Skip to main content

Part of the book series: Social Indicators Research Series ((SINS,volume 16))

  • 340 Accesses

Abstract

While some of the changes in life that accompany increasing age may promote higher quality of life, the increased prevalence of disease and other negative life events presumably operate in the opposite direction. Among the most salient negative life events in later life is the development of physical or mental disability sufficiently severe to justify moving from an independent life in the community to a residential care facility. This chapter first reviews the current state of knowledge concerning quality of life with increasing age. Most studies note changes, but the distinction of age effects from cohort effects is not often made Illness in later life has a major impact upon quality of life, especially if disability is one outcome. As illness and disability often lead to a move into a residential care facility, the quality of life in residential care becomes of broader interest. Such interest is enhanced by the strong contrast in views expressed by people when contemplating life in residential care and when actually experiencing it Various models of this apparent “disability paradox” are described, followed by an analysis of the conceptual difficulties underlying research into quality of life because of the varied definitions in current use.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  • Albrecht, G.L., & Devlieger, P.J. (1999). The disability paradox: high quality of life against all oddsSocial Science and Medicine 48977–988.

    Article  Google Scholar 

  • Albrecht, G.L. & Devlieger, P.J. (2000). Disability assumptions, concepts and theory reply to Tom KochSocial Science and Medicine 50761–762.

    Article  Google Scholar 

  • Andrykowski, M.A, Brady, M.J, & Hunt, J W. (1993). Positive psychosocial adjustment in potential bone marrow transplant recipients: cancer as a psychosocial transition.Psychooncology 2261–276.

    Article  Google Scholar 

  • Asakawa, T., Koyano, W., Ando, T., & Shibata, H. (2000). Effects of functional decline on quality of life among the Japanese elderly.International Journal of Ageing and Human Development 50319–328.

    Article  Google Scholar 

  • Ball, M. M., Whittington, F. J., Perkins, M. M., & Patterson, V. L. (2000). Quality of life in assisted living facilities.Journal of Applied Gerontology 19304–325.

    Article  Google Scholar 

  • Bahnson, C. B., Bahnson, M. B. (1996). Role of the ego-defenses: Denial and repression in the etiology of malignant neoplasmAnnals of the New York Academy of Sciences 125827–855

    Article  Google Scholar 

  • Berdes, M. S. P. H., Zych, A. A. (2000). Subjective quality of life of Polish, Polish-immigrant, and Polish-American elderly.International Journal of Aging and Human Development 50385–395

    Article  Google Scholar 

  • Bergner, M. (1989). Quality of life, health status, and clinical research.Medical Care 27 [3, Suppl JS148–S156.

    Google Scholar 

  • Bergner, M. (1993). Development, testing, and use of the Sickness Impact Profile. In S.R.Walker&R. M. Rosser (Eds.)Quality of life assessment Key issues in the 1990s(pp. 95–110). D 1 ordrecht: Kluwer Academic.

    Chapter  Google Scholar 

  • Berlowitz, D R; Du, W., Kazis, L. & Lewis, S. (1995). Health-related quality of life of nursing home residents: Differences in patient and provider perceptions.Journal of the American Geriatrics Society.43, 799–802

    Google Scholar 

  • Blumer, D., Heilbronn, M. (1982). Chronic pain as a variant of depressive disorder: The pain-prone disorder.Journal of Nervous and Mental Disease 170381–414

    Article  Google Scholar 

  • Bowling, A. (1995).Measuring disease: A review of disease-specific quality of life measurement scalesBuckingham: Open University Press

    Google Scholar 

  • Breevelt, I.S., Van Dam, F.S A.M. (1991). Underreporting by cancer patients: The case of response shift.Social Science and Medicine 32981–997

    Article  Google Scholar 

  • Bretscher, M., Rummans, T., Sloan, J., Kaur, J., Bartlett, A., Borkenhagen, L., & Loprinzi, C. (1999). Quality of life in hospice patitents: A pilot studyPsychosomatics 40309–313

    Article  Google Scholar 

  • Campbell, A., Converse, P. E., & Rodgers, W. L (1976)The quality of American lifeNew York: Russell Sage Foundation

    Google Scholar 

  • Carver, C.S., & Scheier, M.F (2000) Scaling back goals and recalibration of the affect system are processes in normal adaptive self-regulation. understanding `response shift“ phenomenaSocial Science and Medicine 501715–1722.

    Article  Google Scholar 

  • Cassileth, B.R., Lusk, E.J., Strouse, T.B., Miller, D.S., Brown, L.L., Cross, P.A. and Tenaglia, A.N. (1984). Psychological status in chronic illness. a comparative analysis of six diagnostic groups.New England Journal of Medicine 3/1506–511.

    Article  Google Scholar 

  • Clark, P, & Bowling, A (1990). Quality of everyday life in long stay institutions for the elderly. An observational study of long stay hospital and nursing home care.Social Science and Medicine 301201–1210

    Article  Google Scholar 

  • Clarke, P. J., Marshall, V. W., Ryff, C. D., & Rosenthal, C. J. (2000). Well-being in Canadian seniorsFindings from the Canadian Study of Health and Aging.Canadian Journal on Aging 19139–159.

    Article  Google Scholar 

  • Cohn, J. & Sugar, J. A. (1991). Determinants of quality of life in institutions: Perceptions of frail older residents, staff, and families. In J. E. Binen,J. E Lubben,J C Rowe D. E. Deutchman (Eds.)The concept and measurement of quality of life in the frail elderly(pp. 28–49). San Diego, CA: Academic Press

    Google Scholar 

  • Connidis, I. (1987). Life in older age: The view from the top. In V. W. Marshall (Ed.)Aging in Canada(2“ded., pp. 451–472). Markham, ON. Fitzhenry & Whiteside

    Google Scholar 

  • Daltroy, L.H., Larson, M.G, Eaton, H.M., Phillips, C.B., & Liang, M.H (1999). Discrepancies between self-reported and observed physical function in the elderly the influence of response shift and other factorsSocial Science and Medicine 481549–1561

    Article  Google Scholar 

  • DeNeve, K M. & Cooper, H. (1998). The happy personality: A meta-analysis of 137 personality traits and subjective well-being.Psychological Bulletin 124197–229

    Article  Google Scholar 

  • Diener, E (1984). Subjective well-beingPsychological Bulletin 95542–575

    Article  Google Scholar 

  • Diener, E, Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale.Journal of Personality Assessment 4971–75

    Article  Google Scholar 

  • Diener, E, Suh, E M., Lucas, R E., & Smith, H. L (1999). Subjective well-being: Three decades of progress.Psychological Bulletin 125276–302

    Article  Google Scholar 

  • Draper, P. (1996). Compromise, massive encouragement and forcing a discussion of the mechanisms used to limit the choices available to the older adult in hospital.Journal of Clinical Nursing 5325–331

    Google Scholar 

  • Edwards, J. R.&Bagozzi, R. P. (2000) On the nature and direction of relationships between constructs and measures.Psychological Methods 5155–174

    Article  Google Scholar 

  • Evans, D. R & Cope, W. (1989). Quality of Life Questionnaire manual. Toronto Multi-Health Systems.

    Google Scholar 

  • Ferrell, B. A., Ferrell, B. R., & Osterweil, D. (1990)Pain in the nursing home. Journal of the American Geriatrics Society 38409–414.

    Google Scholar 

  • Folkman, S. & Moskowitz, J. T. (2000) Positive affect and the other side of coping.American Psychologist55, 647–654.

    Article  Google Scholar 

  • Fry, P. S (2000). Whose quality of life is it anyway? Why not ask seniors to tell us about it9 International Journal of Aging and Human Development 50361–383

    Article  Google Scholar 

  • George, L K, Clipp, E C (1991) Subjective components of aging well.Generations 1557–60.

    Google Scholar 

  • Gibbons, F.X. (1999). Social comparison as a mediator of response shift.Social Science and Medicine 481517–1530.

    Article  Google Scholar 

  • Grundy, E., & Bowling, A (1999). Enhancing the quality of extended life years. identification of the oldest old with a very good and a very poor quality of life.Aging & Mental Health3, 199–212.

    Article  Google Scholar 

  • Headey, B. & Wearing, A (1992).Understanding happiness . A theory of subjective well-beingLondon: Longman Cheshire.

    Google Scholar 

  • Heidrich, S. M., & Ryff, C D. (1993a) Physical and mental health in later life: The self-system asmediator. Psychology and Aging 8327–338.

    Article  Google Scholar 

  • Heidrich, S. M., & Ryff, C D (1993b). The role of social comparisons processes in the psychological adaptation of elderly adults.Journal of Gerontology 48127–136.

    Article  Google Scholar 

  • Hunt, S. M (1999). The researcher’s tale: A story of virtue lost and regained. In C. R. B. Joyce, C. A. O’Boyle, & H. McGee (Eds)Individual quality of life • Approaches to conceptualisation and assessment(pp. 225–232). Harwood Academic: Amsterdam.

    Google Scholar 

  • Jansen, S.J.T., Stigglebout, A.M, Nooij, M.A., Noordijk, E.M. & Kievit, J. (2000). Response shift in quality of life measurement in early-stage breast cancer patients undergoing radiotherapy.Quality of Life Research 9603–615

    Article  Google Scholar 

  • Jones, M (1988)Growing old The ultimatefreedom.New York: Human Services Press.

    Google Scholar 

  • Joyce, C. R B., O’Boyle, C A, & McGee, H (Eds). (1999)Individual quality of life: Approaches to conceptualisation and assessment.Amsterdam: Harwood Academic

    Google Scholar 

  • Karlawish, J H T., Klocinski, J. L., Merz, J., Clark, C M, & Asch, D A. (2000). Caregivers’ preferences for the treatment of patients with Alzheimer’s disease.Neurology 551008–1014

    Article  Google Scholar 

  • Keller, M., Leventhal, E., & Larson, B. (1989). Aging: The lived experience.International Journal of Aging and Human Development 2967–82

    Article  Google Scholar 

  • Kendig, iI., Browning, C., & Young, A. E. (2000). Impacts of illness and disability on the well-being of older people.Disability and Rehabilitation An International Multidisciplinary Journal 2215–22.

    Article  Google Scholar 

  • Koch, T. (2000). The illusion of paradox commentary on Albrecht, G.L. and Devlieger, P J. (1998). The disability paradox. high quality of life against all odds. Social Science & Medicine, 48, 977–988.Social Science and Medicine50, 977–988.

    Google Scholar 

  • Kozma, A, Stones, M. J., McNeil, J. K (1991)Psychological well-being in later lifeToronto: Butterworths Canada.

    Google Scholar 

  • Krach, P, De Vaney, S, DeTurk, C., & Zink, M. H. (1996) Functional status of the oldest-old in a home settingJournal of Advanced Nursing 24456–464.

    Article  Google Scholar 

  • Kruzich, J. M., Clinton, J F., & Kelber, S T. (1992). Personal and environmental influences on nursing home satisfaction.The Gerontologist 32342–350.

    Article  Google Scholar 

  • Kunzmann, U., Little, T D, & Smith, J. (2000) is age-related stability of subjective well-being a paradox? Cross-sectional and longitudinal evidence from the Berlin Aging Study.Psychology and Aging 15511–526

    Article  Google Scholar 

  • Lawton M. P. (1983). Environment and other determinants of well-being in older people.The Gerontologist 23349–357.

    Article  Google Scholar 

  • Lawton, M. P. (1991). A multidimensional view of quality of life in frail elders. In J. E. Binen, J. E. Lubben, J C Rowe, & D. E Deutchman (Eds.)The concept and measurement of quality of life in the frail elderly(pp. 3–27). San Diego, CA: Academic Press.

    Google Scholar 

  • Loebel, J P, Loebel, J. S, Dager, S. R, Centerwall, B. S., & Reay, D T (1991) Anticipation of nursing home placement may be a precipitant of suicide among the elderlyJournal of the American Geriatrics Society 39407–408.

    Google Scholar 

  • MercierC.Peladeau, N, & Tempier, R (1998) Age, gender and quality of lifeCommunity’ Mental Health Journal 34487–500.

    Article  Google Scholar 

  • Mitchell, J M&Kemp, B. J. (2000). Quality of life in assisted living homes’ A multidimensional analysis.Journal of Gerontology 55B117–127.

    Google Scholar 

  • O’Connor, B. P. & Vallerand, R. J (1998). Psychological adjustment variables as predictors of mortality among nursing home residents.Psychology and Aging 13368–374.

    Article  Google Scholar 

  • Okun, M. A. & Stock, W. A (1987). Correlates and components of subjective well-being among the elderlyJournal of Applied Gerontology 695–112.

    Article  Google Scholar 

  • Ormel, J., Lindenberg, S., Steverink, N, & VonKorff, M. (1997). Quality of life and social production functions: A framework for understanding health effects.Social Science and Medicine 451051–1063.

    Article  Google Scholar 

  • Osberg, J.S., McGinnis, G.E., DeJong, G, & Seward, M.L. (1987). Life satisfaction and quality of life among disabled elderly adultsJournal of Gerontology 42228–230.

    Article  Google Scholar 

  • Pearlman, R. A., Uhlmann, R. F. (1988a). Quality of life in chronic diseases: Perceptions of elderly patients.Journal of Gerontology’ Medical Sciences 43M25–M30.

    Google Scholar 

  • Pearlman, R. A., Uhlmann, R. F. (1988b). Quality of life in the elderly’ comparisons between nursing home and community residents.Journal of Applied Gerontology7, 316–330.

    Google Scholar 

  • Pearlman, R A., Uhlmann, R F. (1991). Quality of life in elderly, chronically ill outpatients.Journal of Gerontology: Medical Sciences 46M31–M38

    Google Scholar 

  • Reberger, C., Hall, S. E., Criddle, R. A. (1999) Is hostel care good for you“ Quality of life measures in older people moving into residential care.Australasian Journal on Ageing 18145–149

    Article  Google Scholar 

  • Rodin, J. (1986). Aging and health: Effects of the sense of control.Science 2331271–1276.

    Article  Google Scholar 

  • Romney, D. M., Jenkins, C. D., & Bynner, J. M. (1992). A structural analysis of health-related quality of life dimensions.Human Relations 45165–176.

    Article  Google Scholar 

  • Ronnberg, L. (1998). Quality of life in nursing-home residents: an intervention study of the effect of mental stimulation through an audiovisual programme.Age and Ageing 27393–397.

    Article  Google Scholar 

  • Ryff, C. D. (1989). Happiness is everything, or is it? Explorations on the meaning of psychological well-being.Journal of Personality and Social Psychology 571069–1081.

    Article  Google Scholar 

  • Schnelle, J. F., Alessi, C. A., Al-Samarrai, N., Fricker, R D., & Ouslander, J. G. (1999). The nursing home at night: Effects of an intervention on noise, light and sleep.Journal of the American Geriatrics Society 47430–438.

    Google Scholar 

  • Schwartz, C. E., & Sendor. M. (1999). Helping others helps oneself Response shift effects in peer support.Social Science and Medicine 481563–1575.

    Article  Google Scholar 

  • Schwartz, C. E., & Sprangers, M.A.G. (1999). Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research.Social Science and Medicine 481531–1548

    Article  Google Scholar 

  • Sprangers, M.A.G., & Schwartz, C.E. (1999). Integrating response shift into health-related quality of life research: A theoretical model.Social Science and Medicine 481507–1515.

    Article  Google Scholar 

  • Urciuoli, O., Dello Buono, M., Padoani, W., & De Leo, D. (1998). Assessment of quality of life in the oldest-old living in nursing homes and at home.Archives of Gerontology and Geriatrics, Suppl 6507–514.

    Article  Google Scholar 

  • Walker, S. R. & Rosser, R. M. (Eds.). (1993)Quality of life assessment. Key issues in the 1990s.Dordrecht: Kluwer Academic.

    Google Scholar 

  • Watson, D., Clark, L. A., & Tellegen, A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales.Journal of Personality and Social Psychology 541063–1070

    Article  Google Scholar 

  • Wilson, I.B. (1999). Clinical understanding and clinical implications of response shift.Social Science and Medicine 481577–1588.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2002 Springer Science+Business Media Dordrecht

About this chapter

Cite this chapter

Helmes, E., Austin, L. (2002). Quality of Life in Residential Care. In: Gullone, E., Cummins, R.A. (eds) The Universality of Subjective Wellbeing Indicators. Social Indicators Research Series, vol 16. Springer, Dordrecht. https://doi.org/10.1007/978-94-010-0271-4_7

Download citation

  • DOI: https://doi.org/10.1007/978-94-010-0271-4_7

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-94-010-3960-4

  • Online ISBN: 978-94-010-0271-4

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics