scholar 

  6. Burckhardt, C.S. The impact of arthritis on quality of life. Nurs. Res. 1985; 34: 11–16.

    Article  PubMed  CAS  Google Scholar 

  7. Convery, F.R., Minteer, M.A., Amiel, D. and Connett, K.L. Polyarticular disability: a functional assessment. Arch. Phys. Med. Rehabil. 1977; 58: 494–499.

    PubMed  CAS  Google Scholar 

  8. Deyo, R.A. Measuring functional outcomes in therapeutic trials for chronic disease. Control. Clin. Trials 1984; 5: 223–240.

    Article  PubMed  CAS  Google Scholar 

  9. Deyo, R.A. and Centor, R.M. Assessing the responsiveness of functional scales to clinical change: an analogy to diagnostic test performance. J. Chronic Dis. 1986; 39: 897–906.

    Article  PubMed  CAS  Google Scholar 

  10. Deyo, R.A. and Diehl, A.K. Measuring physical and psychosocial function in patients with low-back pain, Spine 1983; 8: 635–642.

    Article  PubMed  CAS  Google Scholar 

  11. Deyo, R.A., Diehl, A.K. and Rosenthal, M. How many days ofbed rest for acute low back pain? A randomized clinical trial. N. Engl. J. Med. 1986; 315: 1064–1070.

    Article  PubMed  CAS  Google Scholar 

  12. Deyo, R.A. Inui, T.S., Leininger, J.D. et al. Measuring functional outcomes in chronic disease: a comparison of traditional scales and a self-administered health status questionnaire in patients with rheumatoid arthritis. Med. Care 1983; 21: 180–192.

    Article  PubMed  CAS  Google Scholar 

  13. Donaldson, S.W., Wagner, C.C. and Greshaw, G.E. A unified ADL evaluation form. Arch. Phys. Med. Rehabil. 1973; 54: 175–179.

    PubMed  CAS  Google Scholar 

  14. Feinstein, A.R. Clinical biostatistic, XLI. Hard science, soft data, and the challenges of choosing clinical variables in research. Clin. Pharmacol. Ther. 1977; 22: 485–498.

    PubMed  CAS  Google Scholar 

  15. Fries, J.F. Toward an understanding of patient outcome measurement. Anhritis Rheum. 1983; 26: 697–704.

    Article  CAS  Google Scholar 

  16. Fries, J.F., Spitz, P., Kraines, R.G. et al. Measurement of patient outcome in arthritis. Anhritis Rheum. 1980; 23: 137–145.

    Article  CAS  Google Scholar 

  17. Fries, J.F., Spitz, P.W. and Young, D.Y. The dimensions of health outcomes: the Health Assessment Questionnaire, disability and pain scales. J. Rheumatol. 1982; 9: 789–793.

    PubMed  CAS  Google Scholar 

  18. Jette, A.M. Functional Status Index: reliability of a chronic disease evaluation instrument. Arch. Phys. Med. Rehabil. 1980; 61: 395–401.

    PubMed  CAS  Google Scholar 

  19. Kaplan, R.M., Bush, J.W. and Berry, C.C. Health status index: category ratings versus magnitude estimation for measuring levels of well-being. Med. Care 1979; 17: 501–523.

    Article  PubMed  CAS  Google Scholar 

  20. Chat, S., Ford, A.B., Moskowitz, R.W. et al. Studies of illness in the aged: the index of ADL: a standardized measure of biological and psychosocial function. J. Am. Med. Assoc. 1963; 185: 914–919.

    Article  Google Scholar 

  21. Katz, S. Vignos, P.J., Moskowitz, R.W. et al. Comprehensive outpatient care in rheumatoid arthritis. A controlled study. J. Am. Med. Assoc. 1968; 206: 1249–1254.

    Article  CAS  Google Scholar 

  22. Kazis, L.E., Meenan, R.F. and Anderson, J.J. Pain in the rheumatic diseases: investigation of a key health status component. Arthritis Rheum. 1983; 26: 1017–1022.

    Article  PubMed  CAS  Google Scholar 

  23. Kirshner, B. and Guyatt, G. A methodological framework for assessing health indices. J. Chronic Dis. 1985; 38: 27–36.

    Article  PubMed  CAS  Google Scholar 

  24. Lee, P., Jasani, M.K., Dick, W.C. et al. Evaluation of a functional index in rheumatoid arthritis. Scand. J. Rheumatol. 1973; 2: 71–77.

    Article  PubMed  CAS  Google Scholar 

  25. Liang, M.H., Larson, M.G., Cullen, K.E. et al. Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arthritis Rheum. 1985; 28: 542–547.

    Article  PubMed  CAS  Google Scholar 

  26. Lorig, K. Lubeck, D., Kraines, R.G. et al. Outcomes of self-help education for patients with arthritis. Arthritis Rheum. 1985; 28: 680–684.

    Article  PubMed  CAS  Google Scholar 

  27. Lorish, C.D. and Maisiak, R. The face scale: a brief, nonverbal method of assessing patient mood. Arthritis Rheum. 1986; 29: 906–909.

    Article  PubMed  CAS  Google Scholar 

  28. Lubeck, D.P., Spitz, P.W., Fries, J.F. et al. A multicenter study of annual health service utilization and costs in rheumatoid arthritis. Arthritis Rheum. 1986; 29: 488–493.

    Article  PubMed  CAS  Google Scholar 

  29. Mackenzie, C.R., Charlson, M.E., DiGroia, D. et al. A patient-specific measure of change in maximal function. Arch. Intern. Med. 1986; 146: 1325–1329.

    Article  PubMed  CAS  Google Scholar 

  30. Mahoney, F.I. and Barthel, D.W. Functional evaluation: the Barthel Index. Md. Med. J. 1965; 14: 61–65.

    CAS  Google Scholar 

  31. McCarty, D.J. Clinical assessment of arthritis. In McCarty, D.J. (ed.) Arthritis and Allied Conditions, 9th edition, Philadelphia, Lea and Febiger, 1979, pp. 131–147.

    Google Scholar 

  32. Meenan, R.F., Anderson, J.J., Kazis, L.E. et al. Outcome assessment in clinical trials: evidence for the sensitivity of a health status measure. Arthritis Rheum. 1984; 27: 1344–1352.

    Article  PubMed  CAS  Google Scholar 

  33. Meenan, R.F., Gertman, P.M. and Mason, J.H. Measuring health status in arthritis: the Arthritis Impact Measurement Scales. Arthritis Rheum. 1980; 23: 146–152.

    Article  PubMed  CAS  Google Scholar 

  34. Meenan, R.F., Yelin, E.H., Nevitt, M. et al. The impact of chronic disease: a sociomedical profile of rheumatoid arthritis. Arthritis Rheum. 1981; 24: 544.

    Article  PubMed  CAS  Google Scholar 

  35. Moskowitz, E. and McCann, C.B. Classification of disability in the chronically ill and aging. J. Chronic Dis. 1957; 5: 342–346.

    Article  PubMed  CAS  Google Scholar 

  36. Patrick, D.L., Bush, J.W. and Chen, M.M. Toward an operational definition of health. J. Health Soc. Behav. 1973; 14: (3) 6–23.

    Article  PubMed  CAS  Google Scholar 

  37. Roland, M. and Morris, R. A study of the natural history of back pain. Part I: Development of a reliable and sensitive measure of disability in low-back pain. Spine 1983; 8: 141–144.

    Article  PubMed  CAS  Google Scholar 

  38. Sackett, D.L., Haynes, R.B. and Tugwell, P. Clinical Epidemiology: A Basic Science for Clinical Medicine. Boston, Little, Brown and Co., 1985, pp. 100–108.

    Google Scholar 

  39. Sherrer, Y.S., Block, D.A., Mitchell, D.M. et al. The development of disability in rheumatoid arthritis. Arthritis Rheum. 1986; 29: 494–500.

    Article  PubMed  CAS  Google Scholar 

  40. Staff of the Benjamin Rose Hospital: multidisciplinary study of illness in the aged person. J. Chronic Dis. 1958; 7: 332–344.

    Google Scholar 

  41. Steinbrocker, O., Traeger, C.H. and Batterman, R.C. Therapeutic criteria in rheumatoid arthritis. J. Am. Med. Assoc. 1949; 140: 659–662.

    Article  PubMed  CAS  Google Scholar 

  42. Stross, J.K., Schumacher, H.R., Weisman, M.H. et al. Continuing medical education: changing behaviour and improving outcomes. Arthritis Rheum. 1985; 28: 1163–1167.

    Article  PubMed  CAS  Google Scholar 

  43. The Cooperating Clinics of the American Rheumatism Association: a seven day variability study of 499 patients with peripheral rheumatoid arthritis. Arthritis Rheum. 1965; 8: 302–334.

    Article  Google Scholar 

  44. Wood, R.W., Diehr, P., Wolcott, B.W. et al. Reproducibility of clinical data and decisions in the management of upper respiratory illnesses. Med. Care 1979; 17: 767–779.

    Article  PubMed  CAS  Google Scholar 

Download references

Authors
  1. Richard A. Deyo
    View author publications

    You can also search for this author in PubMed Google Scholar

Editor information

Editors and Affiliations

  1. Welsh School of Pharmacy, University of Wales College, Cardiff, UK

    Stuart R. Walker (Director of the Centre for Medicines Research, Carshalton, and Honorary Professor) (Director of the Centre for Medicines Research, Carshalton, and Honorary Professor)

  2. University College and Middlesex School of Medicine, London University, London, UK

    Rachel M. Rosser (Professor of Psychiatry and Head of Department) (Professor of Psychiatry and Head of Department)

Rights and permissions

Reprints and permissions

Copyright information

© 1993 Springer Science+Business Media Dordrecht

About this chapter

Cite this chapter

Deyo, R.A. (1993). Measuring the quality of life of patients with rheumatoid arthritis. In: Walker, S.R., Rosser, R.M. (eds) Quality of Life Assessment: Key Issues in the 1990s. Springer, Dordrecht. https://doi.org/10.1007/978-94-011-2988-6_15

Download citation

  • DOI: https://doi.org/10.1007/978-94-011-2988-6_15

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-94-010-5328-0

  • Online ISBN: 978-94-011-2988-6

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics

Search

Navigation