Skip to main content

HIV-Related Stigma and Discrimination in Puerto Rico: The Role of Sympathy on Attitudes Toward Persons Living with HIV/AIDS

  • Chapter
  • First Online:
  • 4376 Accesses

Abstract

As the number of persons living with HIV/AIDS (PLWHA) continues to increase in Puerto Rico, it becomes increasingly important to address the issues of stigma and other discriminatory attitudes. This chapter presents the findings of my study which examined the attitudes toward PLWHA of a large sample of women living in public housing in Puerto Rico, including sympathy and support for PLWHA in the workplace and in school. A total of 1,138 women completed a self-administered 218-item survey made up of questions that measured HIV-related knowledge, attitudes, and behaviors. Levels of sympathy varied depending upon the target group, with HIV-infected drug users receiving the least sympathy. Most women reported that HIV-positive teachers should be allowed to teach and that HIV-positive children should be allowed to attend school. However, a significantly lower percentage reported that HIV-infected nurses should be allowed to continue working. Women who were more sympathetic toward PLWHA were more tolerant of PLWHA in the workplace and school, while those with inaccurate knowledge concerning HIV transmission were less tolerant. Also, those who knew a PLWHA were more tolerant. Levels of discriminatory attitudes in Puerto Rico are high and warrant both individual- and societal-level interventions.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Andrinopoulos, K., Kerrigan, D., Figueroa, J. P., Reese, R., & Ellen, J. M. (2010). HIV coping self-efficacy: A key to understanding stigma and HIV test acceptance among incarcerated men in Jamaica. AIDS Care, 22(3), 339–347.

    Article  Google Scholar 

  • Auerbach, C., & Beckerman, N. L. (2010). HIV/AIDS prevention in New York City: Identifying sociocultural needs of the community. Social Work in Health Care, 49(2), 109–133.

    Article  Google Scholar 

  • Ayala, G., & Diaz, R. (2001). Racism, poverty, and other truths about sex: Race, class, and HIV risk among Latino gay men. International Journal of Psychology, 35(2), 59–78.

    Google Scholar 

  • Batson, C. D., Fultz, J., Fortencbach, V. A., McCarthy, D. M., & Varney, L. L. (1986). Social evaluation and the empathy-altruism hypothesis. Journal of Personality and Social Psychology, 73, 510–516.

    Google Scholar 

  • Batson, C. D., Chang, J., Orr, R., & Rowland, J. (2002). Empathy, attitudes and action: Can feeling for a member of a stigmatized group help the group? Personality and Social Psychology Bulletin, 28, 1656–1666.

    Article  Google Scholar 

  • Becares, L., & Turner, C. (2004). Sex, college major, and attribution of responsibility in empathic responding to persons with HIV infection. Psychological Reports, 95, 467–476.

    Google Scholar 

  • Bravo, P., Edwards, A., Rollnick, S., & Elwyn, G. (2010). Tough decisions faced by people living with HIV: A literature review of psychosocial problems. AIDS Review, 12(2), 76–88.

    Google Scholar 

  • Centers for Disease Control (CDC). (1992). Hemophilia behavioral intervention evaluation project. Atlanta: Centers for Disease Control and Prevention, Behavioral Intervention Research Branch.

    Google Scholar 

  • Centers for Disease Control (CDC). (2009). HIV/AIDS surveillance report (Vol. 1). Atlanta: Centers for Disease Control and Prevention.

    Google Scholar 

  • Centers for Disease Control (CDC). (2011). HIV prevention in the United States. Retrieved May 12, 2011, from http://www.cdc.gov/hiv/resources/reports/pdf/hiv_prev_us.pdf

  • Clum, G., Chung, S. E., Ellen, J. M., & The Adolescent Medicine Trials Network of HIV/AIDS Interventions. (2009). Mediators of HIV-related stigma and risk behavior in HIV infected young women. AIDS Care, 21(11), 1455–1462.

    Article  Google Scholar 

  • Cohen, J., & Cohen, P. (1983). Applied multiple regression/correlation analysis for the behavioral sciences. Hillsdale: Lawrence Erlbaum.

    Google Scholar 

  • de Bruyn, T. (1998). HIV/AIDS and discrimination. A discussion paper –the experience of specific populations. Montreal: Canadian HIV/AIDS Legal Network and Canadian AIDS Society.

    Google Scholar 

  • Diaz, N. V. (2008). HIV/AIDS stigma among health professional in Puerto Rico: Implications and strategies for action. Retrieved May 12, 2011, from http://www.hivcenternyc.org/lectures/podcasts/12-11-08_Nelson_Vargas_Diaz/12-11-08_Nelson_Varas_Diaz.pps#296

  • Eisenberg, N., Fabes, R. A., Murphy, B., Karbon, M., Maszk, P., Smith, M., O’Boyle, C., & Suh, K. (1994). The relations of emotionality and regulation to dispositional and situational empathy-­related responding. Journal of Personality and Social Psychology, 66, 776–797.

    Article  Google Scholar 

  • Eisenberg, N., Guthrie, I., Cumberland, A., Murphy, B. C., Shephard, S. A., Zhou, Q., & Carlo, G. (2002). Prosocial development in early adulthood: A longitudinal study. Journal of Personality and Social Psychology, 82, 993–1006.

    Article  Google Scholar 

  • Ezedinachi, E. N., Ross, M. W., Meremiku, M., Essien, E. J., Edem, C. B., Ekure, E., & Ita, O. (2002). The impact of an intervention to change health workers’ HIV/AIDS attitudes and knowledge in Nigeria: A controlled trial. Public Health, 116(2), 106–112.

    Google Scholar 

  • Goffman, E. (1963). Stigma: The management of a spoiled identity. Edinburgh: Edinburgh University Press.

    Google Scholar 

  • Gonzalez-Rivera, M., & Bauermesiter, J. A. (2007). Children’s attitudes toward people with AIDS in Puerto Rico: Exploring stigma through drawings and stories. Qualitative Health Research, 17(2), 250–263.

    Article  Google Scholar 

  • Herek, G., & Capitanio, J. (1997). AIDS stigma and contact with persons with AIDS: Effects of direct and vicarious contact. Journal of Applied Social Psychology, 27(1), 1–36.

    Article  Google Scholar 

  • Herek, G., Capitanio, J., & Widaman, K. (2002). HIV-related stigma and knowledge in the United States: Prevalence and trends, 1991–1999. American Journal of Public Health, 92(3), 371–377.

    Article  Google Scholar 

  • International Center for Research on Women (ICRW). (2002). Understanding HIV-related stigma and resulting discrimination in Sub-Saharan Africa: Emerging themes from early data collection in Ethiopia, Tanzania, and Zambia. Washington, DC: International Center for Research on Women.

    Google Scholar 

  • International Labour Organization (ILO). (2001). Code of practice on HIV/AIDS and the world of work. Geneva: International Labour Organization.

    Google Scholar 

  • Kassaye, P. R., Gore-Felton, C., Wyshak, G., Kadzirange, G., Woelk, G., & Katzenstein, D. (2009). Quality of life, psychosocial health, and antiretroviral therapy among HIV-positive women in Zimbabwe. AIDS Care, 21(12), 1517–1527.

    Article  Google Scholar 

  • Ministry of Health. (2004). National knowledge, attitudes, behaviors and practices survey. Kingston: National HIV/AIDS Control Programme.

    Google Scholar 

  • Norman, L. R., & Carr, R. (2005). Discriminatory attitudes toward persons living with HIV/AIDS in Jamaica: A hierarchical analysis of university students. AIDS & Public Policy Journal, 20(Spring/Summer), 40–50.

    Google Scholar 

  • Norman, L. R., Carr, R., & Jimenez, J. (2006). Sexual stigma and sympathy: Attitudes toward persons living with HIV in Jamaica. Culture, Health & Sexuality, 8(5), 423–433.

    Article  Google Scholar 

  • Parker, R., & Aggleton, P. (2000). HIV/AIDS related stigma and discrimination: A conceptual framework and an agenda for action. New York: Population Council.

    Google Scholar 

  • Peltzer, K., Nzewi, E., & Mohan, K. (2004). Attitudes towards HIV-antibody testing and people with AIDS among university students in India, South Africa and United States. Indian Journal of Medical Sciences, 58(8), 95–108.

    Google Scholar 

  • Puerto Rico Department of Health. (2009). HIV/AIDS surveillance report. San Juan: Department of Health.

    Google Scholar 

  • Roldan, I. (2007). AIDS stigma in the Puerto Rican Community: An expression of other stigma phenomenon in Puerto Rican culture. Interamerican Journal of Psychology, 41(1), 41–48.

    Google Scholar 

  • Rutledge, S. E., & Abell, N. (2005). Awareness, acceptance, and action: an emerging framework for understanding AIDS stigmatizing attitudes among community leaders in Barbados. AIDS Patient Care and STDs, 19, 186–199.

    Article  Google Scholar 

  • Sambisa, W., Curtis, S., & Mishra, V. (2010). AIDS stigma as an obstacle to uptake of HIV testing: evidence from a Zimbabwean national population-based survey. AIDS Care, 22(2), 170–186.

    Article  Google Scholar 

  • Sistema de Vigilancia SIDA. (2008). Casos de VIH confrimados. Retrieved May 12, 2011, from http://www.tendenciaspr.com/Salud/Salud.html#anchor_331

  • Skelton, J. (2006). How negative are attitudes toward persons with AIDS? Examining the AIDS-­leukemia paradigm. Basic and Applied Social Psychology, 28(3), 251–261.

    Article  Google Scholar 

  • Sober, E., & Wilson, D. (1998). Unto others. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Subramanian, T., Gupte, M. D., Dorairaj, V. S., Periannan, V., & Mathai, A. K. (2009). Psycho-­social impact and quality of life of people living with HIV/AIDS in South India. AIDS Care, 21(4), 473–481.

    Article  Google Scholar 

  • Varas-Diaz, N., Serrano-Garcia, I., & Toro-Alfonso, J. (2005). AIDS-related stigma and social interaction: Puerto Ricans living with HIV/AIDS. Qualitative Health Research, 15(2), 169–187.

    Article  Google Scholar 

  • Wikipedia. (2011). Public housing in Puerto Rico. Retrieved May 12, 2011, from http://en.wikipedia.org/wiki/Public_housing_in_Puerto_Rico

  • World Bank. (2000). HIV/AIDS in the Caribbean: Issues and options (Report number 20491-­LAC). Washington, DC: Human Development Sector Management Unit, Latin American and the Caribbean Region.

    Google Scholar 

  • World Health Organization. (2000). Definitions of indicators and targets for STI, HIV and AIDS surveillance. STI/HIV/AIDS Surveillance Report, 16, 9–11.

    Google Scholar 

  • Woubalem, Z. (2005). Half-baked HIV/AIDS knowledge: Blessing or curse. Journal of Health and Promotion in Developing Countries, March, 2005.

    Google Scholar 

  • Zagumny, M. J., & Deckbar, R. (1995). Willingness to work and sympathy for HIV positive co-­workers: An experimental examination of model of transmission concern, and knowledge. Psychological Reports, 77, 571–576.

    Article  Google Scholar 

  • Zhou, Y. R. (2007). “If you get AIDS….you have to endure it alone”: Understanding the social constructions of HIV/AIDS in China. Social Science & Medicine, 65(2), 284–295.

    Article  Google Scholar 

Download references

Acknowledgements

I would like to acknowledge that this study was sponsored by NCRR Grant U54RR19507. These analyses have been published previously in the journal AIDS Care, with the following reference: Norman, L.R., Abreu, S., Candelaria, E., and Sala, A. (2009). The effect of sympathy on discriminatory attitudes toward persons living with HIV/AIDS in Puerto Rico: A hierarchical analysis of women living in public housing. AIDS Care, 21(2), 140–149. This project was part of the Puerto Rico Comprehensive Center for the Study of HIV Disparities (PR-CCHD), as a collaborative effort of the University of Puerto Rico, Medical Sciences Campus, the Universidad Central del Caribe, School of Medicine, and the Ponce School of Medicine. I also want to thank Bob Ritchie from the RCMI Program Publications Office (Grant #2 G12 RR003050-­21) for his contribution to the editing of the manuscript. Lastly, I want to thank the staff of the public housing developments for assisting us in conducting our research and the females who volunteered to partake in the research study.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Lisa R. Norman Ph.D. .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2013 Springer Science+Business Media Dordrecht

About this chapter

Cite this chapter

Norman, L.R. (2013). HIV-Related Stigma and Discrimination in Puerto Rico: The Role of Sympathy on Attitudes Toward Persons Living with HIV/AIDS. In: Liamputtong, P. (eds) Stigma, Discrimination and Living with HIV/AIDS. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-6324-1_10

Download citation

Publish with us

Policies and ethics